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Just need to talk to my friends (219)
Summer is here, I guess. Heat index today was 100+ and will be again tomorrow, then a little cooler. Carl, does the smoke alarm come with the battery or can you buy the battery separately to put in another one? There was a warning yesterday on tv to not put lithium batteries in the trash. Someone did and it started a fire…
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Advice on Home Care, plus the Dreaded Question...
I’m new here and so grateful I found this site filled with amazing stories, compassion, helpful information, love and support. It’s a wonderful community navigating a difficult journey… I too, am on the journey. My DW is likely stage 4 and becoming less verbal, more withdrawn, and lost interest in cooking. She needs…
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One more time
Just thought I'd drop in to say "Hi", and share a little story about what's been going on with me. Seventeen days will mark four years since DW passed. Yes, there is life after dementia. Following is a little story some may find worth reading. Feel free to skip this post anytime. I'm not even sure why I'm sharing it. About…
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I need your empathy and suggestions.
New to this. DW has cognitive issues and is being diagnosed over next 2 months. Most times I am able to deal with this and we still have many good times together. But there are many times when this is so frustrating for both of us and very depressing for me. Walking outside or into another room sometimes relieves the…
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Did I do the right thing?
There was a notice in the mail that my LO would have to take a driver's exam in order to continue to hold her driver's license. In the report it stated quite clearly this is a result of her Alzheimer's diagnosis. My LO is in total denial, and any mention of Alzheimer's can become a trigger for agitated and aggressive…
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Thoughts on Travel
My husband is 56 and has Dementia, Dercum's Disease, and a TBI from his military service. He is well into stage 4. He easily loses focus, gets confused, loops with questions, loses items, forgets to take meds or where he is going, and we are having the discussion about driving because he has gotten lost 3 times in trying…
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planning for memory care - Oregon vs. California
New member here, this is my second post. I have read through many posts, and I want to say thanks to all of you for compassionately sharing your struggles and experiences, they are most helpful. I am now clear that my DH needs memory care, for his safety and for my wellbeing. He has moderately severe dementia, bladder…
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DBAT Scale; FAST Scale; and others?
Which of these scales have you folks found to be helpful? I am the sole caregiver for my 72 yo DH with dementia/Alz. We live in a rural mountain area. (We have all 4 seasons here).
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This disease has made it impossible to _______
Any one of us could fill in the blank, this disease has made it impossible to_________. I have many answers for that blank, but my current answer would be, to dress my DH. Putting on and taking off shirts, especially over the head has become impossible. He fights it, and having a contracted left hand plastered to his belly…
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Technology Question
Hi all, I am lucky enough to still work and have part time care at home. DH has lost the ability to use his phone (no executive functioning). At the beginning of the year I purchased a Memory Board to set up reminders (that I had fed the dog, that I would be home at X time, etc.). For the first few months he checked it…
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Scammers
Hello, anyone had issues with their DH being vulnerable to scammers? I have had to change the cell number, delete What’s App and FB messenger. In addition, limited the debit card to certain amount of ATM transactions and point of sales. I have also taken away credit cards. It’s been a terrible weekend getting scammed for…
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House Arrest
It's been a long time since I've posted or visited. It's four years since since I quit working full time. Husband is progressing. He is still continent and feeds himself but can't do much else expect walk within the house and up the driveway; anything else exhausts him. He is very happy. He is driving everyone crazy with…
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Guilt
Does anyone feel from guilt, feeling like somehow our loved one wouldn't be an Alz sufferer if we'd done things differently in our lives, not hurtful things but just maybe taken different paths in life overall, provided better, etc.? Thx HK
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DW Doesn't Understand Questions
I'm really fighting hard to help DW to understand the questions shes required to answer prior to her annual physical exam. I.e. The form asks "Over the last two weeks, how often have you been bothered by any of the following problems?", and then comes a list of potential problems like "Feeling down, depressed, or hopeless"…
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Sad realization
We are visiting our grandchildren and yesterday while playing games with my DH and 4 year old grand daughter I realized she got the rules quicker than her grandfather. She kept saying, “It’s ok, and your color is red and mine is blue etc. while playing Candy Land. He could not keep the pieces straight or match the colors.…
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Infusion Therapy
First time on here and so happy I found this group. Husband was recently diagnosed with AD. Be interested if anyone’s LO has gone through infusion therapy. Any side effects, what stage they were in when started, drug used, etc. Did they get aPOE4 genetic tested? TIA for your feedback and support
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Non Stop Talking
My DW has not stopped talking since we came home from shopping at 1 pm today. When there is a slight pause she streams all kinds of accusations at me whch I deny as calmly as I can. She rants about people watching us or people stealing money she claims she has hidden. There is or has been a variety of caustic topiics…
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"typical" behavior
We periodically check in with DW PCP and have regular visits from our palliative care nurse. DW's behavior has changed quite a bit as the disease progresses. However, it seems no matter what behavior I describe, the response from the medical professionals is always the same, "that is typical". Sleeps all the time or cannot…
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Coping When Loved One Remembers Things Wrong
Hi everyone, I wanted to share something that’s weighing on me after my recent visit with my husband. I spent a few hours with him yesterday at the nursing home, and while things went smoothly during lunch, he became anxious and started exit-seeking after. The toughest part is how his memories of these visits sometimes get…
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Diagnosis restarts, conflicting medpro views, I'm burning out
I'm new here. I tried searching discussions & not much new—the uncertainty of everything is getting to me. My Mate (DW) 61 was diagnosed with EO (gene, fam history, 6 months of testing with long delays between, PET scans etc) in early February '26 (after getting a neurologist back in August. They referred her to an one of…
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Just another day
I took my DW out shopping for a new pair of sneakers, found a pair she loved. The next day we were going out and she wore the new sneakers and raved about them. When we got home she put them back in the box and placed them on the couch. The next morning I noticed the sneakers were gone from the couch but didn't say…
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Mushrooms
My son, always holding hope found this article in the NY Post. I don’t discount the possibility of magic mushrooms providing temporary lucidity. Would love to see your thoughts. https://nypost.com/2026/06/04/health/alzheimers-patient-recovers-speech-continence-and-memory-with-this-drug/
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Shock at seeing the reality of dementia
Our local library held its first Memory Cafe yesterday…for caretakers of people with dementia and their partner. My DH is in early Stage 4 and seems "normal" most of the time. There were several people there who were quite advanced in dementia. Although I have read everything about dementia and watched numerous videos, I…
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Room to Room
We have a bathroom that’s got two doors, one from the hallway and one from the kitchen. You can literally walk into bathroom from hall, go through it and exit on the kitchen side and walk around back to hallway and complete the circle. Well that’s what my DW with EOAD has been doing literally for the past hour or so. It’s…
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Insults
DH just told me that the truck that just drove by us has a picture of me on it! It was a pork truck with a big fat pig on the side! It hurt but I let it go. Looking at my grandsons HS graduation's pictures and DH said wow Look at those bags under your eyes! Cried and walked outside! Do not tell me it’s the dementia he has…
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Will My Marriage Just Vanish?
This is just a therapeutic post on my part. My wife and I were married 30 years ago, and we have lived in the same house the entire time. Our 30th anniversary came and went with no fanfare, as she has not understood any significant dates for over a decade. Dementia has destroyed ten and a half years of our marriage. As…
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Dilemma about Memory Care
I have two questions: First, almost universally the memory care facilities I have visited say you should place your person sooner rather than later. I wonder what the evidence is for this, or whether it's easier for them to have less impaired people. What I see, almost everywhere, is people who are mostly pretty far along…
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New to this site & in distress
My DW of 55 years was diagnosed with AZ, VD, LB in December of 2025. She has a wide range of health issues, which I have helped her handle for our entire marriage, The latest issue that I have struggled to deal with is her diabetic control. She has been a diabetic since she was 12YO. She has had an insulin pump for nearly…
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Resentment
I’m finding it difficult to “do all things with great love”. My DH is really unable to follow through on any request, “put the screwdrivers away” “take out the trash” “put in a new trash bag” “feed the dogs”because he can’t hold onto the thought long enough to complete it. He used to be able to follow a one step direction…
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Medicare Coverage
Can anyone share what their Medicare provider covers for in home care and memory care assisted living