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Getting "Full Services" with EOAD?
Internal Administrator
Posted: Tuesday, January 17, 2012 5:40 PM
Joined: 1/14/2015
Posts: 40463


Originally posted by: Paul B

Hello All, A short intro, I'm 45 and my wife is 61 (add a year to that for both come April). I have been caring for my wife from day one of her being diagnosed AD little over 7 years ago. She is now at early 7th stage. I am a TOTAL burned-out care-giver seeking some assistance with her care. i have gotten her some services through Senior Services. (In home personal care aide, 3 hours 4 days per week) I had posted on another area here under the caregiver forum. see "Lost hanging by a thread"

I thought that maybe I should be posting here, since my wife is only 61. I would like to hear what others have found that works, or if they too have been running into the fact that they have AD at a younger age, seems to limit the benefits that they receive. My wife has medicare & medicaid with a spend-down. They tell me that there is NO Respite or Companion Care available to us until she is 65. And seems her in home personal care hours are limited somewhat because I live in the home too. Has anyone found any "work arounds" this, or have any suggestions as to what might get her more benefits?
Anonymous
Posted: Tuesday, January 17, 2012 5:40 PM
Originally posted by: Lisa 428

Dear Paul,
Hello and welcome. Alan is correct. I think this is a question for the caregivers. However, please call the AD helpline @ 1-800-272-3900. Thwy are there 24/7 and may be able to help you.

Good Luck
Anonymous
Posted: Tuesday, January 17, 2012 5:40 PM
Originally posted by: JAB

Paul, this is something we have discussed over on The Alzheimer Spouse:

http://www.thealzheimerspouse.com/

It's a web site specifically for those of us whose spouses have AD. The link to the discussion forum (message board) is near the top of the green menu on the left.

Much to my surprise, there are indeed differences in the benefits that are available for younger AD patients, which I think is purely awful.

For example, even if your wife qualifies for medicare, the insurance companies do not have to offer her medigap insurance -- she can be disqualified because of her AD, even though anyone over 65 who has AD must be offered medigap.

I would continue questioning every time you're told "no", however. Try someone higher up, try someone with a different organization. The regulations are changing, and sometimes people aren't always up-to-speed.

Post on the Caregiver forum, and also over on Spouse. Two heads are better than one ... dozens are better than two!
Anonymous
Posted: Tuesday, January 17, 2012 5:40 PM
Originally posted by: Alan in Colorado

Hi Paul, sorry for what brings you here. Your question at the end is something the folks in "Caregivers" would know about, those guys are the best!
Anonymous
Posted: Tuesday, January 17, 2012 5:40 PM
Originally posted by: JAB

Paul, are you a veteran? Have you checked into Aid & Assistance? This is a "pension benefit" and does not require service-related injuries to qualify. It provides money for Veterans and surviving spouses who require the regular assistance of another person in eating, bathing, dressing, undressing or taking care of the needs of nature. Most Veterans who are in need of assistance qualify for this pension. Aid and Attendance can help pay for care in the home, nursing home or assisted living facility.

See:
http://www.veteranaid.org/
http://veteranaid.org/experience.php
http://www.vetassist.org/index.htm
http://vabenefits.vba.va.gov/vonapp/main.asp

http://www.myhealthyvet.com


Or have you seen the booklet on financial/support programs available at:

http://www.wiserwomen.org/pdf_files/stepscaregivers10_05.pdf

You may find some good ideas there.