I know it's frustrating Julie but just know that you are advocating for yourself the best that you can.  Your list and all of your other preparations will hopefully get at least some of the answers you are seeking.

We all know how frustrating Drs. can be, but that doesn't mean we quit trying to get the answers we deserve.

If you can find someone who is willing to dig in and help you then it will be worth the aggravation.

I know this isn't much help but I just want to let you know that I am concerned and wish the very best to you.

(((HUGS)))

--Lynda

DEAR JULIE,

I'm proud of continued efforts in self advocacy. I'm sure it can get tough but you seem to be handling it like a trooper. YOU GO GIRL!!!!!

Lisa Ramey

You can only do what you can do with what you have....and at the end of the day, you could do no more if you tried. 

There a poem I printed out and laminated long go, I keep on my blanket....so I have handle it when I go bed, and when I put my blanket away.   It help me a lot in trying make my diminishing skill set be ok my type a brain....maybe it help you also:

"Courage does no always roar.  Sometimes, courage is the quiet voice at the end of the day saying, "I will try gain morrow."

I made that when life was really hard me...really really hard me...and I had no idea how I was going carry on.  I longed for the kind of help my neighbor with breast cancer had.  I longed for the kind of supportive family others have.  I longed for my friends back in California.  And I longed be the kind of person that could tell someone I needed help.  I was so alone...and I was really hurting. 

So I became my own caring friend....and I took care my sick body, and I walked beside my leg dragging, walker wielding, dystonia undulating body....and I encouraged myself on.   And I whispered those words aloud myself each night...."courage is, I will try again morrow." 

It got me through.  And no being one mess with what works....I still whisper that aloud morning and night.  Although sometimes I only manage one word now. 

Try envision a wonderful doctor appointment.  Try envision the whole thing go the way you want it go. 

All any us can do is the best we can do.  Show up, present you list, say all you need be....if the appointment go south it will no be because of you. 

<3