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Posted: Wednesday, June 16, 2021 10:21 AM
Joined: 6/16/2021
Posts: 2

Hello community,

 My father has been diagnosed with early onset Alzheimers. As you all may relate to, times get rough. I live with my father and 2 other family members with a brother who has recently moved out. At the age of 23, I have a lot going on - with a full time job and hobbies. I love my father and would do anything for him and my family. I am looking to connect with other families who are or who have been through a similar situation for as you may imagine, times have been very confusing and sad for myself. Thank you.



Posted: Wednesday, June 16, 2021 4:32 PM
Joined: 12/4/2011
Posts: 21310

Hi and welcome...although we post on all of the boards you will get more responses if you copy and paste this on the caregiver's board.

You will find many there dealing with family dynamics.

Jo C.
Posted: Wednesday, June 16, 2021 7:32 PM
Joined: 12/9/2011
Posts: 13692

Hello Matt and a very warm welcome to you.  I am sorry to hear what is happening with your dear father; he is blessed to have such a caring and loving son and can imagine the heartache and changes this is causing.  It will also be important to find ways for you to continue to have your life and move forward with that too.  It takes awhile to get up to speed and get things set into place.

The Alzheimer's Assn. has a 24 Hour 365 day a year Helpline at (800) 272-3900.  If you call, ask to be transferred to a Care Consultant.  There are no fees for this service. Consultants are highly educated Social Workers who specialize in dementia and family dynamics.  They are of much support for family and those helping with care; .they listen to us and it is a good place to bring our concerns, our emotions and even to vent.   They have much information and can often assist us with our problem solving.

I wonder if your father has applied for the compassionate fast track disability that is available to people with Young Onset Dementia through the Social Security Administration.  Not everyone knows that exists.  If he has not already done so, it would be good to get him to an Elder Law Attorney to get all his legal papers in order; this will save much disruption in the future. Elder Law is the specialty best suited to your father's situation despite his age.

Also, you have landed on the Young Onset forum which sounds as though it is the place to be, but actually it is a place where most input is done by those who actually have Young Onset Dementia and it is also not a very well attended forum.  If you go to the Caregiver's forum and place your Post there, you will get much more input.  We are permiitted to post on any and all Forums, so do take advantage of that if you wish.  The Spousal/Partner forum is also well attended and if you read there, there is a lot of information.

I send you best wishes and am glad you have found us; you have found a good place to land and get much input from others, it can be so helpful as time moves forward.


Jo C.
Posted: Wednesday, June 16, 2021 7:34 PM
Joined: 12/9/2011
Posts: 13692

Whoops; just saw that you did get on the Caregiver's forum, Matt.  Sorry.  I will transfer my post over there.