Well, I finally got an appointment with a new neurologist and it is 3 months away. I am nervous to anticipate startting new testing and possible new diagnosis.REBECCA, DO YOU HAVE REASON TO SUSPECT A NEW DIAGNOSIS? A DIAGNOSIS OF FTD SHOWS THERE WAS A MORE SOPHISTICATED PROCESS USED.
I have been in a groove and fear it being changed. I hate being a lab rat with medicine and if a patient refuses to do what the doctor suggests they are considered non-complient. I will take one step at a time.
WHAT HAVE YOU REFUSED TO DO THAT THE DOCTOR ADVISED?
What really scares me is the communication with the doctor. I will be going with my husband and I feel he doesn't know what is going on in my head.
He is the stereotypical man...NONcommunicative...and that doesn't help in a doctors office with a short time to tell all.IT'S UP TO YOU TO PUT IN CONCISE STATEMENTS.
WHAT'S GOING ON IN YOUR HEAD?
WRITE IT DOWN AHEAD OF TIME. TAKE A COPY OF IT WITH YOU AND HAND IT TO THE DOCTOR, SAYING : THIS IS IN CASE I FORGET TO TELL YOU SOMETHING IMPORTANT.
BEGIN YOUR LIST TODAY. THEN WHEN IT'S CLOSE TO THE APPOINTMENT TIME MAKE A CONCISE LIST, MOST IMPORTANT THINGS AT THE TOP.
I guess he and I have to have a heart to heart chat a week before we go. Maybe he can make a list of what he sees going on with me. Here is the problem. I am always in control and trying to keep life normal. He doesn't see how terribly exhausting it is. I am so tired and he lets me sleep all I want, but he doesn't connect that to mental exhaustion.
TELL YOUR HUSBAND WHAT YOU NEED FROM HIM. TELL HIM THE TIME IS APPROACHING WHEN HE WILL BE IN CHARGE. RIGHT NOW HE IS YOUR CARE PARTNER. YOU HAVE TO TELL HIM WHAT YOU NEED
Is it a good challenge to try to keep up with his pace? I have thought so until lately.
YOU MUST SET YOUR OWN PACE.
I haven't made too many mistakes or hurt myself so I guess it's okay 
AND ARE YOU FOLLOWING THE BEST PRACTICES?