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Posted: Friday, April 10, 2020 10:13 PM
Joined: 4/10/2020
Posts: 2

1 minute ago...


Hi, I’m new here. I’m hoping I could get in touch with any of you who may have had younger onset Alzheimer’s/ dementia. Did you know before? How did you know? 
I feel like I’m starting to lose my mind I’m more than just forgetful and I think I may have a type of dementia. Don’t know where to start looking to find out. I need help. Can any one help? 
I have no one else to talk to about this.

Jo C.
Posted: Saturday, April 11, 2020 2:56 PM
Joined: 12/9/2011
Posts: 12894

Hello BatmanFan and a warm welcome to you.  The first place to begin to find out what is happening, would be to see your primary care doctor.  There are SO many different conditions that can mimic dementia; some of them easily addressed.  Some of these are, thyroid disorder, B12 issues, medication effect, depression and much, much more.  A full physical exam with a thorough screen of labs to determine what may or may not be happening is warranted.

If there is not another health issue causing your changes, then the next step would be to make an appointment with a good Neurologist who sees dementia patients as part of his/her practice.  Neuro can rule out any physical issues within the brain and can also screen for early onset of dementia.  This specialty is important as Neuro is best suited to determine just which type of dementia may be present; there  are multiple different types of which Alzheimer's Disease is only one.  This is crucial as treatment for one type of treatment may be contraindicated in another and make things even worse.

Sometimes, a person lives near a large university medical center that has an entire department with a multidisciplinary team devoted to all matters dementia, but not all of us have that option.

Our primary care MDs are awesome at so much, but they are not on the cutting edge of dementia knowledge and management; one really needs a specialist as part of their healthcare team when such issues are present.

I also suggest contacting the Alzheimer's Assn's 24 Hour Helpline at (800) 272-3900. If you call, ask to be transferred to a Care Consultant. There are no fees for this service.  Consultants are highly educated Social Workers who specialize in dementia and family dynamics.  They are wonderful support, good listeners, have good information to share and can also often assist us with our problem solving.

Hopefully, you can make appointments and get an answer very soon so you know which way you need to head to get best results.

Let us know how you are doing, we truly do care.