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Newbie here
Sunshine 55
Posted: Saturday, August 14, 2021 9:35 PM
Joined: 8/14/2021
Posts: 1


Hello everyone

I have recently been diagnosed with Vascular Dementia, I am 55 a bit young for this disease I’ve been told. 

For the last few years myself, family, friends, physical therapists have all thought I had MS. Finally got to UCSF and was totally expecting and prepared for the MS diagnoses but instead was told VD.  I am currently waiting for a call from UCSF memory and aging, my Dr is hoping to get me into some clinical studies I think. 

My diagnosis appointment went way too quickly and I was not able to ask many questions so here I am, looking for answers and suggestions

I am just totally blown away and pretty scared with this diagnosis. Is there anybody on here that also has vascular dementia? 

Thank you for taking the time to read my story. 


Iris L.
Posted: Sunday, August 15, 2021 12:29 AM
Joined: 12/15/2011
Posts: 17565


Welcome, Sunshine.  I hope you will find some answers here.  It can be challenging to make a diagnosis of any of the dementias, because there is much overlap with other disease pathologies.  Multiple sclerosis can cause a cognitive impairment.  Were you diagnosed with neurocognitive testing?


I have had a diagnosis of cognitive impairment not otherwise specified for many years.  There may be some vascular involvement.  I also have a  diagnosis of systemic lupus, also sleep apnea. 


If you have cardiovascular disease, do all you can to treat it.  Watch your blood pressure.  Check any medications you take now for memory and cognitive side effects.


Have you had to stop working? You may be eligible for SS Disability benefits.


Please write back with more questions.  Read alz.org, there is good information there.


Iris


TommyT
Posted: Sunday, August 15, 2021 6:21 PM
Joined: 3/23/2012
Posts: 41


Hello Sunshine! My name is Tom. I was diagnosed with EOAD at age 58. We have that in command, an early diagnoses. I'm 72 now.

My secret is to accept the dx, get medicated with Alzheimer's drugs, keep your mind active and relax. I moved into a Senior Living facility where everything is done for me if I want. After my dx I was Immediately put on Aricept. There are many other drugs in that category. Later I was started on Namenda also.

Good luck and I hope that we can talk later.

Tom


Iris L.
Posted: Monday, August 16, 2021 12:39 AM
Joined: 12/15/2011
Posts: 17565


TommyT wrote:

 I moved into a Senior Living facility where everything is done for me if I want. 

This is the type of peer advice that I appreciate.  I need to look for a situation where things are done for me.  Thanks, Tom! 


Iris