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Joined: 2/25/2017 Posts: 289
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I took care of my favorite uncle (who had dementia) for 2 yrs. He passed away last November.
Now that I'm back in the state I live in, family, friends, co-workers are wondering why I'm not "acting" like the "same person" I was 2yrs ago. I keep saying "because I'm NOT the same person....duh"
I'm so tired of telling the same story I'm actually thinking of buying index cards with the story already written on them and let them read all about it.
Nicole
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Joined: 8/11/2021 Posts: 57
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I found myself in this situation over the weekend. We had a lovely long overdue dinner party, and I was catching up with people I hadn't spent real time with since the pandemic.
I heard myself telling the same story over and over. At one point, I said to myself BAH, I am tired of this sad, and exhausting tale. And I just stopped talking about it and focused on what was going on in their lives.
I wonder how long it will define me.
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Joined: 4/1/2014 Posts: 5213
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2 years is a long time and a lot has happened during that time. I wonder why these people think you should be the same person after 2 years? Even in the best of times with no worries and hardships, a person changes in 2 years. At least I would hope so and for the better, too. Best to you. You did a wonderful thing for your uncle. Tess
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Joined: 6/12/2016 Posts: 2479
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Dear Nicole, I’m sorry the people in your life don’t get it. They have no clue what you’ve been through. I find that unless someone has actually been a hands on caregiver they will never understand. The average person knows all most nothing about any type of dementia. You may not be the same person you were before but I’m betting you will be stronger, wiser and more patient. Take good care of yourself.
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