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One state at a time...
Veterans kid
Posted: Tuesday, May 3, 2016 5:14 PM
Joined: 10/17/2014
Posts: 1239

 A few weeks ago I went to our capital to try and get a bill passed so that facilities have to have special training for Alzheimer's patients/clients.  Here's an update:

 That’s why your presence in Springfield on April 14 was so critical. By joining with 200 other volunteers from every corner of Illinois in speaking for those who no longer can, you’ve helped raise awareness of the Alzheimer’s epidemic facing our state to the highest level it has ever been in Springfield. 

Senate Bill 2301, our legislation which will require training for healthcare providers who claim to offer dementia-specific services, added 5 co-sponsors and passed the Senate unanimously within one week of our trip to the State Capitol!Having visited with 89 members of the House as well

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Posted: Tuesday, May 3, 2016 9:02 PM
Joined: 12/4/2011
Posts: 21317

Bravo...can't wait to read the Bill  and take it to my legislature...
Lesley Jean
Posted: Friday, May 6, 2016 9:35 AM
Joined: 2/13/2013
Posts: 2965

Great job! Thank you for doing this. 


Posted: Sunday, May 22, 2016 9:25 AM
Joined: 12/22/2011
Posts: 1065

This is fantastic!  I'm so glad I checked in at this group today.  You've inspired me to see what is happening in Pennsylvania.  In fact I'm wondering if it might make sense to have a separate discussion group here for advocacy both on a macro, but also micro level so more folks can share ideas...hmmm
Posted: Sunday, May 22, 2016 9:32 AM
Joined: 12/22/2011
Posts: 1065

Veteran's kid- This has me thinking about how hospital staff could benefit from understanding how to interact with patients with dementia too.  Especially nurses and aides on supposed geriatric floors and geriatric psych units.  There were some staff from a past hospitalization my on a psych floor( adults and geriatric patients combined on same floor) mother once had that clearly did not know how to talk to someone w dementia.  The nurse who checked in my mother challenged her by saying, "So------ are you going to take your meds?" My mother was refusing meds as part of her illness/paranoia.  She had no short term memory. How would she even be able to answer that question? How ridiculous... Anyways, I'm obsessing now, but that's an example...

Can you share your legislative/advocacy news on the regular caregiver group?