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Joined: 12/15/2011
Posts: 18691
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Is anyone familiar with this drug? I was called to participate in a clinical trial regarding this drug, which is supposed to reduce or limit amyloid in the brain. I have already had an Amyvid PET scan and was told that I don't have significant amyloid in my brain.
My diagnosis is cognitive impairment not otherwise specified, I am APOe4 positive, and I have been on Exelon patch and memantine for about thirteen years and I am essentially stable. I would appreciate any information or knowledge. I am not really interested in beginning an unknown medication.
Iris
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Joined: 12/12/2011
Posts: 5174
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Since you don't have significant amounts of amyloid in your brain, Iris, I don't think an anti-amyloid drug candidate, such as this, would do any good.
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Joined: 12/15/2011
Posts: 18691
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My Amyvid PET scan was in 2015 or 2016. I gather that the idea is to repeat now in 2022 or early 2023 to see if there is any change.
I think this medication is something like Aduhelm, sort of a prophylaxis for MCI people.
I don't see how my participation would help me or anyone like me. I know they look for participants to search for side effects. My health is not stable enough to risk unnecessary side effects. I won't even use statins, although they are pushed on me at every cardiology visit. Thanks for responding, Lane.
Iris
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Joined: 12/12/2011
Posts: 5174
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You are welcome, Iris. I think that your reasoning is very sound.
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