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Joined: 1/20/2012
Posts: 43
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Hi everyone! I've been lurking in the shadows reading the boards but thought I'd join in today. Several weeks ago I rec'd my results from the neuro/pysch testing and though I scored low in a number of areas there wasn't a definite diagnosis and they'd like to check again in a year.
Meanwhile, they now have a baseline to compare and also my pcp is finally getting it. I went in to talk about the results with him and brought him my documentation of 'mystery moments'. He told me if I see a big change before a year then it doesn't have to wait that long. For him this was a big hurdle and I felt like he finally got it!!! I told him I didn't want to pursue anything more right now.
Silly me, after the dx I thought 'hmmm, well maybe there isn't anything wrong with me after all'. Then the same day I lost something and had a totally confused day then thought, 'okay, guess there is something off here'. I'm so silly! I keep going between those thoughts!!! 
My sister tells me to make the most of this time period because I'll never get it back again. That the next shift in my brain will bring me to a lower place then now and I probably won't be able to get back to where I am now. At least that's what we experienced with my Mom. I think that's a good thought and it makes me want to enjoy my life now and make my days happy.
I saw a turtle in the back yard yesterday and it brought me such joy to see such a simple thing in life! I just watched him go his slow and steady way and thought how each of us is like that.
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Joined: 12/6/2011
Posts: 3326
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Hi, Willow. So glad you got a diagnosis, but sorry it turned out to be what it is. I am heartened by how you are handling it. Your sister is wise. It's time to savor every moment and to do/experience everything you've wanted. If you're comfortable with it, keep a daily diary. Here's a great big hug for you 
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Joined: 12/15/2011
Posts: 18719
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Willow, what diagnosis were you given?
Your sister is right, make the most of this time.
Iris L.
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Joined: 11/29/2011
Posts: 7027
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Willow, was the term MCI or Mild Cognitive Impairment used?
Will you be getting a written report, so you can go over it at your leisure? What are your strengths? Use them.
What are the areas of weakness? Which of those can you work on?
Do feel free to call the help line 24/7: 1-800-272-3900
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Joined: 3/7/2012
Posts: 2791
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I loved reading about the turtle story. Its the small things we all need to appreciate and enjoy. As my dear father used to say to me: honey, how do you eat an elephant? One bite at a time. I'm trying to use that thinking alone with this hidious diease - its all one step at a time. (Not that each step isn't tramatic, etc. Its overwhelming thinking of eating an entire elephant, but.......one bite at a time is managable.) eagle
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Joined: 3/21/2012
Posts: 439
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willow - reading the turtle story made me smile and helped me to remember and savor these joys, big or small. also, my dear and best friend always tells me, "take small bites, because if you take a big one,you may choke." i try to remember that when i try to get things done or if i seem overwhelmed. "take small bites because i could choke."
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Joined: 12/14/2011
Posts: 1751
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As I've said before, you all amaze me, especially when I'm feeling low. What great attitudes!
Bob 
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Joined: 1/20/2012
Posts: 43
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Lets see, reading my report it says the strengths from my testing include mental processing speed, expressive communication, verbal memory, and verbal reasoning skills.
Areas of weakness include upper extremity motor functioning, receptive communication, attention (working memory), visual-spatial problem solving and spatial memory.
Nothing was said about MCI but it ended saying the visual-spatial skills were low and could suggest weakness with right hemispheric functions.
Some of the testing showed me being mildly impaired while others showed low average to average.
Today while I was baking I listened to the soundtrack of 'The Phantom of the Opera'. OMG, I absolutely love it and watch the movie every year! Who would have thought Girard Butler could sing like that!!!
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Joined: 12/15/2011
Posts: 18719
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My report of my six hours of psychometric testing did not come back with a list of strengths and weaknesses. I was only told that I had improved in a couple of areas, and declined in several areas.
Iris L.
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