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FTD resources and links
Iris L.
Posted: Thursday, November 6, 2014 6:23 PM
Joined: 12/15/2011
Posts: 18719


Uncharted Waters on the Spouse/Partner board posted  two new FTD resources.   


 

http://www.nextavenue.org/article/2014-01/special-series-under-60-and-living-dementia  


 

 http://memory.ucsf.edu/ftd/sites/all/files/pdf/ftd/MAC_FTD_Primer.pdf  


 


 


 

Here are other FTD resources and links: 


 a book:

What If It's Not Alzheimer's?: A Caregiver's Guide to Dementia  

 

by Lisa Radin 


 

The Association for Frontotemoral Degeneration 

http://www.theaftd.org/   

 

 

http://www.ftdsupportforum.com/  

 

 

http://ftdplanningforhope.com/       

 


 


 

http://www.dementia-assessment.com.au/frontotemporal/frontal_fbi_manual_nov12.pdf  


 

Scientific articles: 

http://archneur.jamanetwork.com/article.aspx?articleid=792731#BDY  


 

http://www.sciencedirect.com/science/article/pii/S0925443911001670  


 

from UC San Francisco:  

http://memory.ucsf.edu/ftd/   


 

 

 
 

 
from an FTD patient: 
My Personal Account of Behavior Variant Frontotemporal Dementia - bvFTD  

 

 

 
Feel free to add more resources and links about FTD. 

Lisa428
Posted: Friday, November 7, 2014 10:40 AM
Joined: 12/5/2011
Posts: 795


Iris,

 

Thanks so much for sharing all these FTD/other dementia's sites.

 

Peace and Hope,

Lisa


Paul Hornback
Posted: Friday, November 7, 2014 12:43 PM
Joined: 8/9/2013
Posts: 584


Iris, thanks again for posting these. You are amazing and a fantastic researcher. I'm so glad you can do all that you do and then share it with us.

God Bless, Paul