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for Iris(1)
jfkoc
Posted: Thursday, May 21, 2015 4:51 PM
Joined: 12/4/2011
Posts: 21118


lots of hugs
Sea Field
Posted: Thursday, May 21, 2015 6:43 PM
Joined: 8/5/2012
Posts: 1872


and here are some more hugs
w/e
Posted: Friday, May 22, 2015 10:16 AM
Joined: 3/7/2012
Posts: 1747


and kisses...

Dear Iris,
In the heart of each one of us, there is a place for you.
Come back.
And listen to the heartbeat of love.
Rhythmically. Pure. Noble. Free.
In union with you.
And. In praise.


Lane Simonian
Posted: Friday, May 22, 2015 7:22 PM
Joined: 12/12/2011
Posts: 5137


I will follow the beautiful poetry and imagery from w/e with something much more pedestrian: we miss you and come back whenever you feel comfortable doing so. I know the words of others can be disconcerting even when not meant to be so or not specifically directed at anyone in particular. We have a long ways to go in our understanding of people with dementia (as Alz+, yourself, and others have so eloquently noted). It took me years myself and then never as empathetic as I should have been. To paraphrase from Bob DeMarco on Alzheimer's Reading Room, the person with dementia is not our enemy, she or he is our loved one.
alz+
Posted: Saturday, May 23, 2015 5:46 AM
Joined: 9/12/2013
Posts: 3608


sending love and strength. good weekend to find something else to think about.

miss you, feels empty without you in the saddle.

(((hugs))))


llee08032
Posted: Sunday, May 24, 2015 8:32 AM
Joined: 5/20/2014
Posts: 4408


((((Iris))))

Missing you and all that you bring to the board; spirit, wisdom, justice, and loving kindness!

I am also very concerned because you have always said the board is your only source of support. The board is not the same with out you... I really, really, miss you Iris.

dayofhope
Posted: Sunday, May 24, 2015 10:07 AM
Joined: 12/6/2012
Posts: 1249


Iris, you are really, really missed. Please, tell us how you are. Very concerned now. How can we help?

Tanya


alz+
Posted: Tuesday, May 26, 2015 8:31 AM
Joined: 9/12/2013
Posts: 3608


dayofhope wrote:
Iris, you are really, really missed. Please, tell us how you are. Very concerned now. How can we help?

Tanya


wish you were here.

love and courage


Paul Hornback
Posted: Tuesday, May 26, 2015 10:28 AM
Joined: 8/9/2013
Posts: 584


Iris, hope you are doing well. We miss you on the boards and are concerned. Let us know how you are doing. We all send our love and hugs.

God Bless, Paul


llee08032
Posted: Tuesday, May 26, 2015 10:59 AM
Joined: 5/20/2014
Posts: 4408


((((Iris)))))

I hope you see the Dr. about the depression. Please do that ASAP before it gets the best of you. There is so much best of you! You are a dear trusted friend to so many here. You are truly missed and the board is not the same without you...please focus on those of us who love and care about you. My phone # and personal email address is in your inbox. Please feel free to call me or email me (I mean that). You need your friends now Iris, please recognize that and know we can help you get through this. Let us share your burden...we've let you help us now let us help you.

llee08032
Posted: Thursday, May 28, 2015 8:07 PM
Joined: 5/20/2014
Posts: 4408


((((Iris))))
milmac111
Posted: Friday, May 29, 2015 8:56 AM
Joined: 10/2/2012
Posts: 1283


Missing you, you are such a kind and giving person. Please let us know how you are doing. We all care.

Bless you, and stay strong,
Milly

jfkoc
Posted: Friday, May 29, 2015 10:54 AM
Joined: 12/4/2011
Posts: 21118


thinking of you
llee08032
Posted: Saturday, May 30, 2015 10:02 AM
Joined: 5/20/2014
Posts: 4408


Has the activity and participation level on our board here among the patients drastically decreased since Iris left the board? It feels like it has to me. I feel sad about this and feel that more should have been done about the issues of the CG posts to prevent Iris and others from leaving the board! I have felt like leaving the board also.
llee08032
Posted: Saturday, May 30, 2015 10:04 AM
Joined: 5/20/2014
Posts: 4408


((((((Iris and others who are struggling with the board))))))
Lane Simonian
Posted: Saturday, May 30, 2015 11:22 AM
Joined: 12/12/2011
Posts: 5137


Don't leave Ilee unless it just becomes too uncomfortable coming here. Unfortunately, I think that is what happened to Iris. She stood up for the right of people to express their opinions as long as they were civil and went out of her way to help everyone else, but may be it just became too much.

You have many stressed caregivers who are having a difficult time adjusting to the changes in their loved ones. Many are dealing with severe behavioral problems. But to the extent possible a caregiver has to adjust their perspective and the environment to their loved one. And they should not bring their burdens here.

I am not for the absolute segregation of forums because the exchange between caregiver and those with dementia can be useful. But it seems in recent days it has become in most cases decidedly unhelpful.

Dahlke
Posted: Sunday, May 31, 2015 8:16 AM
Joined: 7/6/2014
Posts: 1350


Iris, just wanted you to know, we are thinking of you.
llee08032
Posted: Monday, June 1, 2015 8:03 AM
Joined: 5/20/2014
Posts: 4408


((((Iris))))
dayn2nite
Posted: Wednesday, June 3, 2015 2:36 PM
Joined: 12/18/2011
Posts: 3097


Iris, my dog in my avatar wants you to come back...HE'S BEGGING. Come on back!
llee08032
Posted: Saturday, June 6, 2015 9:22 AM
Joined: 5/20/2014
Posts: 4408


((((Iris)))))

Still very concerned about you! Please contact me or someone on the board that cares. I notice they did erase your post about being discouraged over CG post! I'm assuming I'm next in line for being erased so some can stay in la la land and pretend there was no harm done. I am so,so sad and sorry that you are not here and that we do not have a voice even here! It is very painful! I will stop in and give you a hug. Hopefully this thread will not be erased also. God Bless you Iris and All. I keep trying to think how to bring about a change but it seems impossible here on the board. The place I found so called advocating and telling me to advocate for US has basically shut me down! How can I believe that the world view of patients (persons and human beings like us) will ever change if there is NO CHANGE here.


jfkoc
Posted: Saturday, June 6, 2015 10:14 AM
Joined: 12/4/2011
Posts: 21118


you are in our thoughts today



Sea Field
Posted: Saturday, June 6, 2015 12:23 PM
Joined: 8/5/2012
Posts: 1872


Iris, I do hope the time comes when you feel inclined to return to the boards. And that when you do, you see this thread and know that we care about you and miss you.

Cynthia

jfkoc
Posted: Sunday, June 14, 2015 12:29 PM
Joined: 12/4/2011
Posts: 21118


miss you and selfishly wish you had been here this past week to help me with some things...take care dear one
Paul Hornback
Posted: Sunday, June 14, 2015 4:41 PM
Joined: 8/9/2013
Posts: 584


Iris, still missing you. Hope you are doing okay. Miss your input and advice on the boards. Hope you return soon.

God Bless, Paul


Sea Field
Posted: Monday, June 22, 2015 10:00 PM
Joined: 8/5/2012
Posts: 1872


ttt
Lisa428
Posted: Monday, June 22, 2015 10:33 PM
Joined: 12/5/2011
Posts: 795


Iris,

I don't know why you left the boards. I have not been on them for a couple of months. My Dad had a stroke and has required much one on one care.

Iris, I know you have suffered with depression on and off in your life. Depression can be almost unbearable. You must remember this there is always HOPE!!!!

You've dug deep before and found HOPE. Please, dig even deeper for HOPE!

All of us on the Boards are anxiously awaiting a word from YOU!

We are all hoping and praying for you to come back to us. We Love you!


Please,

Peace and Hope,

Lisa



llee08032
Posted: Tuesday, June 23, 2015 7:00 AM
Joined: 5/20/2014
Posts: 4408


((((Iris))))),

Please come back when your ready and focus on those who demonstrate caring, respect and positive regard for you. I pray that your taking care of yourself now and doing what you need to do for you.

As you can see you have not been forgotten! If there is some way I or we can help please let us know.

Lisa428,

I know you couldn't be here but I wish you would have been on the board when Iris was struggling it may have made a difference. Iris not being on the board is a big loss for many! And not knowing if she is okay has been agonizing for some of us!

Sea Field
Posted: Wednesday, July 1, 2015 1:02 PM
Joined: 8/5/2012
Posts: 1872


Iris, still missing you. Hoping you are well.
dayn2nite
Posted: Thursday, July 2, 2015 2:00 AM
Joined: 12/18/2011
Posts: 3097


Iris, look at my dog--HE'S STILL BEGGING for you to come back! Me too!
llee08032
Posted: Thursday, July 2, 2015 6:18 AM
Joined: 5/20/2014
Posts: 4408


((((Iris)))),

It's been too long since we have heard from you...we miss you and we are very concerned!

llee08032
Posted: Sunday, July 5, 2015 11:38 AM
Joined: 5/20/2014
Posts: 4408


Dear Friend,

Missing you and the joy, liveliness, spunk and wisdom that you brought to our board. Stay courageous and be well and strong wherever you are!

CodyW
Posted: Tuesday, July 7, 2015 10:40 PM
Joined: 4/5/2013
Posts: 867


Iris,
Your kind, wise words helped me often. I hope you are taking care of yourself, gathering strength, and finding peace. I miss you.
CodyW

Lisa428
Posted: Tuesday, July 7, 2015 11:16 PM
Joined: 12/5/2011
Posts: 795


IRIS,

missyousomuchpleasecomebacktoletusknowyouareok.


Peace and Hope, Always Hope,

Lisa


milmac111
Posted: Tuesday, July 7, 2015 11:19 PM
Joined: 10/2/2012
Posts: 1283


Iris, you are dearly missed and we are very concerned. I sincerely hope you have worked through things and will return here to the people that love and care about you.

Bless you, and stay strong,
Milly

llee08032
Posted: Thursday, July 9, 2015 8:02 AM
Joined: 5/20/2014
Posts: 4408


Iris,

Ditto to everyone's comments to you! Consider this thread a petition to get you back to the board. I am seeing some positive changes lately for PWD speaking out more and not getting flack. We PWD want positive outlooks and viewpoints here on the board and so would like you to be part of that. I know you and how committed you have been to helping ALL on these boards and I have a feeling and a sense that you are behind some of the needed changes and helping in some way. Please come back soon!

Love,
Llee