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Joined: 7/26/2014
Posts: 2
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I have been reading for over a year since my diagnosis of EOAD at age 58. I searched around and found this site and had hope that I could learn and eventually share some insight. I found out that this site is no different than the rest of the world. Ask the wrong question to the wrong person at the wrong time and you will pay deeply. Post a question on the wrong page and be corrected and demeaned. I would hate to be mistaken for a caregiver and post this in the wrong area. Even in this "world" there appears to be cardinal sins. I have already said too much and have given the enforcers too much ammunition.
I am done here. I have learned that even in this condition we as people will not get along. I have learned that we will continue to be unable to understand other peoples position or concerns, or realize there are fears from both sides. We can hide behind the wall of illness and use that as an excuse, and people here will. Alzheimers is not however, constant intollerence.
No need get all worked up and respond. I left to look for help.l
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Joined: 11/30/2011
Posts: 4500
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I would be sad to see you go for
your reason. I hope you never need to feel that you are not control of your
actions but I can assure you it is very real. Some deal with it better and
others. That does not mean we should just ignore them and throw away the key.
They should still have place to come and participate. I do hope when you get to
that point someone will look over you. Don’t judge on what you do not know.
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Joined: 1/28/2013
Posts: 2659
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I wish you would give us a second chance. It sounds like we need you.
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Joined: 12/4/2011
Posts: 21317
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hello and goodbye and hopefully hello again...I do not think we cumulatively are very different from any other group or family for that matter. The past few days have been rough but it seems a lot needed to be said, was said and I believe many of us are now a great deal closer.
If you do leave I hope you will find what you are looking for
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Joined: 7/24/2015
Posts: 3020
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I agree...much need be say...and may look weird, but things be changing here for bett because this very hard convo go on late...things some us have work through, an glad we have space to do that.
But will say too, when I first came here...I left 2, 3 times too. It take while to figure culture here.
But may add, you may like the video online support groups for PWD, I find them lacking most sense that are here...and eas to take if you no like conflict:
http://www.dementiaallianceinternational.org/membership/
Best.
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Joined: 12/2/2015
Posts: 1018
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WhoKnows, you aren't far from being right, but where can you go to find a better group. Yes, you have to ignore the ones who are FOS or POSs, but there are lots of good folks here. If you want to get some answers and hear from some of your own, this is probably the best place to be, with all its warts and stuff. Give it a chance, but if you don't want to, then that's on you. Good luck, though.
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Joined: 12/15/2011
Posts: 18723
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WhoKnows, I am sorry that you will not have a chance to be supported by the wonderful members here. I have been here since 2009.
This is the best site on the entire internet for support for patients with dementia or cognitive impairment. If you have been lurking for a year, you have seen how we support each other. I hope you give us another chance.
Iris L.
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Joined: 9/12/2013
Posts: 3608
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Hello Goodbye
since this person is never coming back again, just want to say there probably is no place on earth where everything is super polite and all goes perfectly but hope she comes back to tell us when she found it.
the point of having a mess AND STICKING TOGETHER is to learn how to handle things better next time, and to gain confidence in people that they will stick with you.
she is evidently unaware of the friendships that form and extend outside the boards.
One woman friend I met through here is now tending her husband in late stages. She and I have comforted each other and share a similar spiritual path. She also found these boards to have too much conflict and had to leave to concentrate on his care. I will treasure her friendship, grace, love, compassion, advice until I die.
My vision is poor today plus my computer came up with an entirely different looking - whatever you call it. started different, all print tiny, all my saved links at bottom of page gone. don't know how to change it back and too worn out to try.
so love you all, even the feisty ones.
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Joined: 5/20/2014
Posts: 4408
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I am sorry you feel this way. Please consider giving us a second chance? Where would any of us be without second chances?
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Joined: 8/9/2013
Posts: 584
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I hope you will reconsider returning. This site is just a great place to learn, share, and be ourselves. I'm so sorry you were hurt and upset. Forgiveness comes so very hard when hurt but I hope you will be able to forgive over time and return because you will be surely missed.
We all depend on each other even when all we do is read the posts.
God bless, Paul
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