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This is from a letter I had shared with friend
Michael Ellenbogen
Posted: Friday, December 25, 2020 11:00 AM
Joined: 11/30/2011
Posts: 4322

This is from a letter I had shared with friend.


As you know I had planned to stop much of my advocacy about 8 months ago. I did this because I was no longer able to keep the facts straight in my mind that once came to me very easily. At that time, I was also dealing with selling my boat and building a new house. All that was creating a lot of stress. I don’t handle that well any more.


I slowly started to exit all of my committees and went from a very busy schedule of 7 days a week to almost nothing to do. I shut down my Facebook because I no longer understood much of what I was reading and I did not want to share bad information with others. I had always prided myself to insure I gave top notch information and weeded out all of the daily junk that was on the internet. I also shut down my website as it had not been updated for about two years;  I like to have things current and could no longer do it. Most recently I stopped using twitter for political reasons.


You would think with all I did I would have been less stressed but I was not. I would be at my computer all day for many months with nothing to do. I could no longer create my own schedule or work to drive my dementia agenda. While I was still connected to only 2 groups, I felt that this was the best thing for me at that time. Again, much of this is because I was questioning the accuracy I could provide to others. But I was not happy in my new role and became even more frustrated. I listened to others doing advocacy and I found that no matter how bad I was I was still better than many out there.


I continued to struggle on what I should do because I always believed if you cannot do it right do not do it at all. But I also realized the little I could bring was better then what many were doing. Then one day I received an email to join a committee again for a great think tank. I had the opportunity to bring change at the highest level and could not turn it down. So, I accepted this role knowing I could not be the person I once was. This allowed me to play a role in making it better for future generations and those impacted by dementia. This was a very hard decision for me to make and accept.  


Since accepting that new position a few months ago, many great opportunities came my way again to join some of the best committees in the world. These all will have lasting impact. So, I have learned to accept that I do not need to know all the statistics I used to know and to just share what I can remember and point others to do the research that I once knew existed.


It’s easy to give up but that was not the right decision. If I would have continued down that path, I would not only have declined so much faster but others would have lost out for the little I could still share. I have been so fortunate to surround myself with the best minds in the world and they have been so great to me and came to me when I was in need to get me back on the horse to continue my work.


For that I am so grateful and the big man up there has bigger plans for me.  I am such a lucky person to know you.  


Posted: Friday, December 25, 2020 2:50 PM
Joined: 12/4/2011
Posts: 20905

brilliant decision........
Posted: Friday, December 25, 2020 2:55 PM
Joined: 2/16/2017
Posts: 1709

Way to Go Michael,    You know what they say!      You cant keep a good many down. And you are a good man.   Merry Christmas to you and your wife. Hugs Zetta
Iris L.
Posted: Friday, December 25, 2020 8:16 PM
Joined: 12/15/2011
Posts: 18046

Michael, you are in a position that people around you value you so much for whatever contribution you can make. They accept that you won't have statistics right at your fingertips.  It sounds great for both sides!