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Just diagnosed at 47 yrs old
Posted: Tuesday, May 24, 2022 2:07 PM
Joined: 6/9/2021
Posts: 1

 Desperately seeking clarity in this ocean of information to know what I need to do to safeguard my family. It's been a couple of months and I'm waiting for my next appointment to another neurologist at WF. I have been able to tell most of my family as the reality is sinking in. I have been a part of this site for several years as I initially joined due being a caregiver for my father who had early onset FTD. Now its due to my diagnosis. It is utterly surreal. 


Iris L.
Posted: Tuesday, May 24, 2022 2:31 PM
Joined: 12/15/2011
Posts: 18045

Welcome mtngirl, and hang on!  You probably already know that there are many dementia mimics.  Even being a caregiver can affect your cognition.  Are you still caregiving?  Are you getting respite?  The journey is indeed long.  I hope you will get some clear answers at your next appointment.

Iris L.

Posted: Tuesday, June 28, 2022 3:35 AM
Joined: 6/28/2022
Posts: 1

Hi mtngirl92. How did it go with your neurologist's appointment? I hope everything is okay.