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husband diagnosed at 59, siymptoms began at 57 he is now 60
coleenwright70
Posted: Friday, June 27, 2014 11:56 AM
Joined: 5/3/2014
Posts: 1


My ex-husband, who turned 56 today, has just been diagnosed. He is about 4 years into this early onset ALZ and at a moderate level. They just said he can't drive anymore, how do you go about surrendering a NC DL? I guess I start with his insurance company? I have medical and full POA since I am really the only family he has here in the states, other than our two daughters that are both away at college (home and living with him for the summer) and to keep them in college I have promised to "handle" this....I am remarried with two other children and a very fulltime job and now feel like I am living two lives. anyone else? anyone in the charlotte area with early onset. I would love to get him meeting others like him. He thinks he is the only young person with this....
Myriam
Posted: Saturday, June 28, 2014 12:17 AM
Joined: 12/6/2011
Posts: 3326


Here is the website for the chapter of the Alzheimer's Association in your area. Please contact them for help and resources to help your ex-husband.  


http://www.alz.org/northcarolina/ 


EMMC
Posted: Friday, October 17, 2014 10:33 PM
Joined: 10/15/2014
Posts: 2


My husband had been having some problems processing things.He knew what he was supposed to do,just couldn't figure out how.This would be really bad and next day he would be better.This was off and on for 2 years before I could get him to go to doctor.He finally went.He is in stage 4.Has been very emotional since diagnosis.Stress causes it to be worse.His Dad is in stage 6-7.
Myriam
Posted: Friday, October 17, 2014 10:46 PM
Joined: 12/6/2011
Posts: 3326


EMMC, I'm so sorry for what you and your husband are going through. Have you contacted the Alzheimer's Association nearest to where you live? They may be very helpful to you and your husband. Here is the website where you can find your chapter: 

 

http://www.alz.org/apps/findus.asp?SearchState=IA&SearchByState=Search&FormSent=1#SearchStart


EMMC
Posted: Friday, October 17, 2014 11:07 PM
Joined: 10/15/2014
Posts: 2


I have not,but I will.Thank-you.

 


Iris L.
Posted: Saturday, October 18, 2014 2:39 AM
Joined: 12/15/2011
Posts: 18502


Can he join us on this board?  It is very important that he begins Best Practices.  Is he on medication? 

 

Iris L. 


Amy R
Posted: Thursday, December 11, 2014 3:24 PM
Joined: 12/11/2014
Posts: 34


My husband is 51 and I'm 42. We have been married 22 years. He was diagnosed with Dementia last year but has had symptoms for several years, not so noticable at first. He is still in the beginning stages. He isn't allowed to drive so he feels lonely stuck at home. We have a small child school age and I work full time. He does chores around the house and yard work and goes everywhere with my son and I. He takes Namenda and Donepezil and they help some, but he gets a little worse each year. He tends to say things that don't quite make sense at times and is forgetful. The dementia has really messed with his cognitive function, he was always very intelligent. Every day is a challenge. I recommend anyone in this situation get an attorney which we did and processed our estate/wills and power of attorney for each of us. That has provided me with relief to know my family will be able to care for my young son if I am not around if my son is still a minor. I just try to live life as if everything is normal. We still  have a life to live for our son. My husband enjoys staying involved with my son's extra curricular activites. The hardest part is my husband's mood swings. He gets angry easily at times. Trying to deal with that the best I can.
Paul Hornback
Posted: Friday, December 12, 2014 8:46 AM
Joined: 8/9/2013
Posts: 584


Amy R, sorry to hear about your husbands condition. It sounds like you are doing the right things for your family. There are many on this particular board who are in the same shape as your husband.

 

Would your husband be interested in joining this message board and gaining support for his condition? I've found it to be a great place for encouragement, information, and mental stimulation.

 

 God bless, Paul


hoopsky
Posted: Tuesday, July 19, 2016 2:17 PM
Joined: 7/19/2016
Posts: 2


I am at my wits end and don't know what to do.  My husband has a technical diagnosis of "cognitive impairment disorder."  The aging neurologist specialist he is seeing has recommended he not be in charge of any financial decisions and that I do all the major problem solving since that is an area he struggles with.  He is 59 but started showing symptoms at 56 and had his first round of cognitive tests at age 57 when he went catatonic.  In addition, I have just had to have my 80 year mother move in with us due to health and financial issues.  I also have a 30 year severely bipolar son who is uncooperative and refuses treatment of any kind.  He has been hospitalized in the county psychiatric hospital close to a dozen times in the past 5 years.  I know I need help but I don't know what kind and who to turn to.  None of the three people I'm taking care of need continuous care and can fend for themselves doing daily routines.  So getting in home care if premature at this moment but I know it could be something I need in the future.  I'm living in a hell because of my son, trying to protect my husband and mother.  In addition, I have fibromyalgia so I'm doing this while in constant pain.  Any ideas anyone?
jfkoc
Posted: Tuesday, July 19, 2016 3:07 PM
Joined: 12/4/2011
Posts: 21237


Hi hoopsky....these forums are like lifelines. I read almost all of them but found the most useful ones the caregivers and spouses since that was what I was.

I hope you will post an introduction there so we can all get to know you.


TheSteven
Posted: Wednesday, July 20, 2016 7:13 AM
Joined: 10/11/2014
Posts: 167


Hi hoopsy,

Do you, your husband or son have any mercury dental fillings? After I had mine removed and started detoxification my memory and aphasia improved so that they downgraded my diagnosis from Younger Onset Alzheimer's to Mild Cognitive Impairment. I now spend some of my time driving to the senior center and shooting pool and talk to other senior players (who shoot better than me so they can teach me). I posted these links before. See http://amalgam.org/education/scientific-evidenceresearch/results-removal-amalgam-fillings/ or

http://www.fda.gov/ohrms/dockets/dailys/02/Sep02/091602/80027dde.pdf


You will notice that fibromyalgia and alzheimer's is on the list and your son's bipolar tendancies may be due to mercury as well. I have more links to this type of information and videos about this in my July 4, 2015 blog entry at http://thestevenalztreatment.blogspot.com


DarleneCrank2016
Posted: Monday, August 29, 2016 12:43 PM
Joined: 8/29/2016
Posts: 2


I am so sorry to hear you story.  Mine is simular in the fact it has taken them almost 2 years to make a diagnosis - which was today.  

Now I need to apply for SSDI.  Some people say get a lawyer others say do it yourself.  I also need to look towards the future.  

 


llee08032
Posted: Tuesday, August 30, 2016 7:19 AM
Joined: 5/20/2014
Posts: 4408


Welcome to the board Darlene. I am sorry to hear about your diagnosis. Please feel free to start your own topic or jump in on one of the more current threads. There are several threads on how to go about applying for SSD.
DarleneCrank2016
Posted: Thursday, October 20, 2016 2:03 PM
Joined: 8/29/2016
Posts: 2


I know exactly what you mean.  I am in the same position.  My husband was recently diagnosed with early onset and I feel like my life is falling apart.  We started going to doctors  almost 3 years go  but they refused to  believe it.  Finally they sent us to a have a Neuro Phsy test and then they believed it.
Heidimsack
Posted: Monday, June 11, 2018 2:07 PM
Joined: 6/11/2018
Posts: 2


My mother was diagnosed with EO Alzheimers last year.  She is 57 as well. My sister and I noticed 5-6 years ago that something was wrong with her.  She started having major OCD problems. Excessive cleaning and very obsessive with every aspect of cleanliness.  She would be very forgetful with what our conversations were an hour before, and then it just got to were she would repeat the same conversations over again.  We finally brought it up to our father, that she needs to go to the doctor, but he was in denial about it for a while, and we really didn't get her diagnosed until last year.  The doctor diagnosed her and put her on medication.  We have been noticing more and more decline, and it seems to get worse when she is in a stressful environment, or if she gets overly tired. 

My mother was my best friend.  I feel like I have lost her and now, I am the mother figure.  Its to hard to go through, because I just want to have my mother back.  I see my father depressed and seems hopeless most days.  I don't know what to do.  Being a Christian, I pray and pray that my father would get some sort of relief, but he isn't finding it. 

Lately, she seems to get really angry and upset with my father, which in turn makes him worse. She wakes him up in the middle of the night He owns his own business and I worry that it is going to be a problem financially because he isn't present and is tired all the time.  I work as his office assistant and am worried about him constantly. 

I don't know what to do.  I feel lost and sad because I don't know how to fix it. 


eaglemom
Posted: Monday, June 11, 2018 11:09 PM
Joined: 3/7/2012
Posts: 2774


I need to point out that this thread is very old. I'm uncertain as to how its been started again. Having said that if you, Heidimsack will start a new thread I'm certain you will get more results.

I don't believe I've welcomed you to the message boards Heidimsack. I'm glad you've found us, and sad that you have to be here. Please look over the entire website for information. You will find we are all here to help one another on this journey no one wants to be taking.

Again welcome.

eagle


Rei
Posted: Tuesday, June 12, 2018 11:06 PM
Joined: 5/12/2018
Posts: 2


My wife is 55 was diagnosed with ALZ in December. She taught school for 17 years had to quit and we were able to get her on Disability.  What a blessing that has been, took us a couple years to finally get a diagnoses. I am 56 and working full time the last 2 years has been the hardest time of our marriage have been married 34 years. It's so hard to see her decline we have a lot of support from friends and family and I attend caregiver glasses every other week. Just curious how all of you make time to take care of yourself with all the stress and worry about your spouse. I have learned to take one day at a time. Any thoughts would be great . REI
Sasa
Posted: Saturday, June 23, 2018 6:58 PM
Joined: 9/4/2016
Posts: 3


One day at a time is good advice.

My husband is 59 and began showing symptoms in 2016.  PET scan in December determined Alzheimer's.  He has hallucinations, sees little people, every single day and gets very agitated.  Very stressful for both of us.  No medication has alleviated the hallucinations yet.  

I try to take each moment at a time and take many deep breaths.

He needs assistance with turning the shower on, and assistance at times putting his clothes on.  He used to be handy around the house but his perception is way off and can no longer mow the lawn, use a hammer, drive, write, or make coffee.    

I put my headphones on and listen to music to ease the stressful times.  We also go for walks multiple times a week.


eaglemom
Posted: Sunday, June 24, 2018 9:25 AM
Joined: 3/7/2012
Posts: 2774


Rei if you could start a new posting that would be better. This is one that is quite old and somehow it's at the top of the page. I feel you'll get more support upon starting a new thread.

eagle


alz+
Posted: Monday, June 25, 2018 10:19 AM
Joined: 9/12/2013
Posts: 3608


grammalori wrote:
Hello ,My husband was diginossesd  in 2004 he he was also 57 ,But had heart attack and bypass surgery ! Came out of hospital and has never been the same ! are stories r similar,, My husband now stage 7 hospice ,,, ! I am in Calif !
*****
you might try liquid sublingual B12 complex. The "after surgery never the same" is often because B12 is depleted from anesthetic reaction. the worst that can happen with the drops is no improvement. I am stunned how few medical people seem to know this.
I just read again that your husband is stage 7 in hospice. I did not see that at first. Still, try it if you want. I have also seen video of people frozen in wheel chairs and unable to speak take cbd oil and within an hour speak and walk.



alz+
Posted: Monday, June 25, 2018 10:33 AM
Joined: 9/12/2013
Posts: 3608


Paul! I think of you all the time, miss your calm centered take on things, sending much love!

also want to say how wonderful it is to see this board welcoming new friends to the group.

Someone asked about a book referral,  one that helped me was The Myth of Alzheimer's because the doctor who wrote it knew much of the treatment for alz is from love and acceptance, rejecting the "Stages" model and knowing we do not become empty vessels when we do not carry on conversations like the old days.

The regular medications for alz did not help me, I had to find my own way and I am glad I had these boards as I ventured forth.

Please share what works with you or your loved one. This is how we are creating a better framework on how to deal with ALZ.

love and courage


Mafi
Posted: Tuesday, June 26, 2018 10:47 PM
Joined: 6/26/2018
Posts: 2


Coleen,

I am interested in knowing how you handled this. My husband and I have been separated for several months, we were going to divorce and now he is undergoing some tests, but from the symptoms it is pretty clear to me that he has either AD or some kind of dementia. He also has no family members (here or anywhere really), except me and our three children who are away in college. I will always support him and even bring him to the state where I am living now to have him live close-by, but IDK how to approach the whole situation, since our marriage ended years ago, but I cannot help but feeling that I am "leaving" him due to the illness.