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Posted: Saturday, January 9, 2016 3:14 PM
Joined: 12/2/2015
Posts: 1018

For quite some time now, I've had trouble losing my way while talking and having trouble getting back on whatever I was talking about. I've also had trouble coming up with the right word, even though I could feel it in my mind. So neither of those problems are new. But I seem to have developed a new speech problem over the past few weeks. Sometimes when I'm talking, I just start having trouble with the actual talking part. Sometimes it feels like my jaw is not working right, which is interfering with talking. Hard to say, but it is like my mouth goes a little crazy making it hard to talk. Anyone else have this? Just wondering. Believe it or not, I find this problem to be a tad more scary than losing my train of thought or not finding the right word, or forgetting stuff. It is like I'm losing control of myself, and I don't like the feeling when it happens.

Oh, thanks for the Happy Birthdays from you guys. My wife and I are going out to dinner tonight, and then to listen to some music. One of the guys I play with sometimes is playing at a nice spot tonight, so we are going to drop by to listen for awhile. Should be enjoyable. Hope everyone has a nice Saturday night.

Posted: Saturday, January 9, 2016 3:34 PM
Joined: 12/4/2011
Posts: 21246

Happy Birthday!!!
Posted: Saturday, January 9, 2016 6:20 PM
Joined: 7/24/2015
Posts: 3020

Yes...yes I do.  I have trouble moving my mouth right to talk and eat, and trouble swallowing.  Indeed, I often inhale food and spit.  Water is the worst.  It started early on for me.  I found I got used to it and so it did not pose much of a problem.  It is becoming worse again now in stage 6. As is walking getting weirder and harder to do.
Iris L.
Posted: Saturday, January 9, 2016 7:38 PM
Joined: 12/15/2011
Posts: 18514

I had something like that, but I had Sjogen's Syndrome, which causes dry mouth and inflammed salivary glands.  My mouth felt funny all the time, for a long while, when I first was so symptomatic with systemic lupus.  Now, it is not so much of a bother.  My mouth still gets dry, however, but my mouth doesn't feel funny.

I hope you enjoy your night out for your birthday celebration.

Iris L.

Posted: Saturday, January 9, 2016 8:18 PM
Joined: 12/2/2015
Posts: 1018

Yes, I had a nice birthday evening. We had dinner in a local bar that we enjoy, then went to music at another place. While there, a woman my wife knew from decades ago from another town came in with her D|IL. We had a nice chat, or my wife had a nice chat to be true. I kept my mouth shut for fear of looking a fool.

Anyway, I don't have a dry mouth, but alz+ seems to have had what I'm having. It is good to know that it might not end up bad.

I hope all have a good night.

Mimi S.
Posted: Sunday, January 10, 2016 8:32 AM
Joined: 11/29/2011
Posts: 7027

Bill, See if you can find a speech therapist in your area who is experienced with dementia. Perhaps a call to your local Alz. office would help.

Some have found participating in a speech support group for victims of stroke helpful.

Glad you had a good birthday.

If you have something to add to a conversation, please feel free to do so.  And if you experience trouble with words just say: d--- my AD.  Could lead to educating others about what Early Stage looks like.
Posted: Sunday, January 10, 2016 11:30 AM
Joined: 2/9/2015
Posts: 547

Hi Bill, I agree with Mimi that a speech therapist may be able to help -- I know it's different (or maybe not) but I used one while recovering from a head injury for similar issues. They are the therapist who deal with swallowing and other mouth-y mechanical issues.

In addition to the exercises recommended by the therapist, other things that helped me with mechanics -- reading a loud, seems to get different mental paths going as opposed to conversing and ... kareoke.

Posted: Sunday, January 10, 2016 1:19 PM
Joined: 12/2/2015
Posts: 1018

Thanks for the help. It isn't a huge problem yet, but it is getting worse at a higher rate over the past few weeks, don't know why.
Posted: Monday, January 11, 2016 8:51 AM
Joined: 1/2/2016
Posts: 4

Hi, Happy New Year!

I've been rather quiet over the holidays, so it's high time I get to know you all a little better.

I've always been a very articulate person, going back when I was very young.  My mother was an English major, and both of my parents where voracious readers, my brother too.  We also always loved music of all kinds, and I was in the school chorus for several years.  I was first alto.

These days, I am having lots of issues with my speech.  One of the things I have always done is talk to myself, out loud.  This is one of the ways that I process my thoughts and feelings; I've talked aloud to myself since I was a child.

I'm noticing that, even talking to myself, I am mixing up words, or completely forgetting - very quickly - what I wanted to say.  I do this with others around me too.  It's frustrating and kind of scary.

But I think that an old friend of mine may be helpful.  She is a speech language pathologist, with many years of experience, including the fact that she has family with dementia - she is very knowledgeable about this, not to mention the speech part!  I will get in touch with her.


Posted: Monday, January 11, 2016 8:54 AM
Joined: 1/2/2016
Posts: 4

Happy Birthday, Bill!
Iris L.
Posted: Monday, January 11, 2016 12:45 PM
Joined: 12/15/2011
Posts: 18514

My speech and language skills vastly improved after I began Exelon patch six and a half years ago.  

Although I have occasional trouble with finding the correct word, my speech is not bad enough for others to comment, as it was before.

Iris L.

Posted: Monday, January 11, 2016 3:47 PM
Joined: 10/11/2014
Posts: 167

Hi BillBRNC.

My speech speed returned back to near normal after I had my mercury dental amalgams removed.  The trouble coming up with the right word is what was causing my slowdown.  I was also reading some of your earlier posts about anger while driving and that could also be caused by mercury.  Have you checked your mouth to see if you have any dark dental fillings as opposed to the white ones?   They are known to cause dementia and memory symptoms as well as anger and dozens of other diseases and issues. and If you have them you may want to visit my blog entry on July 4, 2015 at and look at the other links and books.

Posted: Monday, January 11, 2016 9:39 PM
Joined: 5/20/2014
Posts: 4408

Good to see you back Speedykat!


Posted: Tuesday, January 12, 2016 1:56 PM
Joined: 9/12/2013
Posts: 3608

Bill - I came to realize people have about a 3 second (tops) pause allowance for carrying on conversations. should I ever have a chance to speak to someone they almost peel away instead of waiting for me to finish.

and not even long winded like my posts, but they just sort of look over my shoulder and move away. My breath? ha!

Lots of stuff comes and goes, I now have a habit of when some new problem comes up to just wait and see if it clears up when I am in better circumstance.

Used to be when people did not talk much they were assumed to be WISE. Play what ever card you have and see if speech comes back.

Yes SUN and others on choking, mixing up swallowing and inhaling, have had times I was hanging over bathroom sink to do a useless imitation of Heimlich's maneuver while thinking "Gee, I worried about a nursing home and now I'm choking to death." Then didn't.

so here I am. here we all are.

Posted: Friday, May 14, 2021 8:16 AM
Joined: 5/7/2021
Posts: 8

Hello, thank you for sharing your story. I was just told I am in the early stages but I do not yet know what type of dementia I have. I am not sure how this message board works, is there remote meeting that I can attend?
Iris L.
Posted: Friday, May 14, 2021 10:34 AM
Joined: 12/15/2011
Posts: 18514

Welcome, Linda.  I'm glad you found this board.  You've landed on a five year old thread, but you can feel free to begin your own thread by clicking on "Add Topic" on the main Younger Onset board.  

There is not a remote meeting, we communicate via messages.  If you post a question or concern, other members will respond to you.  Your local Alzheimer's Association may have virtual meetings.  


Please post again and tell us more about yourself.  

Iris L.

Posted: Sunday, May 16, 2021 12:43 PM
Joined: 5/7/2021
Posts: 8

Hello, it’s been almost three weeks since I was told I have “mild” dementia. Which means early dementia. I am two months away from 57. I am scared. I have family but don’t want to stress them more then they are about how I am feeling. I am still working and worried I am going to mess up something that will not be fixable. There is just so much going on in my head. I spent 38 years working as an educator. Running 13 early childhood education centers and now sometimes it’s hard to find works. I don’t find out what type till mid June. Thank you for listening.
Iris L.
Posted: Sunday, May 16, 2021 6:31 PM
Joined: 12/15/2011
Posts: 18514

Linda, when I was told I had dementia years ago, I fell into a deep depression.  But that was the impetus for me to take charge.  I learned what I could do for myself from the other members.  As it turns out, I don't have Alzheimer's Disease, based on further testing by my neurologist, who is a dementia specialist.  My diagnosis remains cognitive impairment not otherwise specified. 

Despite the fact that there is no cure yet for Alzheimer's Disease, there is much that can be done to ease the journey.  The main point is thst every person's journey is DIFFERENT.  You will have to figure out what works for you and your family, and do that.

June is a long time to wait.  In the meantime you can learn work acommodations.  I will post a website.