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info on recurrent UTIs in older women with ALZ
alz+
Posted: Monday, November 20, 2017 12:53 PM
Joined: 9/12/2013
Posts: 3608


Last night I woke up at midnight with extremely  painful bloody urine.

again. having a UTI when you have ALZ is like pouring gas on a fire mentally and emotionally aside from the pain.

So went to local hospital clinic and saw a nurse practitioner who knew a lot about post menopausal women who have recurrent UTIs.

She gave me an exam - have not had pelvic exam in 20 years. 

This is what I learned:

if a woman is having recurrent UTIs and not having intercourse regularly her urethra gets lax and germs can get to the bladder.

These are NOT from me not being careful enough or not clean enough. The treatment (which may or may not work) is to use estrogen cream for 30 days. In that amount of time the tissues will have woken up again and after a few months of once a week use there should be no more UTIs.

Estrace is the cream NOT made from pregnant mares urine.

So she said to hang on for a month and we'll see if we can end this cycle.

****

Estrogen cream cost $700 a tube! A tube will last a month and then, if it is working, it is used once a week so will last 4 months. wow.

****

what I learned:

Not all UTIs represent as pain on urination in post menopausal women with ALZ. Sometimes it is itching, chills, and commonly as emotionally fragile state which can become rage.

If you have a sudden change in mood, esp mood control, it is worth it to see a doctor. I have urine test strips which can tell if you have blood or high WBC counts in urine (too confusing to do myself anymore).

hope this helps someone.





lisabramey
Posted: Monday, November 20, 2017 1:29 PM
Joined: 3/20/2015
Posts: 96


Dear Alz+,

I'm glad you were able to see such a knowledgeable N.P.. Thank you for the useful information. I hope you begin to feel better soon.

LISA


jfkoc
Posted: Tuesday, November 21, 2017 9:23 AM
Joined: 12/4/2011
Posts: 21237


On the care boards we always say to get a UTI test with culture asap for any rapid change in behavior. There are silent UTI's....no pain, no blood, no frequency. The culture will make certain that the correct med is given.

As an aside, there are at least 20 causes for painful, frequent urination with bleeding.

Thank you for sharing the info re the cream. It will certainly be shared.

Please look into high frequency/violet light for your shingles. My friends case was stopped dead by this treatment.


alz+
Posted: Wednesday, November 22, 2017 11:08 AM
Joined: 9/12/2013
Posts: 3608


I seem to be lost trying to post this morning. Also  found a site from UK on UTIs and people who can not tolerate antibiotics use Olive Leaf Extract capsules for a few months and that seems to help prevent further outbreaks AND is effective against shingles that come back all the time.

How do you know if it worked? No idea.

will look up ultra violet treatment for shingles!

Hope everyone can ave a holiday that suits you - 

The ski hill I  live on is opening Friday.

I am thankful still for a lot of things, mostly that I am not wetting my pants today. very low expectations make me happier.

where I live:

Image may contain: sky, cloud, outdoor and nature

 


alz+
Posted: Thursday, November 23, 2017 11:50 AM
Joined: 9/12/2013
Posts: 3608


I had fallen asleep and woke up remembering !!! to use the estrogen cream. So I turned on the light and applied it and was so tired I just konked out again.

Did not clean my fingers, put hands on pillowcase, ended up with residue in both eyes.

Too tired to get a wash cloth I just went back to sleep. Woke up - no eye damage.

Just another experience in trying to stay upright.


alz+
Posted: Friday, November 24, 2017 7:48 AM
Joined: 9/12/2013
Posts: 3608


Saturday when the shingles came out I was brokenhearted and distraught. Monday, when the UTi came, I wanted to die.

now:

The shingles are drying up and the UTI is being fought off and I am using the estrogen cream.

Last night I realized my mood was different. When I used the estrogen cream the insides of my vagina were already a different texture and there was no more raw sense. In 4 days?

when I woke up this morning my mood is still more calm - different that before the infections. Different because I was too low on estrogen hormones?

What if the high anxiety in women with ALZ is from very low estrogen levels? Has anyone had their hormone levels checked?

I have the bone weakness and other signs of low estrogen but I never knew it was related to mood. 

so maybe a treatment for anxiety might include hormones?


Unforgiven
Posted: Friday, November 24, 2017 12:50 PM
Joined: 1/28/2013
Posts: 2659


I am totally behind you on ERT, Alz.  My own mother was on ERT until hef early 80s, following a radical hysterectomy for cervical cancer in her eraly 30s.  Thanks to the conclusions of the Womens zHealth Initiative study of the effect on ERT on heart disease and dementia, ERT is now restricted to use only at menopause for as short a time as possible.  Among the many doctors I have seen during my mother's care, the urologists and the orthopedics specialists refer to the day the study results were announced as D Day.  Thrir jobs suddenly got a lot harder.  Gynecologists are now as unwilling to prescribe HRT as  other doctors are to prescribe pain meds.

I personally think that patients should be treated on a case by case basis and with informed consent go the risks and benefits.  Would a woman prefer the slightly extra risk of breast cancer and vascular issues from clotting to the risk of osteopororis and a broken hip and degenerating spine later on?  Tough choice, but it depends on the individual and their reaction to hormones.

I have lived through so many successive waves of medical advice, some of which turned out to be incorrect, that I'm a skeptic now.  I wish we hadn't let the medical industry become the boss of us.

Men need a decent form of HRT too, since testosterone declines with age and low level can cause the same or different issues.  Fragile bones, depression, etc.


alz+
Posted: Friday, November 24, 2017 3:53 PM
Joined: 9/12/2013
Posts: 3608


Unforgiven!

interesting info - I also had a hysterectomy 40 years ago, they said they left my ovaries but I was never sure. 

One thing was the premarin - it was toxic to me and I would not take it because it is made from pregnant mares' urine, they are tortured and I believe their is a toxic chemistry to stuff taken from traumatized animals.

Once we have dementia we ought to be able to have it IF it is as big a help as it appears to me.

The men also are warned off testosterone because of side effects but some men can't produce it and suffer without it.

I would love a heart attack before dragging on for ages incapacitated. Hey, look for the bright spots!