Desperately seeking clarity in this ocean of information to know what I need to do to safeguard my family. It's been a couple of months and I'm waiting for my next appointment to another neurologist at WF. I have been able to tell most of my family as the reality is sinking in. I have been a part of this site for several years as I initially joined due being a caregiver for my father who had early onset FTD. Now its due to my diagnosis. It is utterly surreal. 

Welcome mtngirl, and hang on!  You probably already know that there are many dementia mimics.  Even being a caregiver can affect your cognition.  Are you still caregiving?  Are you getting respite?  The journey is indeed long.  I hope you will get some clear answers at your next appointment.

Iris L.

Hi mtngirl92. How did it go with your neurologist's appointment? I hope everything is okay.