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Met with Neuropsychiatrist
KawKaw
Posted: Friday, August 21, 2020 7:15 PM
Joined: 11/22/2019
Posts: 335


It went well.

He wants to treat my MCI aggressively.  I am in support of that.

He also suggested I see an endocrinologist to consider treating my borderline low thyroid function.  My PCP will not provide treatment since it sometimes is within the minimal parameters.

The neuropsychiatrist told me that since thyroid function can dramatically affect cognition, it is best to consult with a specialist.

I will be starting a memory med patch-- Iris L mentioned that she is on that medication--tomorrow when I pick up my new meds.  I'll post when I can read the name.  Rolling my eyes at myself and my weird memory.  : D

I am encouraged.  This doctor seems more open to listening to me than my now-former neurologist and helping me improve or maintain quality of life.

My sister accompanied me so that she could ask any questions that occurred to her and to help me remember exactly what was decided, in case I forget.

He remembered us from when we brought our mother to him for treatment.  I was impressed with how he was very kind to her, was willing to wait for her to answer his questions, and how his treatment improved her quality of life.


Iris L.
Posted: Saturday, August 22, 2020 1:35 AM
Joined: 12/15/2011
Posts: 16653


Good for you, KawKaw.  Not everyone agrees to treat MCI with memory medication, but if all other treatments have been tried and there has been no improvement or response, a trial of memory medications should be tried, IMO.  That's what my neurologist offered me after a trial of antidepressant medications didn't work.  I was already on thyroid medication.  I noticed improvement in speech and memory in a few days.  


IMO, all possible treatment modalities should be tried, if not contraindicated.  It's great that your sister is involved.  Let us know how you respond, and what the endocrinologist says, KawKaw.  


Iris

 


jfkoc
Posted: Saturday, August 22, 2020 10:51 AM
Joined: 12/4/2011
Posts: 19116


yes, please keep us updated

 


Iris L.
Posted: Saturday, August 22, 2020 10:35 PM
Joined: 12/15/2011
Posts: 16653


KawKaw, I didn't mention earlier that using medications is only one part of Best Practices.  I was introduced to Best Practices not as a cure, but as tools to improve my functioning and to prolong the early stages.  I developed a plan for myself using Best Practices.  I hope you can do the same.    


Iris


KawKaw
Posted: Tuesday, August 25, 2020 3:19 PM
Joined: 11/22/2019
Posts: 335


I am not precisely sure I know what Best Practices are.

Would you elaborate, please?

Many thanks in advance.


Iris L.
Posted: Tuesday, August 25, 2020 4:23 PM
Joined: 12/15/2011
Posts: 16653


I was introduced to Best Practices by Mimi S, one of our emeritus members and a Peer Volunteer.  Best Practices are lifestyle habits that have the potential to improve functioning and to prolong the early stages.  These habits include:

--taking medications as prescribed

---eating the Mediterranean Diet, including fruits and vegetables for antioxidants, fish and some nuts for omega-3 fats;  limit saturated fats and excessive sugars

---exercising vigorously to tolerance

---continuing to stimulate our brains by learning new things

---continuing to engage socially.

 

We also get good restful sleep, avoid or minimize stress and consider alternative or complementary treatments if interested.  


These are not commandments, but tools that might help us live better with dementia.  Note: none of these habits is meant to be a cure for dementia.  I have been helped by all of these habits and practices.


Iris


KawKaw
Posted: Thursday, August 27, 2020 11:38 AM
Joined: 11/22/2019
Posts: 335


Those are excellent practices for a good life.  Thank you, Iris.  I appreciate the expansion on the concept.

I enjoy vigorous exercise.

My new neurologist also suggested I learn something new, such as a language or perhaps a musical instrument.

I recently took possession of my great-grandfather's violin after my mother died.  I used it when I first learned to play it in grade school.

I got it into shape to play it earlier this summer, so I am considering not waiting until we move in a couple months to start relearning.

I am feeling overwhelmed with the approaching move.  But if I wait for life to be less hectic, I might never begin.


Iris L.
Posted: Thursday, August 27, 2020 12:38 PM
Joined: 12/15/2011
Posts: 16653


KawKaw, it will be great for you to pick up your violin-playing again!  Even after all these years!  I started back relearning French, which I had studied extensively in my school years.  I do feel like it keeps my mind active.  Unfortinately, I never learned to play a musical instrument, other than the flutafone in elementary school.  I think it would be too hard for me to learn now.  


Iris


SF Unforgettables
Posted: Friday, August 28, 2020 12:52 PM
Joined: 3/6/2020
Posts: 8


Dear KawKaw,

We are glad to hear the good news.  Seems like you've got a great attitude.  It's important to build a good care team that you can trust.  We wish you the best.

Sincerely,

The Unforgettables

Early Stage Support Group in San Francisco


KawKaw
Posted: Friday, September 4, 2020 4:13 PM
Joined: 11/22/2019
Posts: 335


Had a follow-up appointment with the neuropsychiatrists's nurse practitioner.

I seem to be tolerating the Exelon patch so will be going up to 9.5 mgs per patch.

It isn't causing nausea, but I think it is causing some intestinal changes.  I hope those go away before too long.

I had a weird experience where I lost about 5 minutes during a regular walk I take in the morning.  I was one place and then suddenly, I opened my eyes up and was 5 minutes further down the path.

That was a surprise!

After an hour or so of thinking, I was able to remember to a text exchange with my spouse, so I got some of those minutes back.

I think part of the issue was that it was a very familiar path and I may have started thinking about doing things other than walking my dog and blanked out the super familiar part.

However, it is not common for me to lose time like that, nor for thinking about something else make me forget entirely what I did while thinking.

 

 


Iris L.
Posted: Friday, September 4, 2020 5:05 PM
Joined: 12/15/2011
Posts: 16653


I have done that.  Often.  I make it a point to try to stay in the moment.  Otherwise, too much gets away from me.  


Have you noticed any improvements in your cognition on Exelon patch?  I noticed improvement within a few days.  


Iris


KawKaw
Posted: Friday, September 4, 2020 8:42 PM
Joined: 11/22/2019
Posts: 335


It is subjective, but I THINK I feel a bit sharper, less cotton wrapped around my brain.

What a relief!  I have so much to do with moving, I really value having some brain power and endurance to deal with it.

I hope you are well, Iris L.  Take gentle care.


abc123
Posted: Monday, September 7, 2020 10:48 PM
Joined: 6/12/2016
Posts: 1211


Dear KawKaw. Thank you for sharing your appointment outcomes with us! I hope you do very well with the patch. Please continue to take good care of yourself and keep us in the loop. Wishing you the best of the best.