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Why are prospective NH so worried about psychiatric history?
LDDaughter
Posted: Tuesday, September 11, 2012 9:00 PM
Joined: 12/22/2011
Posts: 1047


Feeling a bit frustrated here and thought I would put the question out to y'all.

 

Why are NH so preoccupied about psychiatric history when looking at an admission?  I know some are more than others, but I'd really like to know. It doesn't completely make sense to me because if your loved one has dementia or Alz and any issues they have can be attributed to that, the NH seem to be able to tolerate it better.  Why?  It really feels discriminatory to me. Alz and dementia can produce some very severe symptoms, but why the preoccupation with mental illness?

 

Here's a question I was asked today - Has your mother ever had suicide ideation?  The answer is  NO, she has never wanted to kill herself.  Are they worried about some bloody episode happening in their facility?  Must be that, because I'm sure there are many people in nursing homes that wish to die, but I bet they aren't asked if they have thought about offing themselves.

 

Another facility I toured today was a bit freaked by mom's geri psych hospital report that( which I hadn't seen yet and was told only that mom's dx was dementia w psychosis and major depression) that also mentioned she was admitted with the above and questionable bi-poloar and schizophrenia.  Huh?  Hospital social worker told me mom's dx was dementia w psychosis and major depression and said nothing about bi polar and schizo- good grief!!! Regardless, this NH social worker said she was going to need a lot more information about my mother because of what was written on that report. I've also been warned by a geriatric case mgr to not focus on the psych issues- WHY? 

 

By the way, Mom has not had earlier life dx of bi polar or schizoprehnia. She had 3-4 episodes in her younger adult life which were dx pyschosis unknown origin. She was also someone that was not on medication for psych problems- these episodes just usually cleared up on their own and meds made worse. ( I suspect partial seizures which can mimic psych issues, but I digress. ) 

 

The other thing I'm frustrated by is that I feel I'm having to deal with labels that have been put on my mother or even just raised as a question about my mother.  Many of these IMO I believe have been wrong. My mother has real drug sensitivities and has had issues with medications causing these type of problems, but how come I'm not seeing this dx show up on her chart?  Yet I have to deal with bs dix of schizoprhenia or bi-polar. All a doctor has to do is speculate or wonder about it and it's a red flag. I feel this is so unfair. What if I was to speculate about the doctor being a complete flake? But there is not where for me to write that down?

 

I'm starting to wonder if I should try to do something about all of this. My mother has also unfortunately not gotten the best of care and some of these hospitalizations could or should have been avoided. For example, yet another  idiot who saw her in Feb in a psych unit refused to treat her-he said she had "forced normalization" that's since been debunked by several of her other doctors, but basically it has to do with an inverse relationship between seizure disorders and antipsychotics.  This doc prescribed no meds and sent her home after 3 days. My mother was a mess!  The only reason I didn't dispute this with Medicare is I had such a bad experience with this dr and why woudl I want him to treat her?  I wanted to get her out.  I also read the report he read and he really really downplayed her symptoms- of course! To  justify shipping her out.

 

I have an axe to grind her as you can see, but I'm feeling so frustrated by this.

 

I will say on the other hand, that another facilty we are looking at got the same darned hospital report and the only thing else they requested were progress notes from mom's current facility. Go figure! And this is a 5 star rated NH too.

 

Lastly, for those that don't know I'm looking for a NH near where I live to move my mom too. She's in one 400 miles away. Long story.  Thanks for liseting to my rant, but I would appreciate any feedback. 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 



dayn2nite
Posted: Tuesday, September 11, 2012 10:52 PM
Joined: 12/18/2011
Posts: 3097


Short and sweet - they're concerned with the psych history because they have to protect the other residents from possible abuse/harm, and someone who has regular cycles of psychiatric issues can require much more attention from staff than the otherwise "pleasantly" demented person. 

 

One person having a psychotic episode needs frequent and sometimes constant attention during the episode--staffing for that can be an issue, especially on nights and weekends.  I would imagine in some circumstances it could cause additional aides to be needed and that's a money issue for the facility.


Johanna C.
Posted: Wednesday, September 12, 2012 1:41 AM
Joined: 12/9/2011
Posts: 10221


LD:  These questions are quite appropriate.  They need to know how to protect your mother (suicide question) and also protect other patients and to assess which unit and room would be best appropriate for her.  I would be by far more concerned if facility staff did not ask such questions.  in fact, such an omission would seem very lax especially in light of the documented history.

 

Both my Mom and Step-dad had dementia and each time they were admitted to a facility, similar questions were asked of us and I was glad that they were.

 

And . . . . . . dementia with psychosis certainly seems to fit the dynamics your mother has experienced.  Being that she had bouts of psychosis as a young adult and diagnosis was not specified, also lends credence to that.

 

Some bipolars are atypical and a person can have an extremely low level of the disease and can even go years between episodes.  Some episodes may be just a bit of irritability or borderline agitated feelings, etc. and then this can disappear in a few days or weeks.  Some of the acting out I have seen with patients that have atypical bipolar disease has been documented by psychiatrists as "agitated depression." 

 

Also, some medications can "bring on" or cause a bipolar episode.  This has been well documented in the literature.  So; it may not be a medication reaction that occurs so much as a med that pushes a person into an episode of their pre-existing disease.  For some people with such a condtion, SSRI antidepressants can do this.  

 

I think that at this point, the dementia with psychosis is probably accurate and they have yet to determine with a degree of certainty which of the major psychoses this is; bipolar disease or schizophrenia or a combination thereof.

 

Control of her symptoms will be done with medication and it may be that there will still be times where she will have her disease break through the meds and will need to have medication adjusted.  This happens to patients and it is something that we can plan for in the back of our mind. 

 

I hope that an acceptable placement will happen soon.

 

Johanna C.

 

 

 


TCUDeeCal
Posted: Wednesday, September 12, 2012 5:51 AM
Joined: 9/2/2012
Posts: 374


LDDaughter, what feels like centuries ago, I used to play piano once a week at a combination NH/ALF. I will never, ever forget the day I arrived to find everyone in a somber mood. A man had shot his wife and then himself. No warning. He hated the thought of them growing old, so ended it.

 

It was so traumatic.

 

Also when my mom spent a week in a gero-psych ward in 2009, there was a very aggressive woman in the ward. Honestly scared me on behalf of my mother. The woman ate with everyone else and watched TV with everyone else, but constantly made threatening moves that kept everyone cowed. (To this day, I don't understand why that gero-psych ward allowed that.)

 

I would believe that all the precautions are to prevent either of those scenarios.


LDDaughter
Posted: Wednesday, September 12, 2012 6:46 AM
Joined: 12/22/2011
Posts: 1047


I should add that her dx also includes behaviorial disturbances.

 

Johanna, your comment about the SSRI's concerns me. Mom is now on Lexapro, I'm not sure if that is an SSRI or SSNRI??  I will say that adding more Seroquel made her worse, that I know. She needed something else.

 

If someone has Alz do they ask if they have behavior issues as well?   I think that could be equally as difficult to manage staff wise. 

 

The more relaxed nursing home did get a report from the hospital which I haven't seen yet, but seems to contain some intense stuff.  The social worker had told me earlier about a resident that is sent out to the VA regularly for psych issues and seemed to understand his problems.  I would like to think that if they aren't nitpicking it might still be okay.

 

The Ohio Board of Mental health assessed her on Saturday too. I guess they have to do that to make sure they really need to be in a nursing home and their mental health issues aren't acute.  Reviewer left me a message saying mom did fine. At first mom didn't want to talk to her, I wasn't there and she wanted the NH social worker to be there, but she relaxed and ended up letting the counselor talk to her. I don't blame mom at all for being a little cautiios about talking to a stranger about this stuff!!

 

I'm getting tired of this psych spotlight being shined on my poor mom!

 

 


King Boo
Posted: Wednesday, September 12, 2012 7:41 AM
Joined: 1/9/2012
Posts: 3091


LD Daughter - You need a facility that has the ability to handle a psychiatric overlay to dementia.  Your Mom has needed psychiatric care multiple times - it is likely to be an ongoing issue.

Choosing the right nursing home is an arduous process - it is also about far more than just getting in.  It is about staying there.  You need a NH that is not phased by a minor behavioral change, that has the resources to recognize the need to call the psychiatrist, and manage this issue.   Otherwise, the minute Mom has a behavioral break through they will ship her out to the geriatric psych hospital - and you start the whole sequence again.

Paying for a nursing home bed hold is expensive.

 

Factual, non dramatic, but honest detail to admitting facilities will benefit both your mother and the facility.

 

Chances are, if the facility declines Mom, you may not want to be there anyway.

 

A number of years ago, I had what I thought was the perfect assisted living  situation in place for Dad.  During his rehab stay, I asked for a psychiatrist to see him to prescribe anti-anxiety meds as he was anxious about his mail and was checking neighbors mailboxes.  Long story short, they would not take him in AL because he was wandering (HE was not, it was anxiety driven OCD that disappeared with Lexapro).  Was I ANGRY!  YES!  I regreted giving them the information that got Dad treated "unfairly".  I'm still resentful about this place. .

However. . . .

I know that Dad did not belong at this place that had so little tolerance for what if's and eccentric behavior - it was more of a place that catered to forgetful, pleasant, early dementia. 

 

I know it is grating on you, but their interest in and foucus on the psych. history is on target.  Hang in there, there is a good place out there.


dayn2nite
Posted: Wednesday, September 12, 2012 10:20 AM
Joined: 12/18/2011
Posts: 3097


LDDaughter wrote:

I should add that her dx also includes behaviorial disturbances..

 

If someone has Alz do they ask if they have behavior issues as well?   I think that could be equally as difficult to manage staff wise.   

 


If it's just a regular tour and the facility doesn't have benefit of a prior facility history they wouldn't ask, but on intake we were asked many very specific questions about mom-does she have periods of agitation, behavioral issues, what agitates her, does she have sleeping issues, is she aggressive, etc.

 

She was also seen by a nurse the first day and the following morning was seen by a psychiatrist and the medical doctor.

 

It would be rare to have dementia without some sort of psychiatric issue like depression, but not everyone has psychosis. 

 

People like my mother could be put in a chair to watch TV and be very content to sit right there until someone came to get them and take them somewhere else.  The most acting out my mom ever did was to say "no" if she didn't want to do something, but if the aide continued on with it she would just go right along with it.


Johanna C.
Posted: Wednesday, September 12, 2012 10:41 AM
Joined: 12/9/2011
Posts: 10221


This is one of those lengthy "conversations" again, sorry.  I sincerely do care about what is happening and I feel very sad for your dilemma.

 

King Boo, as she always does, gave terrific input and advice.  I will join her and repeat a very important component of her message:   Getting your mother into a facility is one thing; being able to keep her there is quite another.  This is huge and I would advise keeping King Boo's wisdom topmost in my mind while choosing the most appropriate facility.

 

NOTE:   This is a very huge consideration for your mother based on her actual needs and how things really are; not how we hope or wish they are not.

 

My own mother became a victim of just this sort of dynamic.  We got her into the facility we chose; but, within a few months, they evicted her based on behavioral issues (too long to go into here); it was shocking and a huge negative dynamic for both my mother and for family.

 

And by the way; my mother had her primary diagnosis of FTD, but later, it was considered she may have a co-committant dementia induced psychosis underlying it all.  I was shocked and initially resisted this.  It was all so confusing and even moreso when one factored in reactions to different medications, however; despite my wishes for "not", it was true that this was indeed a probability. 

 

You are a wonderfully loving daughter and you are striving mightily to try and forge perfection and absolute protection for every minute detail on your mother's behalf; you are truly trying to do the best you can imagine for your mother.  No one could be trying harder than you are and I commend you for your compassion and deep caring.  Your mother was blessed with a wonderful daughter.

 

I think you are terrific, but from what you write, I also feel that things may begin to slip sideways and artificial barriers to a successful care plan may be occurring and I want to step away from who I usually am and put on my, "Auntie Jo" hat.  I sincerely hope I do not offend you.

 

Dear LD; you have had to be deeply immersed and wound up in all the swirling and extraordinary dynamics surrounding your mother, and because of this, perspective may be a bit skewed at this time.   Your adamant stance against your mother having mental health issues, (you even called it a "stigma" at one point), is causing some difficulty in making the best choices for your mother's ongoing long term care needs.

 

This then, is not a Mother issue; it is a Daughter issue.

 

Despite the facts of an extensive workup and diagnosis by multiple psychiatrists and other healthcare professionals and that the absolute necessity for the amount of upheaval and care and medications including psychotropic drugs has NOT been for your mother's dementia; it has been in regard to her ongoing diagnosed psychosis, this continues to be denied.  This mental health component is the primary issue at hand and will probably be an ongoing issue from time to time.

 

The professionals have written their reports; the psychiatrists have documented the history and their diagnostic impressions and findings.  These are being provided to the facilities you are screening.  Yet, even though this is the primary cause of your mother's consistent troubles, and a huge part of any care planning,  it appears you are offended by the facility staff when they ask you questions re her psychiatric illness (which is the driving force) and even again have expressed that you are "tired" of the psychiatric history being in the "spotlight."

 

My dear, your mother's overriding issue ARE her psychiatric needs.  Her dementia appears to be in good stead and when not having psychotic break, your mother is sweet and docile.

 

And yes; asking questions about behaviors, etc. re plain dementia were indeed asked when we had our admissions screening at NHs for both my mother and my step-dad.  But; your mother does NOT just have a dementia; she is much more complex and her safety and care for the psychosis and the dementia components are crucial to a good outcome and the facility staff is obligated to ask these questions and if a facility, no matter how good they may look does not ask any questions re this after reading the psychiatric history, it would make me run the other way.   Operant word in this paragraph is, "obligated"

 

In younger years, your mother had mental health issues of, "psychosis" with an undetermined diagnosis.  This is hugely different from seizures which you mention was the cause of her symptoms.  The two are hugely different and the specialists would have determined the difference.

 

Fast forward to today.  My dear; multiple specialists in psychiatry and other disciplines have examined, worked up, assessed and treated your mother.  The consensus is that she does indeed have a psychosis in addition to her dementia.  It is as yet not clear to psychiatry whether this is bipolar disease, schizophrenia or a combination of the two.  The description you have shared of her intermittant uncontrollable breaks into severe behavioral changes also supports such a diagnosis.

 

Your wanting this not to be; trying to attribute it to anything other than having a psychosis, is your hugest barrier and is counterproductive on multiple levels.  I have even wondered if you feel that having a mental illness is a shameful and embarrassing thing.

 

No matter how we try to put another face on it, the truth is the truth; the facts are the facts.  As King Boo has counseled us, your mother needs to have her care provided for the needs she actually does have.  The likelihood is that the psychosis will indeed recur again in the future and treatment/intervention will be necessary to assist her back to being in her "good place."  Having a facility that is capable and willing to work with this, is crucial to success and optimum care for your mother.

 

At one point in my mother's journey, when I was busy driving myself nuts and railing against what was happening to my mother, (unrealistically I might add), and kept striving and searching for something else, I had a very good friend, another RN who finally was able to get through to me and made me look at things from a different vantage point.

 

She said, "Johanna, pretend your mother does not have dementia; pretend your mother has the diagnosis of cancer instead.  Pretend that the doctor's have told you that the cancer is absolutely terminal and all has been done that could be and there is nothing else they can do.   If this were the case; would you continue to throw yourself at the same brick wall day in and day out or would you accept what the doctor's have told you and accept the reality of it?"

 

Well, this woke me up and the answer was clear.  If it was the diagnosis of cancer, I would have been much more accepting of that which I could not change.  This enlightenment made a huge difference in my perspective and I was able to stop throwing myelf at the brick wall over and over again.

 

I might ask the same question of you that my friend asked of me.

 

If you do choose to continue along this path; you will find barriers and turmoil and will also begin to feel the effects of burnout and none of this will serve your mother well.  I do not know you personally and do not know of your family circumstances of perhaps whether mental illness is considered shameful in your family or if there has been mental illness in the family that has caused negative outcomes and you don't want that for your mother.  But; wishing it not to be so does not make it not so.  It is what it is.

 

Please do give this some thought and try to separate the feeling of shame and denial from the actualities.  If you can step away from that, perhaps it will permit you some breathing space and lead you to the best decision for your sweet mother.

 

I so wish the best for you and your mom -

 

Johanna C.   


Johanna C.
Posted: Wednesday, September 12, 2012 11:06 AM
Joined: 12/9/2011
Posts: 10221


You asked a question re SSRIs and I did want to separate that out from my other post to you.

 

Please do not think that I mean that SSRIs all contribute to bipolar breaks or that I think this is what is happening to your mother.  Also, SSRIs do NOT cause bipolar disease.

 

Sometimes (not all the time) some people (not all people) may be thrown into a bipolar episode when given a particular SSRI (not all of them).  While this is not common, it can happen; but it happens to people who already have the disease and those who are at high risk at a very low level and have not yet been diagnosed.

 

BUT PLEASE NOTE AGAIN:    SSRIs do NOT cause bipolar disease; the person will already have bipolar disease and it is possible for one (or perhaps more) of the SSRIs to contribute to a bipolar break.  This is especially important when there is a familial history as some people with bipolar issues are so low level at intervals that it has never been diagnosed.

 

In my husband's family, there are several relatives that have a history of bipolar disorder.  Familial history.  A very dear relative, after the death of a parent, could not sleep and was thought to be a bit depressed.  The MD prescribed what was to be a "short" course of an antidepressant (an SSRI) for about three months to get this person over the worst of it all.

 

Within about a month, this person had their very first significant episode of bipolar disease.  It floored everyone - how could this be?  That's when we learned a lot we did not know before this happened.  Evidently, some of the SSRIs are more problematic than others.  I did not see Lexapro included in this material I read.  Some professionals in the field of psychiatry do not feel this is an issue; but some do.  

 

Most folks will think of bipolar disease as overwhelming with huge demonstrations of profound ups and downs; but please read my former post to you; it does not have to be that way.   We were told that if ever another member of the extended family needed an antidepressant for any reason, this potential should be discussed as atypical bipolar disease can exist at extremely low levels and as mentioned, may not ever have been diagnosed.

 

Remember; SSRIs do not cause bipolar disease; it already exists.  And, we don't know if that is your mother's diagnosis.

 

If your mother is doing well on her medication and all seems well; please don't try to get the doctor' to change her medication based on the above.  This may not be an issue for your mother and it has taken a lot of trial and error to get her doing as well as she is now doing.

 

Johanna C.


dayn2nite
Posted: Wednesday, September 12, 2012 11:08 AM
Joined: 12/18/2011
Posts: 3097


I think "Auntie Jo" has made a fair assessment of the situation.  The "episodes" your mom had earlier in life probably didn't have a name at the time--but much more is known now about how people with bipolar and/or schizophrenia present themselves.  And IT'S OKAY if that is what the problem is along with her dementia.  It's okay, it really is.

 

I wanted to add another caution - yes, the social worker told you not to focus too much on the psychiatric issues - BUT, you have to also react to those issues when asked about them in a matter-of-fact way with a positive spin.  Why?  Because how YOU accept or do not accept the mental health issues has some bearing on whether any facility will be able to help her too.

 

A facility is much more willing to take a challenging resident when they know the family will not be minimizing and negating the diagnosis(ses) and treatment they want to offer.

 

If they see a patient with behavioral challenges and family wanting to attribute those challenges to other things, well that's an additional challenge they may not want to take on.

 

Just like you don't want to fight with the facility over your mother's treatment and care, they don't want to fight with family over the same issues.

 

 

 

 


LDDaughter
Posted: Wednesday, September 12, 2012 12:51 PM
Joined: 12/22/2011
Posts: 1047


All very helpful points, thank you.  And good to hear that others have gotten these pointed questions as well.

 

I wish to clarify something. I do know my mom has psychiatric issues, do I like it? NO, but does she have problems? OH YES.  There's a lot that goes into this soup from the past, doctors errors, misdiagnosis, medication reactions etc that have muddied the waters here. As a result that has made it harder for me as I think we are dealing with multiple issues. Then on top of that I'm tired and worried about finding her a good place here and creating a smooth transition for her. 

 

 I've been whining here folks, just wanting to vent.  This is hard and my inner brat is dragging her heels. But I do know how to do the calm objective thing, I need to do more of it and drop my reactions so I appreciate what you all are saying. I need to embrace all of it including the psychiatric issues she has and stop relating to it like people are picking apart her dirty laundry. I do know that's a very good perspective to have, but that's the part of me that needs to grow up I guess.

 

 


Johanna C.
Posted: Wednesday, September 12, 2012 11:35 PM
Joined: 12/9/2011
Posts: 10221


Shoot, we all are human and we all have our weak spots.  It comes with the territory.

 

It really isn't about "dirty laundry"  (there's that stigma thing again); it is simply two medical diagnoses (plus any other medical conditions) that are part of her medical history which are not her or anyone elses fault.

 

1.   Alzheimer's Dementia

 

2.   Psychosis of undetermined nature; bipolar disease vs. schizophrenia

 

3.   Any other medical conditions such as hypertension, diabetes, etc.

 

Admission screening; Intake; and all is done.

 

I was thinking about your situation today and hoping you would find an acceptable facility very soon.  I hoped you would find the best facility for her and that they would have that private room you want her to have.

 

Then I thought that if you found the perfect facility, and they did not have a private room available at the time; I hope you would still place her, even if she had to share a two bed room until a private became available.

 

There are a couple advantages of having a two bed room IF the roommate is compatible.  One is that the licensed nurses and aides are in the room more often; twice as often at least as they must tend to the second person  too. 

This means that whenever staff is in the room, they are also observing and interacting with your mother, and if anything needs to be taken care of, they are more likely to see it.

 

Second, it keeps your mother from being isolated too much of the time.

 

So, it may be that with either type of room, she will have advantages.

 

You know; I cannot remember your family situation (sorry).  Are you an only child?  Are you married and/or do you have any children?  Are there any other siblings or family members like aunts, uncles, cousins, etc. that can help be supportive to you?

 

I can only imagine how tired you must be by now and hope that you can find some respite and time for yourself soon.  If anyone deserved a break, you certainly do; this has been a beyond stressful time.  Gosh, it makes me tired just thinking about it!

 

You are just about at the finish line - hang in there; it will get better. 

 

Johanna C.


TCUDeeCal
Posted: Thursday, September 13, 2012 1:44 AM
Joined: 9/2/2012
Posts: 374


LD Daughter, I will add something to this conversation that will be of no help to you whatever, but hopefully will make you laugh...

 

I live in the townhomes connected with Cal State Channel Islands, California's newest and truly-beautiful campus. CSUCI built the townhomes so they could attract top quality professors and staff. Rent is about 30% cheaper than comparable homes in the area, and you don't have to be on faculty to rent.

 

The funny part: CSUCI is the old "Hotel California" of Eagles fame. Yeppers, the old California state mental hospital. I feel like we belong.

 

On a more serious note, I totally get what Johanna is saying, and it helps me deal with my mom a little better too. I fully believe that in less than fifty years, future generations will look back on us in disdain for not understanding the MEDICAL nature of mental illness. You know?


King Boo
Posted: Friday, September 14, 2012 7:58 AM
Joined: 1/9/2012
Posts: 3091


 

LD Daughter-I hope you are "feeling the love" here from us all.  While no one has walked precisely in your shoes, we have walked similar paths.  I have been on my knees at least twice crying hysterically outside of facilities I have toured more than once, - because touring the second time, looking at the other residents, I realized my Dad was not a good fit there.  And my bubbles burst - he could not sit and play cards or go on outings because that was my ideal cartoon image.

 

My reality was that I had a father with moderate dementia, with pre-existing mental health issues of anxiety disorder, OCD and probably undiagnosed autism/ Asperger's.  It was very hard to find a good fit for him.  I did not bog my earlier posts down with personal details, and only toss this in now to flush out my earlier posts a bit from ivory tower to at least having one big toe dipped in the area of mental health from personal experience. 

 

Auntie Jo had a lot of good advice.  King Boo, too thinks, focus on the following:

 

1.  Where will my mother's 1. Mental health issues and 2. Dementia be properly addressed?  A good clue is where it is the norm and not viewed as pathology, but as a process.

 

2.  Will mother be cared for and treated respect when I am not there?

 

The heck with the decorations, outings, religious services and private rooms.  The need for THESE specific details decreases dramatically with time, unfortunately, due to the disease process.  Letting go of our dreams of the traditional retirement home in care facilities, is part of the loss process that goes along with this disease. 

 

You have a complicated situation, go for the basics or you will make yourself insane.       


LDDaughter
Posted: Friday, September 14, 2012 8:18 PM
Joined: 12/22/2011
Posts: 1047


Hi King Boo,

 

So how the heck do you find these places?  Seems like you just have to keep turning over rocks and asking tons of questions. How did you finally find the right place for your dad? Is it Chandler Hall by the way?

 

I'm going to start a new thread as I was thrown a big curve ball today with a new dx. I'm not sure whether to be glad or skeptical, but just taking it in... but it kind of makes some sense.

 

Alz with Lewy Bodies..

 

By the way, thanks for sharing your about your dad and what you went through!


LDDaughter
Posted: Saturday, September 15, 2012 9:41 AM
Joined: 12/22/2011
Posts: 1047


Hi King Boo,

 

Where is your dad living by the way?

 

Funny you mentioned Arden Courts, my care mgr suggested I look at the one in King of Prussia, she's placed a few complex people there and really likes it.

 

Of course it's not a nursing home though and that is a concern,  If she does indeed have the Lewy Body thing then there will be physical deterioration and she already has this shaky hand thing. She's still able to feed herself fortunately, but sometimes is using both hands to hold the fork. Very determined lady! Going to talk to the OT's about her on Monday, they've been working with her.

 

Stellar placed her FIL in Waverly with a fulltime aide of her own I believe. It's a pretty pricey place and I've heard they are picky, but I may call them.   I'm guessing it might be $400 a day,  the Hill at Whitemarsh is $404 for private room and it seems to be a similar very high end kind of place.

 

Still in the running for Springhouse Estates in Gywned and Protestant Home. They are reviewing mom's records very carefuly but the Social Worker at Sprighouse told me she is advocating for my mom.  Yet also that it's not her decision, so I don't want to get my hopes up too high. Care sounds fantastic there and they've had their share of people with mental illness- she said they had someone who was at Eagleville for two months!  As with most of these places they want to avoid someone who is a harm to themselves and others.  So far mom is under control, but I still seem some delusions about the lady next door which is a concern. She seems worse cognitively than before the hospital..makes me wonder if the Namenda was helping her, which they stopped.


Jo C.
Posted: Sunday, February 7, 2016 8:45 AM
Joined: 12/9/2011
Posts: 10221


Once again, someone has dredged up another one of LD Daughters very old posts; this one is four years out of date and her mother has since passed away.

If this has been done unintentionally, please note dates on old threads.  If this is being done from a "troll" sort of activity, any further actions will be taken under action by Administration and trolls are then permanently removed from being able to access the Message Board.

J.