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Posted: Thursday, May 9, 2019 1:40 AM
Joined: 7/6/2014
Posts: 1351

I am officially a widow of 6 months , a survivor spouse of  this horrible disease of dementia.  My spouse of 51 years had LBD/Parkinsons and was cared by me and my younger sister for several years. (The last 3.5 years, total care--24/7-- at home, in a bed - in the front room, where he died in my arms.) Our relationship was rocky at best, but I was in for the long haul.  MARRIAGE VOWS (for me )  WERE SACRED. 

I have had several years of coping with what  life brings. I NOW DO NOT actively mourn for my spouse. I did that before he died. (NO ONE SHOULD HAVE TO BE ALIVE BUT NOT LIVING).

I MADE IT through the worst part of my life.  It was rough, and I may  be -- or may not be--a better person for it. 

This I know. We survive.  We go on, and we ARE SURVIVORS.

Posted: Thursday, May 9, 2019 7:59 AM
Joined: 9/8/2017
Posts: 2261

Sometimes it seems that caregivers never stop being caregivers....I think I can survive this but I do worry if something unfortunate will happen to me during my term/this term of caregiving
Posted: Wednesday, June 5, 2019 8:31 AM
Joined: 6/20/2017
Posts: 45

Best wishes to you , may you live happy, joyous and free.
Jo C.
Posted: Wednesday, June 12, 2019 2:26 PM
Joined: 12/9/2011
Posts: 10745

Dear Dahlke; just want you to know I am thinking of you.


Posted: Monday, June 17, 2019 10:52 PM
Joined: 6/17/2019
Posts: 3

I admire your strength and attitude.  I am caring for DH and it is difficult.