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PCP refused to refill my Exelon patch prescription
Iris L.
Posted: Friday, March 30, 2012 12:05 PM
Joined: 12/15/2011
Posts: 16240


The new PCP that I began seeing in November 2011 refused to refill my Exelon patch prescription that I've been on for three years come May.   

 

The previous PCP wrote my prescription with a year's worth of refills.   

 

I don't see how I can work with this doctor if she won't prescribe my needed medication. 

 

Iris L. 


Myriam
Posted: Friday, March 30, 2012 1:02 PM
Joined: 12/6/2011
Posts: 3326


Oh, Iris, I'm so sorry. What reason is she giving you for not refilling the Exelon prescription?
SteveSanJose
Posted: Friday, March 30, 2012 4:00 PM
Joined: 1/3/2012
Posts: 189


Always ask a doctor why. The best person to tell if a RX is working or not is you. Tell you doctor what works and what does not. If you don't he will doing what is the norm for him, for people who have the same medical porblems as you.  Is he tring some thing elce? When you go to the doctor, take some one with you, or write down what you want to say as a  reminder. Bring the patch box with you from your old doctor, and tell your new docktor this RX is working for me.
Mimi S.
Posted: Saturday, March 31, 2012 8:37 AM
Joined: 11/29/2011
Posts: 7035


Yes,

What was the reason given?


Iris L.
Posted: Saturday, March 31, 2012 1:00 PM
Joined: 12/15/2011
Posts: 16240


No reason was given.  The medical assistant from the office telephoned me and said the doctor wanted to know why I was using Exelon patch.  I told her it is for my memory.  That was all.   

 

I was too numb to ask questions.  I guess I've just gotten used to being ignored and treated badly by my medical team. 

 

Iris L. 


Mimi S.
Posted: Saturday, March 31, 2012 3:38 PM
Joined: 11/29/2011
Posts: 7035


Hi Iris,

A return call is in order. First recheck the benefits of the Exelon Patch. Explain what happens when you are off it. I think, but you'd know: Any effects lost while you're off the patch, will not be regained going back on. What's lost is lost.


You are much too cognitive to go off the patch.

And this should have been a mutual discussion. Is this the only (but major) problem with this doctor? Are you stuck with this one?


Mimi S.
Posted: Saturday, March 31, 2012 3:39 PM
Joined: 11/29/2011
Posts: 7035


PS. Are you also seeing a neurologist who could write the script?
Iris L.
Posted: Saturday, March 31, 2012 9:58 PM
Joined: 12/15/2011
Posts: 16240


Mimi, I shouldn't have to explain to the doctor about the risk of going off my medication.  This is my third PCP since I lost my geriatrician last year.  The last doctor told me I was "choosing to forget" when I complained about my memory.   

 

I do have a neurologist.  I probably will have to call him to refill my Exelon patch prescription. 

 

Iris L. 


Mimi S.
Posted: Sunday, April 1, 2012 9:31 AM
Joined: 11/29/2011
Posts: 7035


Iris,
You know it and I know it, but the PCP doesn't. My neurologist is in charge of all my dementia medications. As long as you have a good neurologist and if you like your PCP use him/her for non dementia issues. 

Iris L.
Posted: Sunday, April 1, 2012 11:47 AM
Joined: 12/15/2011
Posts: 16240


The neurologist told me in July 2010 that I didn't have to come back to see him.  I returned to him on my own in December 2011 because I believed I had a decline.   

 

That's when he referred me for repeat neurolopsychological testing.  He also added 5 mg Aricept to the Exelon patch, which I did not take, because I was afraid of duplicating two cholinesterase inhibitors. 

 

I have not had the results of the neuropsychological testing after almost eight weeks, so I have not returned to the neurologist yet. 

 

Iris L. 

 

 


Myriam
Posted: Sunday, April 1, 2012 11:51 AM
Joined: 12/6/2011
Posts: 3326


Hi, Iris. Would you consider calling your doctor tomorrow to find out what the hold up is in getting your report? Unfortunately, those of us who live alone have to be our own advocates. I would also call the neurologist and set up an appointment for every 6 or 3 months, whatever time you feel comfortable with. If he doesn't agree, find a new neurologist. You are the boss.


Iris L.
Posted: Sunday, April 1, 2012 11:54 AM
Joined: 12/15/2011
Posts: 16240


I got a call Friday from the neuropsychologist's office.  The office manager scheduled an appointment for Thursday, April 5.  It will be eight weeks and two days since I completed the testing.  

 

Iris L. 


Mimi S.
Posted: Sunday, April 1, 2012 10:07 PM
Joined: 11/29/2011
Posts: 7035


Did you bite your tongue and not say: It's about time?

Keep us posted.

I do wish you had someone to go with you.


Lisa428
Posted: Monday, April 2, 2012 11:42 AM
Joined: 12/5/2011
Posts: 795


Iris,

Ask your neurologist for refills.

Good Luck with your upcoming appointment.

We'll be waiting to hear the news.

Hang in there.

Peace and Hope,

Lisa

 


eaglemom
Posted: Monday, April 2, 2012 11:58 AM
Joined: 3/7/2012
Posts: 2414


That's too bad.  All I know if that DH's neurologist is in charge of all his memory medications.  He told us "I'm driving this boat, I won't let you done, allow me to be in control and nothing will get mixed uup medication wise."
Iris L.
Posted: Monday, April 2, 2012 3:35 PM
Joined: 12/15/2011
Posts: 16240


I called back to the PCP's office this morning--she's not in the office today.  I want to hear what the neuropsychologist has to say before I call the neurologist.  I still have enough patches to last me a few more days.

Iris L.