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53 and unsure
carolyn2019
Posted: Saturday, July 13, 2019 7:01 AM
Joined: 7/13/2019
Posts: 2


Hi everyone,
For several years I have had memory problems. Its getting worse. Neurologist ordered mri, showed front lobal white spot or something, I forget, I would have to pull out the report to see. He did  3 EEG's. 2 were normal, 1 abnormal. sleep study was normal other than the nightmare I had when I was there. lol... scared the techs at the sleep study center for sure. Anyways, the headaches and nightmares after a year are fading away and I am now faced with more severe memory loss. I can not multi task anymore. I used to easily. My family and friends are concerned and ask me whats wrong. Of course I say nothing. I don't want to tell them whats going on in my head. My coworkers look at me funny sometimes and I try to brush it off. My hands shake a lot. I stopped calling my husband If I get lost - he gets upset. Me trying to hide whats going on is not working anymore. Its been a year since I seen the neurologist. I have an appointment on the 22nd of this month. I have been avoiding going back. They wanted to send me to a specialist clinic to evaluate for dementia OU medical. So I think now its time. I am in denial I believe. I seen my mom and dad go through this and its hard. Hard on them and the people around them. Well that's my venting. I tried to talk to a friend but she thinks at my age dementia should not be a concern.
eaglemom
Posted: Saturday, July 13, 2019 1:21 PM
Joined: 3/7/2012
Posts: 2346


I hate to have to welcome you to the message boards Carolyn2019, but welcome. I'm glad that you found us. Since you are seeing the neurologist later on this month, please start a list of your concerns. It would also be good if you took your DH or family member / friend with you for the appointment. At that appointment you have to, forgive me, you have to get real with the physician. Clearly you know 'something' is going on. 

As for driving that concerns me. Your DH of course gets upset if your lost. Hopefully he's upset with the situation and not with you. This certainly isn't something your intentionally doing to upset him. I would hope he's simply scared for you.

At the top of the page is something called solutions. If you click on that it brings up a menu of several various things. Slowly read through them, and encourage your DH to do the same.

Take a deep breath, realize this board is where you are safe and we do want to help you on this journey no one wants to take.

eagle


Iris L.
Posted: Saturday, July 13, 2019 2:36 PM
Joined: 12/15/2011
Posts: 16092


Welcome Carolyn. I hope you had blood tests to rule out thyroid disorders, vitamin B12 deficiency and other medical conditions.  Check all your medications, prescription and nonprescription, for memory loss and cognitive side effects.  If you have a history of depression, you should be treated.  You also need an extensive set of neurocognitive tests to see how well your brain is functioning.  This is done by a neuropsychologist.  


If you can continue on your job, visit www.askjan.org.  This is the Job Accommodations Network.  Follow the prompts for Alzheimer's Disease.  You can request accommodations and you do not have to disclose the nature of your disease.  Be aware however, that even though discrimination for a disability is illegal, employers do not want someone who cannot function, and they will find a way to let you go.  In order to avoid this, you might consider taking short-term disability for a few weeks pending completion of your medical and neurological testing.  If cleared, you may return to work with medical treatment and work accommodations.  If not cleared to return to work, you will have time to apply for long term disability benefits through your employer or through Social Security.  You may want to discuss this with HR or an employment attorney.


Unfortunately, people around us do not take us seriously when we describe our cognitive difficulties.  Support will be lacking.  Please visit here, we will support you.  It is possible that your difficulties are due to a treatable medical issue.  If not, there are things you can do to help yourself.  It's not like it was for yor parents.  There is still no cure, but our lives can be made better.


In the meantime, forget multitasking.  Focus on one task at a time.  



Iris L.


carolyn2019
Posted: Monday, July 15, 2019 7:45 AM
Joined: 7/13/2019
Posts: 2


Thank you for the information. All labs are normal. I will follow up here after my appointment next week. I am going to take my husband to this appointment. There are just some things he doesnt know. But it's time he gets the whole pic. I am certified in my line of work and each day is harder it seems. Good days and bad.
Iris L.
Posted: Monday, July 15, 2019 11:01 AM
Joined: 12/15/2011
Posts: 16092


Best wishes, Carolyn!

Iris