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Hand Tremor and Pilling
LadyTexan
Posted: Sunday, August 11, 2019 1:49 PM
Joined: 12/21/2018
Posts: 188


DH has long been pilling his fingers where he rubs his thumb against the middle and index finger. DH also has a subtle but noticeable hand tremor. The pilling and the tremor are more frequent and less subtle now. I'll ask the geri-psychiatrist about it when we see her again in three weeks. In the mean time, I am looking to you all for info. If you have observed this in your loved one, was it indicative of something in addition to AD, such as Parkinsons?

 


Doityourselfer
Posted: Sunday, August 11, 2019 1:56 PM
Joined: 9/5/2017
Posts: 322


My DH always thinks there's something in his right hand and will keep his hand closed as not to drop whatever he believes is in his hand. No tremors yet. He also makes the motion as if he's winding string with both hands.
Marta
Posted: Sunday, August 11, 2019 2:27 PM
Joined: 6/3/2013
Posts: 699


AD , in its path of destruction, spares no part of the brain. The substantia nigra  ( part of the brain affected in PD), is no exception. Whether the AD patient with Parkinsonian symptoms also has PD de novo , or whether it is AD affecting the substantia nigra becomes an academic discussion without clinical relevance. The end result remains the same.
Ed1937
Posted: Sunday, August 11, 2019 2:41 PM
Joined: 4/2/2018
Posts: 1425


I have a little tremor in my hands, It's  been ongoing for about 3 years. Doc said it was not Parkinson's, and gave me some printed info on it. It said there was no known cause for tremors, and that it could or might not get worse. So far no problem except that if I need to use a screwdriver on a very small screw I need to put my hand against something to steady it. Not a big deal.
Whyzit
Posted: Sunday, August 11, 2019 2:41 PM
Joined: 6/10/2019
Posts: 7


My DH with AZ also does the pilling and hand and head tremors, His balance is getting steadily worse and now is sweating more. He has an appointment with a movement specialist end of September. His neurologist suspects Parkinson’s. So like you we will wait and see. God bless you on your journey.
Rescue mom
Posted: Sunday, August 11, 2019 3:02 PM
Joined: 10/12/2018
Posts: 906


My DH has been doing the pilling, a lot, for at least a year. But he does not have tremors. I’ve asked his docs about Parkinson’s because I’ve heard they often go together. But his docs say no, the “pilling,” is just part of the AD. He has no other issues usually associated with Parkinson’s.

If anyone mentions the pilling, he will/can stop, but otherwise seems unaware of doing it.


Mrs. O
Posted: Monday, August 12, 2019 1:28 AM
Joined: 8/1/2017
Posts: 286


Since my DH’s hand fidgeting is accompanied by sweaty palms, our Dr. said it is caused by anxiety. He also clicks his thumb and fingernails. There are toys/gadgets that are recommended for this fidgeting, but my DH’s favorite activity to occupy his hands is to play with his portable/travel razor. He rotates the cover back and forth, and clicks it on and off. The vibration soothes him. He carries it in his pocket everywhere he goes, and shows it to everyone. At least it’s an age-appropriate gadget. It brings him more comfort than his anti-anxiety meds do.
SSHarkey
Posted: Monday, August 12, 2019 11:02 PM
Joined: 3/15/2018
Posts: 150


My husband turns his feet side to side his sideways or toe up/done constantly. It started in small spurts but now it’s almost continuous. He’s not aware of it at all. When it first started he would stop it if I brought his attention to it. But now I just try to separate myself enough to keep from being bumped. If we’re out at church or a meal he continues it under the table or at the floor. When he speaks sitting down it gets exaggerated. Odd. I think it’s just part of the short circuiting in the brain.
LadyTexan
Posted: Tuesday, August 13, 2019 4:48 PM
Joined: 12/21/2018
Posts: 188


Thank you all for sharing your experience. 

DH is not aware of the pilling or the tremor. It doesn't seem to bother him or cause him pain. I'll let you know what the geri-psychiatrist says.  


ScottyTom
Posted: Tuesday, August 13, 2019 7:52 PM
Joined: 5/12/2016
Posts: 51


Don't know if this is the same behavior, but my wife pulls at her hair.  Not severely, just sort of reaches up to the top of her head and strokes/pulls the hair.  Her hair dresser has noticed it as it is enough to cause some hair loss.  If I mention it, she will stop.  I assume this is an obsessive behavior that comes with AD.
Army_Vet60
Posted: Tuesday, August 13, 2019 8:19 PM
Joined: 6/21/2019
Posts: 369


I would recommend you take him to the doctor for a Parkinson's evaluation.
 
If he has Parkinson's and is taking Namenda or Donepezil, he's on the wrong medication. There are Parkinson's specific meds.
 
Some Parkinson's symptoms mimic AZ, but not tremors and pilling.
 
 LadyTexan wrote:

DH has long been pilling his fingers where he rubs his thumb against the middle and index finger. DH also has a subtle but noticeable hand tremor. The pilling and the tremor are more frequent and less subtle now. I'll ask the geri-psychiatrist about it when we see her again in three weeks. In the mean time, I am looking to you all for info. If you have observed this in your loved one, was it indicative of something in addition to AD, such as Parkinsons?

 



jfkoc
Posted: Wednesday, August 14, 2019 10:04 AM
Joined: 12/4/2011
Posts: 17184


https://www.healthline.com/health/parkinsons/pill-rolling-tremor

My husband was diagnosed with PD and never had a tremor. It is important to have a correct a diagnosis as possible because the med are not the same. This is not always easy to do.

https://www.davisphinneyfoundation.org/blog/what-are-the-non-motor-symptoms-of-parkinsons/


JJAz
Posted: Friday, August 16, 2019 3:57 PM
Joined: 10/21/2016
Posts: 2422


LadyTexan wrote:

DH has long been pilling his fingers where he rubs his thumb against the middle and index finger. DH also has a subtle but noticeable hand tremor. The pilling and the tremor are more frequent and less subtle now. I'll ask the geri-psychiatrist about it when we see her again in three weeks. In the mean time, I am looking to you all for info. If you have observed this in your loved one, was it indicative of something in addition to AD, such as Parkinsons?

 

Pill rolling and tremor are both Parkinsonism symptoms.  Since DH already has a dementia diagnosis, he should be evaluated for Lewy Body Dementia.  It is the 2nd most common type of dementia (after AD) and combines dementia symptoms with Parkinsonism symptoms.  It's vital to get a good diagnosis because LBD patients often have severe reactions to certain common medications.  It can be life threatening.

Blessings,

Jamie



Cindaluhu
Posted: Sunday, August 18, 2019 3:46 PM
Joined: 2/7/2019
Posts: 2


My LO doesn't do true piling movement but moves his hand (sometimes right, sometimes left) in a circle. Sometimes the circle is quite wide. He does this if he holds a spoon or fork or if he holds a pen. Sometimes it's just as he's sitting there holding nothing. When he reads on his ebook he also does this an it makes me nuts to see him trying to read this thing while he's waving it in circles. The neurologist asked him about it and he said he just does it and doesn't know why so the neurologist told me "oh, it's just a comforting mechanism." (This is the same doc who told me he only has Mild Cognitive Impairment but has him on Aricept and Namenda!) This was in front of my LO but I wonder. It's so pronounced and seems to be related to the dementia. Does anyone else's LO make hand circles?
SSHarkey
Posted: Sunday, August 18, 2019 7:03 PM
Joined: 3/15/2018
Posts: 150


Now that you mention it, yes! He will roll it at the wrist. Not often, but I know he’s done that for a few years.
Mike&BrendaTX
Posted: Sunday, August 18, 2019 7:13 PM
Joined: 7/10/2017
Posts: 603


Lady Texan,

Our neurologist told me well ahead of when it started, that AD patients often develop "parkinsonism," which is a few symptoms that mimic Parkinsons, but are not.  They are part of AD.  For example, my wife developed an "intention tremor" in her right hand.  That means her hand and arm shakes when she intends to grasp something, but once she has it, the tremor stops.  I've been told that Parkinson's patients have a tremor that starts when they hold something, no so much before.  Also, the slow shuffling steps of Parkinson's are a part of late AD, too.

Don't know much more about it, but some of these symptoms that look like Parkinson's are just a part of the awful disease called AD.

Mike