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Anyone here had pneumonia and recovered?
a_step@a_time
Posted: Thursday, February 28, 2019 3:26 AM
Joined: 11/21/2015
Posts: 207


Ive been told to take a slew of meds. I think Im almost cleared, im mostly quiet, but have difficulty breathing at night and albuterol not as effective. Wondering what others have done to recover. I cant take flovent inhaler, my body gags on it. I dont like the unclear instructs from the doctor office.
Jo C.
Posted: Thursday, February 28, 2019 9:33 AM
Joined: 12/9/2011
Posts: 10163


Dear One Step:   Yes; people have indeed recovered from pneumonia, but it does take time AND it often takes seeing one's physician in followup, which becomes even more important if symptoms change, worsen, or if there is ongoing difficulty and questionable improvement or medication problems.

I am not a doctor, so what I Post is based on the information you have provided.  It appears that a followup appointment with your doctor may well be warranted and in your best interests.

Reasons:  

- You are having difficulty breathing at night

- One of  your present medications is not effective in helping your breathing,

- You are having difficulty tolerating one of your meds and may not be taking it

- You are unsure of your medication instructuctions

- Your physician will want to assess your condition and if medically  necessary, perhaps even adjust medication.  Only a physician will be able to adequately determine this.

- If you do not clearly understand or retain instructions, ask for them to be put in writing for you to take home.

Let us know how you are doing, we will be thinking of you and send best wishes for your comfort and excellent recovery.

 J.


Iris L.
Posted: Thursday, February 28, 2019 2:06 PM
Joined: 12/15/2011
Posts: 16143


Step, ditto everything Jo C. said.  People can recover from pneumonia.  Pneumonia is not a cold and will indeed require more time for healing.  Changes in medications may be required due to complications.  You must remain under your doctor's care with close follow-up.  Follow up today!  Stay hydrated.

 

Iris L.


a_step@a_time
Posted: Thursday, February 28, 2019 6:30 PM
Joined: 11/21/2015
Posts: 207


Thanks! I was feeling like the pesty patient. Yes, been having adverse reaction to meds. However they are reluctant to give alternatives. I will just need to keep sounding my horn. Thank you again. Wish there was a webpage for stages of recovery and symptom resolution
Iris L.
Posted: Thursday, February 28, 2019 6:47 PM
Joined: 12/15/2011
Posts: 16143


Step, if you are having adverse reactions to medications, you need to let the doctor know.  I cannot copy and paste on my cell phone.  But you can google " pneumonia+recovery timeline" and you will get an approximate answers.  

 

Iris


a_step@a_time
Posted: Friday, March 1, 2019 1:23 AM
Joined: 11/21/2015
Posts: 207


Thank you! I was missing the word timeline. Amazing that an additional word could help so much!   i did tell the doctors of adverse reactions. Dont think they believe them all. Wish albuterol worked better. But i have inflammation/swell at this point and i gag on flovent.   Wish something OTC could help.


a_step@a_time
Posted: Friday, March 1, 2019 1:39 AM
Joined: 11/21/2015
Posts: 207


Urgent care gave me a 6 tablets of prednisone. Is definitely helping. 2 per day. Wonder why short dose.
Iris L.
Posted: Friday, March 1, 2019 1:41 AM
Joined: 12/15/2011
Posts: 16143


A nebulizer or a spacer can help in the delivery of the medication.  You must work with your doctor if you are not getting results.  On the other hand, you must give your lungs time to heal.  Stay hydrated, eat foods with vitamins A and C, and rest.

 

Iris


a_step@a_time
Posted: Friday, March 1, 2019 2:42 AM
Joined: 11/21/2015
Posts: 207


Thank you for the ideas. I'm surprised they didn't mention it. Just told me to stop flovent.  However I had a nebulizer of albuterol early last week at the doctor office, even after inhaler, and it definitely helped get more mucus out that day.  Been having more moments of calm but night time is my scare. By 5am i can hardly breathe.  Wonder if I need a nebulizer at home.
BethL
Posted: Friday, March 1, 2019 9:14 AM
Joined: 3/25/2015
Posts: 577


Maybe you need to see a different dr. for another opinion. It's not normal to have such difficulty breathing. Pulmonolgists ar specialists in lung disorders.
Iris L.
Posted: Friday, March 1, 2019 4:21 PM
Joined: 12/15/2011
Posts: 16143


The weekend is coming up.  You need to be able to get the medication delivered to your lungs.  Can you get access to a nebulizer to use at home?

Iris


a_step@a_time
Posted: Friday, March 1, 2019 5:43 PM
Joined: 11/21/2015
Posts: 207


I called urgent care today to ask for a few more tablets. They told me the medication should stay in my system beyond Rx. But i asked for a couple more tablets, as i may not be able to get to doctor til tues or wednesday. They said they sent more to pharmacy. I have yet to hear from pharmacy for pickup. Thank you for your compassion and understanding my issue.
a_step@a_time
Posted: Friday, March 1, 2019 5:48 PM
Joined: 11/21/2015
Posts: 207


The prednisone is definitely helping me to breath,. Helps reduces inflammation.
a_step@a_time
Posted: Saturday, March 2, 2019 3:58 AM
Joined: 11/21/2015
Posts: 207


I have phlegm that is stuck in my throat mostly white to clear and neither goes up or down with 400mg guifenison.  Gargle doesnt reach deep enough. Feels like choking if i cough wrong. I am wondering if taking 800mg guifenison is ok.  Some otc bottles say they have 1200mg so i am guessing so. Took my prednisone perhaps too late but i think it may be starting to work. I feel so misguided by my doctors.
a_step@a_time
Posted: Saturday, March 2, 2019 4:22 AM
Joined: 11/21/2015
Posts: 207


I have eucalyptus oil on my chest and that is not helping much.

I sure fear night time.


Iris L.
Posted: Saturday, March 2, 2019 10:05 AM
Joined: 12/15/2011
Posts: 16143


Hello Step. Nights will be tough.  You will produce phlegm for a while.  Keep yourself hydrated.  Use a humidifier if you have one, or keep a pot of water near you for the moisture.  Rest when you can.  Are you there alone?

 

Iris


a_step@a_time
Posted: Saturday, March 2, 2019 10:48 AM
Joined: 11/21/2015
Posts: 207


I struggled to sit upright at 5am.  I was so tired.  Still propped with a pillow.  At one point I worried took too much guifenison was dry. Am humidifying. Small space gets sticky. I think I waited too long to take prednisone. Storm front coming through tonight. I scared.

Yes, I live alone

Sent note to a family member to check in on me. Not much empathy.  


Jo C.
Posted: Saturday, March 2, 2019 12:37 PM
Joined: 12/9/2011
Posts: 10163


It is really important above all else, to absolutely, specifically follow the directions for taking Prednisone exactly as your physician has prescribed.

 This is not a drug that is taken, "as needed."

We are not licensed physcians, and rather than taking advice of us lay people as gospel, it really is necessary to take advice from one's physician.

One does not abruptly stop Prednisone or change how one is taking it, if one stops the med abruptly without tapering to the smaller daily doses until the prescription is finished, one may possibly have a negative effect.

NOTE:  The most common side effect of Prednisone, in about 70% or so of people, is insomnia and it can be really strong insomnia.    This is not unusual and may possibly be part of the nighttime problems you have been having while still taking this medication.   Usually, it is recommended to take the prescribed daily dose in the early morning and to take it with food to help prevent stomach distress; you can call your doctor to clarify this if you have been taking it at a different time.

Sometimes, taking the med early a.m. can help a bit with the insomnia; other times it may not.  FOLLOW YOUR DOCTOR'S INSTRUCTIONS is the Golden Rule.

It is NOT good to take a sleeping pill; even an OTC sleeping aid to try and overcome insomnia at this point without your doctor's advice; this may possibly cause other problems when mixing drugs and when there is a respiratory issue.

Prednisone does not directly suppress the cough nor does it thin mucous.   It can sometimes help with inflammation of bronchial tissue, BUT Prednisone is simply not renewed over and over and over again; that is not what is intended with a URI; and also being  a corticosteroid, it's long term use may cause other problems.

A person does cough, sometimes for weeks after having pneumonia or other URI; but  from what you describe to the degree you have been experiencing ongoing problems; it would be far best for you to see your physician in person; one cannot properly examine nor assess adequately over the phone; that must be done in person.  The doctor, after exam, if he/she feels it necessary, may possibly order a followup CXR to determine how your lungs are doing and perhaps make an adjustment in medication.

I am truly sorry you continue to have the problems you have been having, and am hoping that you will soon feel much better and that you do make an appointment to see your physician as soon as you can.

 J.


a_step@a_time
Posted: Sunday, March 3, 2019 12:33 AM
Joined: 11/21/2015
Posts: 207


Thank you. I took the med when i remembered to take it. I now have an alarm set. CRX was done at time of prednisone rx this week. The doctor has a list of all my medications. I appreciate your details.
a_step@a_time
Posted: Sunday, March 3, 2019 12:37 AM
Joined: 11/21/2015
Posts: 207


And this Rx is very confusing for me, as it was not prescribed with tapering as has been in the past by other doctors.
Iris L.
Posted: Sunday, March 3, 2019 1:20 PM
Joined: 12/15/2011
Posts: 16143


How are you doing this morning, Step?  I hope you are doing better.  Were you able to get your medications on time?  Are you eating and drinking and resting?  It takes time to heal.

 

Iris


a_step@a_time
Posted: Sunday, March 3, 2019 7:42 PM
Joined: 11/21/2015
Posts: 207


Hi iris, thank you for asking. I did take my meds on time but still struggled to breathe at 5am. I took a little more guifenison and it helped. 

I think I over did it today.  Needed to do laundry and some housework and dragging.  Will feel good to have clean sheets.


Iris L.
Posted: Sunday, March 3, 2019 8:03 PM
Joined: 12/15/2011
Posts: 16143


My rheumatologist introduced me to pacing.  Do a task, rest, do another task, rest again.  I found that this alternating tempo allowed me to complete more work.  I worked about 10 minutes at a time.

I hope you have a better night tonight, Step.

 

Iris


a_step@a_time
Posted: Sunday, March 3, 2019 8:38 PM
Joined: 11/21/2015
Posts: 207


Good advice.  Thank you and wish you good rest too.


Iris L.
Posted: Monday, March 4, 2019 11:26 AM
Joined: 12/15/2011
Posts: 16143


Good morning, Step.  How are you doing today? I hope you are doing better.

Iris


a_step@a_time
Posted: Tuesday, March 5, 2019 4:15 AM
Joined: 11/21/2015
Posts: 207


Hi, I muddled along again today.  Called my PCP office and told them the lower dose guifenison was not enough. They said it is fine to take more and that I could continue the nasacort (I also recovering from sinus infection).  I went back on ER mucinex.  I think these changes are helping me.  It is not 5am yet, but I will find out this morning how well this lasts.  Thank you for checking on me!
Iris L.
Posted: Tuesday, March 5, 2019 9:48 AM
Joined: 12/15/2011
Posts: 16143


Good for you, Step.  Stick to your schedule and keep healing! 

 

Iris


Vik
Posted: Wednesday, March 6, 2019 8:55 AM
Joined: 2/26/2019
Posts: 172


DId they get u on a neubulizer?  Thats the only thing that helped me.
alz+
Posted: Wednesday, March 6, 2019 11:02 AM
Joined: 9/12/2013
Posts: 3549


Step! I had not read your post before now and good thing you came here and got the advice you did!

I had pneumonia 40 years ago and almost died from it. Lost appetite and weighed about 95 lbs by the time I went into hospital. It took me years to be able to walk a mile again and I was unable to do chores at home with 2 kids for at least 12 months.

My lungs never functioned well after that but I managed to keep working on building strength and 10 years ago I was walking 3 miles a day happily.

Hope your recovery starts to pick up a little speed, it can be really depressing. I am not getting over a flu and the lung congestion etc is maddening. Still very weak so every time I walk dog to the corner and back is a victory. I put Tiger Balm on my chest and a hot pack one night and it seemed to help break up the mucus which I am still coughing up.

I feel for you. Keep standing up for yourself - living alone and doing this is incredibly hard and you are doing a good job advocating for yourself. Wish someone could do it for you!

*****

what you describe trying to get help from your medical people is nuts and common.

I have found being older, female, and with Alz I need much smaller dose than I am usually prescribed. The full dose of antibiotic, the new odd antibiotics, and the antivirals at prescribed dose almost killed me. I am NOT saying anyone should go against doctors orders but when the meds make you feel like you can't breathe or move or worse AND the condition is not improving - and they aren't even seeming to grasp the seriousness of your condition! what are you supposed to do?

My doctor DID figure out I got well on 1/2 or 1/3 dose and said to do what works. No one else would have done that for me, I had to try to save myself.

*****

great coaching by people on board. Life saving stuff.


Iris L.
Posted: Wednesday, March 6, 2019 12:31 PM
Joined: 12/15/2011
Posts: 16143


It's important to monitor the course of treatment closely, especially for this type of illness when changes can happen suddenly.  How are you today, Step?

 

Iris


a_step@a_time
Posted: Friday, March 8, 2019 5:47 AM
Joined: 11/21/2015
Posts: 207


 Wow, im having problems posting.

I took a nebulizer treatment at doctor office about a week ago and that helped.

Thanks aLz+ and I wish you fast recovery.  I have found Chicken broth and eating chicken can do wonders.  Good luck with your move!

Trying different things for the 5am struggle. In addition to more guifenison. A friend mentioned my anxiety so I took half of a klonopin.  I also had another friend mention echinacea and I remembered I had echinacea goldenseal in cabinet. Took 1 capsule. Seems to have helped the airway problem to survive.  But tomorrow may have different results.

I am grateful to breathe and be alive.  The community has been awesome. Thank you so much for your concern.  I hope I have continued luck tomorrow.


alz+
Posted: Friday, March 8, 2019 9:56 AM
Joined: 9/12/2013
Posts: 3549


Step -

I hope each day you have a chance to breathe better and start being able to sleep again.

The drugs stuff  is complicated, you want to do what doctor tells you but when you experience the drugs taking you down and mention it, they don't seem to care or believe it is just too much to handle.

You are doing great and the board people - a doctor and highly skilled nurses - seem to carry a lot of through dangerous waters.

Just be prepared to take more time to heal and recover. If you need to sleep and you can sleep, go for it. Drink lots of water. Finding food you want to eat, when ever I get a little urge of hunger I put something in.

Plan is to walk 1 mile loop with dog by Sunday. It is slow going here and maybe you will bounce back faster than I am imagining, but it takes some time and try to give into healing at your body's rate.

I have Lawrence of Arabia saved and other movies for when I am bedridden. One ting about ALZ I like is I can watch movies over and over and every time it is like seeing it for first time.

****

when I took care of my mother after she had a stroke I was given prescriptions to fill. The pharmacist told me 2 of them, used together, were toxic. I called hospital and told nurse, left message for doctor. Never heard a word. The pharmacist saved her life.

(They also told her her legs would be swollen the rest of her life. I gave her 2 lymphatic massage treatments and she did not have swollen ankles again.)

Not the only time a pharmacist has signaled me drugs prescribed were contraindicated or toxic in combination prescribed. I think we have to double check all the medical people and just consider a necessity of our times.

love and courage

 


Iris L.
Posted: Friday, March 8, 2019 12:17 PM
Joined: 12/15/2011
Posts: 16143


I wrote a long post and lost it.  I'm not going to try to remember it.  Step, I'm glad you are doing better.

Iris L.


a_step@a_time
Posted: Friday, March 8, 2019 10:02 PM
Joined: 11/21/2015
Posts: 207


 Thank for checking back. 

Iris, no problem. I appreciate the thoughts!

Alz+ the pharmacist saved me too!  I thought I was just battling a cold and they refused to answer any questions about my prior albuterol prescription.  So they pretty much forced me to the doctor. I wish you strength at this time.  Some meds I hesitated to take at first are helping me now. So I am glad the doctors office is answering all my questions.  The nurse practitioners are so appreciated too.

I hope to survive again tonight with the new information from my friends.  They only sent a couple texts but I'm ever so grateful.  Lots of Halls vitamin C drops and Ricola honey lemon have helped too.  Still doing chicken broth. 


a_step@a_time
Posted: Sunday, March 10, 2019 1:04 AM
Joined: 11/21/2015
Posts: 207


So I backed off the guifenison today to that 400mg thinking I was feeling better although fatigued. Not coughing as much. Well it is night time and the stuffy feeling is arising. So I went back up on the guifenison and wow, I feel more open in the airways. I guess I need to keep the dosage up during the day for better recovery.  Just venting my thoughts. Thanks for being here.