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Lewy Body Dementia(1)
Posted: Thursday, August 4, 2022 9:20 PM
Joined: 8/4/2022
Posts: 1

Hello.  I am new to this message board.  The doctors believe my LO most likely has Lewy Body Dementia.  Does anyone else have any experience with this?  I am looking for activity ideas to help fill my LO day with purpose.  Currently, we enjoy walks, cooking, folding towels, playing board games and throwing laundry into the washer and drier.  Of course all these activities are modified and I help my LO accomplish these tasks.  My LO is in mid to late stages of the disease and has difficulty with fine motor skills and vision, which I understand is common with Lewy Body Dementia.  In addition, my LO mobility is diminished to the point of slow shuffling for small distances before becoming tired.  I would welcome any suggestions on activities!  Thanks in advance.
Posted: Friday, August 5, 2022 7:44 AM
Joined: 8/5/2022
Posts: 3

Hi: Just signed up today. Mom and dad have been living with my husband and I for 25 years. Mom got dementia about 5 years. She broke her femur 4 years ago and after the operation her dementia got worse. This past April she broke her hip and once again the dementia is worse. It is a lot of work to care for her because my dad who is 88 years old can't accept the fact that she has dementia. They have been married for 63 years. My dad needs help but is convinced he doesn't. If he didn't get her all wound up caring for her would be so much easier. We want to keep them at home together as long as we can but this is taking a toll on both my husband and myself.

The Veterans Administration said they can't help dad because he does not have dementia (but her really needs help) but I need to get him to a in-person support group. One to get him out of the house and two so he can hear what he is not supposed to be saying and doing from a third party. Hearing it from his daughter is not working.

Anyone else with this type of issue?


Posted: Friday, August 5, 2022 9:56 AM
Joined: 12/4/2011
Posts: 21025

My husband's diagnosis MCI>Parkinson's>LBD. Your husband's shuffle may be Parkinson's as well. It would be good to talk to the neuro about this.

You are really doing well with the activities. You could try paper sorting (old papers), photo sorting, easy puzzle and some art work (colored pencils, watercolors, brushes, decent paper, crayons) scrapbooking with stuff you are willing to loose. We went through a million old photos and threw out the ones that we could not identify the people. Planting seeds, sorting books, wiping our kitchen drawers....