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Spouse/Partner Caregiver Forum
New and needing to connect
quote:Originally posted by DonM:I am sorry to say that I sometimes give her “comfort food” as it gives her some sense of joy in her rather joyless existence. If you asked her what her main problem was she would say her constant pain. I am not sure she would say anything about her memory loss. When we do talk about memory she says, “I worry about your memory. You get things so screwed up.” It is usually after she has convoluted or distorted some important facts about our children and their families and I try to straighten it out.How do the rest of you deal with that? Do you try to lovingly and gently redirect and correct the facts or just let it go? Some things I can’t let go as they are detrimental to our children or have to do with upcoming events that she needs to be a part of.
quote:Originally posted by inquiring mind: In my readings here or some links from here, I read that the average life of an Alzheimer's patient is something like five plus years after diagnosis.
quote:Originally posted by Mimi S.:I think it was as recent as 20 or so years ago, most med students learned little about AD in their training. It was not expected that they would likely ever have such a patient.
quote:Originally posted by Cathy J. M.:Isn't a glucose level of 168 high? Is your wife taking insulin?She is taking insulin and we are having a hard time keeping the numbers down. We are actually pleased when it is around 150. You're being too patient, I think, about waiting for the June appointment with the neurologist. Call! Let him know what's going on and ask for an emergency appointment. Most doctors have assistants who have more flexible schedules and who can help with emergencies. As time goes on, there may be more emergencies so you need a relationship with a doctor who will handle them with you right away.I am writing up some notes to take by the neurologist's office. The appointment is the 2nd of June so I don't think I will have the date changed. Sometimes it helps to calmly back away and let the loved one cool off a bit. If that doesn't work, call 911. It may be that the only way she gets to the neurologist or a geriatric psychiatrist is via an ER visit from 911.I'm sorry I don't remember if you have a Power of Attorney for Finances and also one for medical help. Both are important.I do have all the Power of Attorney things in order. Thanks for asking.You've put your finger on one aspect of the problem. She sees that you're frustrated and worried about what to do. Our loved ones respond best to confidence -- but how are we supposed to learn to be confident when we're baffled about what to do? It's very hard! I get confidence partly from studying books about how other caregivers handled situations that baffled me. For example, one tip -- for an emergency like the one you described -- is to leave for the cooling off period and completely change your appearance -- different shirt, hat, etc. Come back in another door. Act confident and happy.Study the Naomi Feil books and DVD too. They're not easy to grasp so start now; you need them! Meanwhile, call the neurologist. With the diabetes as a complication, you can't wait till June.
quote:I do have one question, though. In my readings here or some links from here, I read that the average life of an Alzheimer's patient is something like five plus years after diagnosis. I hope I didn't misunderstand what I was reading. But I was wondering if there is a similar statistic for the efficacy of various medications such as Namenda, Aricept or Exelon?