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Originally posted by: Dorinne
I am praying for you, I hope the meds for pheumonia helps and that he starts to recover.
This dementia is such a cruel disease. I pray that he does better in the coming days.
(Hugs)()
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Originally posted by: JAB
Oh, sveti ... sending many soft hugs and prayers!
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Joined: 1/14/2015
Posts: 40463
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Originally posted by: sveti
Hi friends,
He is going down fast, I am hanging in there as best as I can. I don;t know if it is the pheumonia or the end. Please pray fror me.
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Originally posted by: meeko11
sveti I wish peace for both of you.
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Originally posted by: sf
sveti, you're both in my prayers, I really do believe that the Lord will bring comfort to you both.
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Originally posted by: Memaw2287
sveti, I am so very sorry for the struggles you and he face. I will tell you that my Mom is recovering from pneumonia. She was hospitalized on October 1. We truly thought it was the end. On a few occasions, she spoke the names of family members who have passed on, names she has not even known in a very long time. We had prepared ourselves for what appeared to be an inevitable outcome. But, life being what it is, here we are, two months later, and Mom has healed from the pneumonia. Any illness can knock the wind from the sails of our loved ones. We're still on a roller coaster as far as good days and bad with her eating, and she is now wheelchair bound, but she does not appear to feel bad. Oddly enough, all of the issues that led to her taking Seroquel have vanished and she has been weaned from it. But it has taken two months just to come this far back. It doesn't happen quickly.
It must be taking every ounce of strength you have to carry through these days. I hope that you have contacted hospice. Whether or not it is his time, hospice can offer you support and assistance. You need that for yourself as well as for him. I'll say it again... you need that for yourself as well as for him.
Going through these things with my Mom is hard enough. I cannot imagine the toll it takes on you. Please call on any and every resource you have available to help you through. And know that you have prayers from all over the country following you both.
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Originally posted by: Frieda
Sveti Call the Hospice, I did and I am glad.
My husband went so fast down. My prayers are with you
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Originally posted by: folly
Sveti, my prayers and good thoughts are with you and your husband. You keep hanging in there.
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Originally posted by: JAB
sveti, we're very worried about you, of course. Whenever you have time and feel up to it, please let us know how you're doing.
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Originally posted by: LCB
Sveti, please call Hospice. We waited too late on our mom and she (and we) suffered needlessly. She only had hospice at home 5 days, then got violent and was transported to Tranquility House, where she went on home 10 days later. They were wonderful to her and to us. they will be to you also. Holding up a star for you and LO.
LCB
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Originally posted by: Jim Broede
Your husband needs you more than ever now. Try to stay strong. For him. For yourself. --Jim
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Originally posted by: jfkoc
You are never out of God's hands and you are in our hearts 24/7. We are here for you as you go through this difficult time.
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Originally posted by: kitty3
Sveti, Just one more who is thinking of you and wishing for the best.
Blessings,
kitty
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Originally posted by: jfkoc
I am crossing my fingers!!!
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Originally posted by: sveti
We are hanging in there. He is not eating much lateley, but strangley enough he looks better today. Only God know and I trust that he will do the right thing. He striped all of his clothes off last night and informed that he was going to swim in the lake. He fell asleep after that (for the first in about two weeks)and slept pretty much all night.
I did get out of the house today, I went to church to see my grand-daughter perform in the Christmas Musical.
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Originally posted by: lurk
I left my husband tonight also to watch my MS daughter perform in a Christmas choir concert. Oh, it was so worth it (he enjoyed watching Funniest Home Videos much more than he would have enjoyed the concert.) I hope you got as much renewal from your outing as I did.
I'm following your progress and are keeping you in my prayers. Sure glad the Lord knows who "Sveti" is since I mention you by name. 
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Originally posted by: arteche
My prayers are with you and hugs , hang in there
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Originally posted by: JAB
Thank you for keeping in touch. Let us know what the GP has to say.
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Originally posted by: Memaw2287
sveti, just wanted you to know that I'm thinking of and praying for both of you.
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Originally posted by: Rkg
sveti, Hang in there, I know pneumonia is such a hard thing for even healthy people to get thru, I hope he's resting better and getting well. But what ever his journey at this time is destined to be, may it will be peaceful.
I am glad to hear you were able to go to your DGD's Christmas Musical. I hope you enjoyed.
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Originally posted by: sveti
thank you, I can use all of the prayers I can get. I am taking him to the doctor on WEdnesday and to a different neurologist on Thursdays. He does look better and his appetitie is slowly increasing. However, he still talks about joining his parents and his dead brothers. Only God knows what is going on and I trust that he will do the right thing.
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Originally posted by: sveti
Update,
He actually got up today with some help and went to the bathroom all by himsaelf. Had a good breakfast and after I clened him up (shower,shave) he is back on the couch talking to his "friends". Physically he is here,menthally he is in his own world. I take him to see the GP tomorrow.
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Originally posted by: Annetta
Sveti; - hang in there. Prayers are going up for you from everywhere - and many, many hugs. I have been totally tied up - husband is now in VA hospital for med changes. VA has now diagnosed him with Lewey Body Dementia??? I'm trying to find out about that... They promise that med changes will work wonders...
I'll give you a call - or you call me??
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Originally posted by: Rkg
sevti, Just checking on how everything is going? You haven't been around for a couple of days so we get worried.
I hope the delusions are getting under control. I know how bad they can be when they are sick. Having experienced my FIL delusions, I can say from experience when my Dh was so sick the delusion issues were far worse! Hopefully they have a handle on the pneumonia. Which will go a long way to helping the delusions slow down to (normal  dementia delusions) and not be compounded as well as let him get more rest. Hope things are going better..........
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Originally posted by: JAB
quote: Originally posted by Annetta:
Sveti; - hang in there. Prayers are going up for you from everywhere - and many, many hugs. I have been totally tied up - husband is now in VA hospital for med changes. VA has now diagnosed him with Lewey Body Dementia??? I'm trying to find out about that... They promise that med changes will work wonders...
They do??? If he's been on an antipsychotic, LBD patients can be extremely sensitive to those and not react at all well. Is taking him off an antipsychotic the med change they're talking about?
Lewy body dementia, see:
http://alzheimers.boomja.com/L...%28LBD%29-26297.html
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Originally posted by: cloudvacation
Saying a prayer for you now.
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Originally posted by: JAB
Heck, yes, it is! Oh, my...
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Originally posted by: Annetta
Yes, JAB...
He has been on Haldol and other meds. This Dr. said that is all wrong..
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Originally posted by: sveti
Hello everyone,
Not much new here. Saw GP yesterday and he tells me that pheumonia is getting better, but hellucinations are not. Saw the new neurologist today (turns out that he knows the one we went to, former partner) not much hope there either. He increasaed his seraquel and told me if that does not work to call him and he will look for something different. Well, I gave him the larger dose tonight and it's not working. Neurologist looked at me after he checked DH and asked me if I had DNR and he told me if I did not I should get one soon. Appetime is still very poor and skin color does not look good. I am trying very hard to hang in there, but at times I ask God how much more does he want me to handle. I pray that I get an answer soon. Thank you for all of your prayers.
Annetta,
I am too tired tonight but I will try to call you tomorrow evening. I'll try to call you around seven o'clock your time.
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Originally posted by: Annetta
quote: Originally posted by JAB: quote: Originally posted by Annetta:
Sveti; - hang in there. Prayers are going up for you from everywhere - and many, many hugs. I have been totally tied up - husband is now in VA hospital for med changes. VA has now diagnosed him with Lewey Body Dementia??? I'm trying to find out about that... They promise that med changes will work wonders...
They do??? If he's been on an antipsychotic, LBD patients can be extremely sensitive to those and not react at all well. Is taking him off an antipsychotic the med change they're talking about? Lewy body dementia, see: http://alzheimers.boomja.com/L...%28LBD%29-26297.html
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Originally posted by: sveti
Hi Jab,
He has got five more days of antibiotics, but I don't believe the hallucinations are due to the antibiotics. He had those before and has had them for a long time. I believe that antibiotics are congtributing to them but are not the couse of them.
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Originally posted by: JAB
sveti, how much longer will he be on antibiotics for the pneumonia? Those can sometimes cause all sorts of bizarre side effects in our loved ones, including hallucinations.
Sending many gentle hugs...
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