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Anonymous
Posted: Tuesday, January 17, 2012 5:39 PM
Originally posted by: Cathy J. M.

Not sure what test the neuro is using, but I'm skeptical about the idea that "normal progression is 3 pts/year." It strikes me as an odd idea. AD patients can go back and forth a lot in a day or two, and I don't think the idea of a "normal progression" is at all useful.

Don't panic. Reassure your husband that he's actually doing fine. Bring in extra help to fix the house so he can't wander, and to help you get things done so someone keeps a closer eye on him. There's no way you can watch him 24/7 and also prepare meds, food, take a shower, etc.

Is your husband on both Aricept (or an equivalent medication) and Namenda?
Internal Administrator
Posted: Tuesday, January 17, 2012 5:39 PM
Joined: 1/14/2015
Posts: 40463


Originally posted by: Annetta

Husband wandered and got lost last week; had two disasters at home (all this time - I'm at home - looking after him???) - all NEW events. Made appt. with his neuro for yesterday. Neuro said he tested a 25 in Jan. 2010; and a 17 yesterday. Normal progression is 3 pts/year - so, that's almost 3 yrs in only 10 months. Did a CT scan an blood work-up.... no results yet. Has anyone else had this? Stroke? Mini-strokes? HELP. He is 87 - and otherwise in good health...
Anonymous
Posted: Tuesday, January 17, 2012 5:39 PM
Originally posted by: Annetta

I just got the call from the Neuro - and the CT scan did not show any signs of stroke, etc. So, guess I'll just wait and see... I'm baffled and worried...
Anonymous
Posted: Tuesday, January 17, 2012 5:39 PM
Originally posted by: ESaville

quote:
Also on Haldol, which aids quieter sleep at night (instead of fighting the war and yelling and flailing arms and kicking feet).


Annetta, my husband has a difficult case of PTSD thrown in with his dementia Dx, and sometimes, around aniiversaries of battles, etc., his capabilities crash for awhile. Has your husband been evaluated for PTSD & depression?
Bless your heart, hold on tight. We're with you.
Anonymous
Posted: Tuesday, January 17, 2012 5:39 PM
Originally posted by: invstr55

So sorry for the progression. I wish my wife was still 17,, her last score was 6.. progression is not predictable,, sometimes slow sometimes like falling off a cliff.
Anonymous
Posted: Tuesday, January 17, 2012 5:39 PM
Originally posted by: Annetta

He's only on Namenda - can't take Aricept due to very irregular heart beat (has had that for YEARS)... Also on Haldol, which aids quieter sleep at night (instead of fighting the war and yelling and flailing arms and kicking feet).
Anonymous
Posted: Tuesday, January 17, 2012 5:39 PM
Originally posted by: Rkg

Annetta,


I too wonder about "normal progression" I believe each individual progresses differently. I would also add that, even if there is a statistic on progression you have to factor other things into the equation. Such as sadness, illness, anxiety etc play a huge factor on how well our LO's test! My DH basically flunked the mini mental a few days after his father passed away. It was a mess! But his next mini mental was back up there. So in my opinion one mini mental test does not tell where the journey is. We have to take in all the factors before deciding which direction it's going. Not saying he's declined rapidly as well as not saying he's fine. You just have to take all the factors in first. As Cathy said, Don't panic. Once you have all the factors then you can only understand where you might be in this journey.

Yes stroke, Mini strokes, as well as a whole host of other health issues such as a UTI could attribute to decline. And because as you say it's "new" events, I do hope they did a UTI test on him. If not I would request one. Hang in there. I know this is hard.
Anonymous
Posted: Tuesday, January 17, 2012 5:39 PM
Originally posted by: Rkg

quote:
Originally posted by Annetta:
I just got the call from the Neuro - and the CT scan did not show any signs of stroke, etc. So, guess I'll just wait and see... I'm baffled and worried...


Please have him checked for a UTI!
Anonymous
Posted: Tuesday, January 17, 2012 5:39 PM
Originally posted by: JAB

Annetta, hi.

First, as Cathy says, MMSE scores can bounce around all over the place. What you observe about his function at home means a whole lot more. Don't go haywire about that!

Haldol is not such a great drug to be taking as a sleep aid. It's usually only given to elderly dementia patients for short periods of time, to get past a crisis, and it could be causing adverse side effects. I wonder ... if your neuro is receptive to new ideas, you might ask him about prazosin.
http://alzheimers.infopop.cc/e...=309307664#309307664
Anonymous
Posted: Tuesday, January 17, 2012 5:39 PM
Originally posted by: Cathy J. M.

Sometimes this brief MMSE test is repeated; it just takes a few minutes (ten?) so it's not at all like the full day of testing done at the initial workup.

My partner has never seemed to mind the MMSE test; in fact, she kind of enjoys it. It's probably been at least six months since anyone's given her this test, though. You're right that it's not very meaningful -- certainly not worth it if by some chance your LO finds it very stressful.

There's been some discussion in the main forum about how followup visits are spaced. My partner was in a geripsych unit at Christmas, so followup visits were spaced pretty closely for a while after that -- a month, two, three months -- and with the psychiatric staff as well as her usual brain specialist.

Now though, the geriatrician proposes a four-month span, and the psychiatric nurse six months. So it all depends. If something big came up, I'd ask for an appointment right away.

If I had to guess an average for followup visits with a specialist -- I'd say three months -- but sometimes it's closer when medication adjustments need to be monitored.
Anonymous
Posted: Tuesday, January 17, 2012 5:39 PM
Originally posted by: Becky D

I was wondering what is the reason for continuing to get tested. Doesn't that just add more stress to everyone. It seems to me that it is what it is and that the symptoms they are having would dictate the stage. I am new to all this and I am just asking. My husband was diagnosed in June. How often should i get him tested. The neuropsycologist didn't mention it.
 
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