Archived Message Board
Spouse/Partner Caregiver Forum
Help, I am new at this
quote:Originally posted by D K:Welcome to the site. I don't post much but do read. My husband was diagnosed with FTD (frontotemporal dementia) when he was 58. He doesn't speak much and is cognitively about a 3 year old. It is difficult.With regard to the abbreviations, click on the find button and search abbreviations. There is a pretty good thread on them in the caregivers forum.You can add your location to your posts, but I don't remember how I did it.
quote:Originally posted by Rkg:Aminda, Your welcome to post where your from if your comfortable doing so. Many of us have our state, city ect in our profile so it comes up when we post. It's up to you. Just be careful giving out to much information. As we never know who we are speaking to on the world wide web. Welcome, glad you joined us. Do share your situation if your comfortable doing so. DH = Dear HusbandDS = Dear/Darling SonDD = Dear/Darling DaughterMIL = Mother-in-LawFIL = Father-in-LawBIL = Brother-in-LawSIL = Sister-in-LawBF = Boy FriendGF = Girl FriendSO = Significant OtherOH = Other HalfSIB's = Brothers and Sisters or siblingsLO = Loved OneGLO = greetings to loved onesADLO = Loved One with Alzheimer's diseaseCare Places:ALF = Assisted Living FacilityNH = Nursing HomeSNF = Skilled Nursing Facility/Nursing HomeADC = Adult Day CareCCC/CCRC = Continuing Care Community or Continuing Care Retirement Community (a facility which offers, Independent, assisted living and nursing home residence)Medical:PCP = Primary Care PhysicianER = Emergency RoomDNR = Do Not ResuscitateUTI = Urinary Tract InfectionDVT =Deep Vein ThrombosisTIA = transient ischemic attack (mini stroke)PEG tube = percutaneous endoscopic gastrostomy tube (feeding tube inserted direct into the abdomen)Delusion= experiencing things that are out of touch with reality through thoughts or beliefs while a person is awake and consciousHallucination = experiencing things that are out of touch with reality through the senses while a person is awake and consciousPT = Physical therapyOT = Occupational therapyTypes of Dementia:Alz or AD = Alzheimer's diseaseEO = Early Onset (diagnosis before the age of 65)EOAD = Early Onset Alzheimer's Disease (diagnosis of Alzheimer's before the age of 65)YOAD= Younger Onset Alzheimer’s Disease (another way to say Diagnosis before age 65)FTD = Frontotemporal DementiaFTLD = Frontotemporal Lobar DegenerationLBD or LB = Lewy Body Disease or DementiaMD = Mixed DementiaVD = Vascular Disease or DementiaStages of Dementia:ES = Early Stage (in the beginning stages of a dementia)MS = Middle StageLS = Late StageLegal:DPOA = Durable Power of AttorneyPOA = Power of AttorneyLW = Living WillAPS = Adult Protective ServicesHIPAA Law = Health Insurance Provider Accountability ActLTCO = Long Term Care Ombudsman (these professionals are dedicated to enhancing the lives of long term care residents by advocating for residents' rights and quality care, educating consumers and providers and resolving residents' complaints Provide information to the public)NAELA = National Academy of Elder Law Attorneys (visit http://naela.org to learn more)Popular Online Communiqué:LOL = Laugh Out LoudBRB = Be right backTTLY = Talk to you laterROLF = Rolling on the floor laughing!
quote:Originally posted by LCB:Aminda, there probably is a group you could attend. Call your local alzheimer's organization. They have been very helpful to me. As for a meeting close to me, I may have to start one. You could too. We can't do this alone. As you will see the more your read here. Welcome to the message board and please ask questions. Tell us a bit more about yourself also. We care.
quote:Originally posted by JAB:Hi, Aminda, welcome to the forum.The medical community uses the three stage system to discuss progression. We caregivers tend to use the seven-stage system:http://alzheimers.boomja.com/S...zheimer-s-26575.htmlIf your husband is still able to stay by himself six years after the diagnosis, you must really be doing something right!I'm in San Diego, I'm afraid that's a tad bit too much of a drive...
quote:Originally posted by JAB:Aminda, have you considered something like Adult Day Care for him instead?