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Originally posted by: jfkoc
I hear you. My situation is not as demanding as yours and I still hit bottom.
I do not have any advice for you except to go ahead and cry. Our tears have different chemical make ups for injury sadness etc so I believe we are meant to cry.
Come here and let everything out. That also is cathartic (sp). We are here for each other and want you to know that you are not alone.
If there are certain thing which are problematic share them...someone may have a good tip for you.
Breathe..exercise and keep in touch.
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Joined: 1/14/2015
Posts: 40463
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Originally posted by: Linda Dianne
Hi all,
I am caring for husband now for little over three years now 24/7. The time I out away from him I can count on one hand. And when I do I feel like sonething will happen if I do not hurry up and get back to him. I have asked daughter to come and stay with him and all she wants to do is come and be with us or she wants us to go somewhere with her. Which that wears him and I both out. Their is a lady at our church that has looked to see if she can get some of the men there to come and be with Joe. But that is not looking like that is going to happen. I need more than just a hour every so often away from him. I woke up feeling like I can not do it anymore.I pray all the time that God will give me the strenght to keep going. I keep you all in my prays too. God bless you all. Your sis in alz Linda Dianne Sorry for crying
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Originally posted by: sf
Linda, I was finally able to hire an aide recently for 6 hours a week, I'm still working out how to use that time but I know I need it. If there is a Visiting Angels organization in your area try that. You local Office on Aging may also be be able to supply direction. I finally found someone just by calling and following leads. Jewish Family Services also provides non-denomination assistance and was enormously helpful to me. My husband doesn't need care, he just needs someone here to be sure he's safe, a Barry watcher. Our family too wants to "do" something together when they're here, well intentioned but exhausting. Good luck, I pray God's strength and peace be with you.
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Originally posted by: FJB
Hang in there. I too have the same situation except that my daughter has recently been giving me some help as she has been off work for a few weeks but she goes back to work next week and then I am the 24/7 guy again. I think my sons should be more willing to spend some time with their Mom but they dont.
We do need some breaks and I think that if we keep looking for some other means of getting help we will both find them.
A spoke to a friend of mine yesterday who has a similar situation in that his wife is pretty much bound to a wheel chair do to a stroke. He has also had some physical stress issues like I have in dealing with the stress but said that if he would not wish it any other way.
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Originally posted by: Jim Broede
You must find a way to be less than a 24/7 care-giver. You need breaks. The 24/7 grind is inhumane. Cruel. People around you shouldn't let it happen. But they mostly do let it happen. That's the way it is. I eventually put my Jeanne in a nursing home. For the last 38 months of her life. And I became an 8-10 hours-a-day care-giver. Didn't miss a day. Made me a much better care-giver. As the captain of the team. Turned out to be the best thing for Jeanne, too. You don't want to be a drained and exhausted care-giver. That's not good for anyone. --Jim
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Originally posted by: Linda Dianne
Hi My alz Family
Thank you for your kind words.
I do not know what I would do without you all. you all mean so much to me. I thank God for you all. May God be with you all and my prays are with you all. Hugs all. Thanks your sis in alz Linda Dianne
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