Archived Message Board
Medications/Treatments for Alzheimer_s
Discontinuing Aricept and Namenda
quote:learned that a very low dose of ambien (2.5mg) three times a day would keep her rage under control (by trial and error, of course), so that's all the meds she's taking now.
quote:Originally posted by K.L.C.:I am wondering if it really matters if you have a definite diagnosis of what type of dementia. We have been told my dad has Alzheimer's or Alzheimer's type dementia. But when I describe his symptoms to friends with medical training and also from what I read, I wonder if it is a different type of dementia. And if it is, should he not be taking Aricept and/or Namenda. My Dad has been on aricept since Nov 2008 and then started Namenda in Jan 2009 at 5 mg. and recently increased to 10mg. He is not getting better and is steadily declining. The change in just over a year (from June 200 is drastic- from a suspicion of dementia to needing 24 hour care. The doctor said moderate stage in Nov 08 to Moderate to Severe Stage Sept 09. Does AD really change that quickly? Is the medication making it worse? How do we know what to do, who to trust?
quote:Originally posted by Caroleee:Thanx Steven for your thoughtful comments. Makes me curious to see what will happen when in 1 1/2 weeks we take Mom off Namenda. She has now been off Aricept for five days. No change. (Incidentally, I checked with the dr. and the pharmacist and the website, and found no information recommending weaning.)How did you get a diagnosis for your Mom, Steven? Mom's doctor indicated that it would probably not be until autopsy to determine if this is really Alzheimers. To date, he calls it Alzheimer's type dementia.
quote:Originally posted by Caroleee:I have put my Mom back on Aricept too. It was not supposed to be helpful in the later stages of Alzheimers, but she went into a HUGE decline within a week of going off Aricept. I hope that she will be able to regain what she lost.
quote:Originally posted by LovingNana:quote:Originally posted by Caroleee:Thanx Steven for your thoughtful comments. Makes me curious to see what will happen when in 1 1/2 weeks we take Mom off Namenda. She has now been off Aricept for five days. No change. (Incidentally, I checked with the dr. and the pharmacist and the website, and found no information recommending weaning.)How did you get a diagnosis for your Mom, Steven? Mom's doctor indicated that it would probably not be until autopsy to determine if this is really Alzheimers. To date, he calls it Alzheimer's type dementia. I am a 57 yr old EOAD patient. Please forgive me for butting in on caregivers site but I do read comments from caregivers from time to time to help me try understand how my husband & family feel. I am not to the point that I can't communicate (or at least I don't feel I am). I have in my opinion one of the best AD neurologist anywhere (Harvard & Univ. of So Calif) His passion is dealing with AD patients. He has put his entire life into it. I know I am in good hands & trust him fully with my care. I keep a journal from day to day for yesterday is gone for me. Looking back over my AD history (which is written down) it looks like I was in pretty bad shape when my dr. starting treating me. I have been on Razadyne & Namenda both for probably 2 yrs. I could not tolerate Aricept. Since I have been on these 2 drugs they have been lifesavers for me. I have improved greatly. I also have neuropathy & was taking high dosages of Neurotin. After being on this drug for several months I starting having Parkinson syndrome & retaining fluid until clear blisters popped up all over my feet & legs. My dr. said it was a reaction to the Neurotin so was taken off of it and symptons went away after Neurotin cleared my body completely. Yes, I still have the neuropathy to the point that I can barely walk now but I don't have the shaking to the point I could not feed myself & I lost all the fluid. Maybe the AD drugs are a security blanket for me & I just think they are working but whatever something is working & I would hate to know my husband or dr would take them away. With EOAD we are in a No Win situation on this side of the soil but everyday I get up & remember who I am & who my family is I "County My Blessings". I do have my moments which my daughters call "One of Mom's Episodes" but hey, who doesn't have an episode or two every now & then. I feel for you caregivers for I took care of my grandmother whom I loved with all my heart who had AD and I cherished every moment of every day I could spend with her. I took the good with the bad & after she died I put the bad out of my mind & just focused on the good days. Just focus on what little good time you have & cherish it for you will have that forever. Even though there are days I can't get words out I do understand what my husband says to me or my family & I do feel their anxiety & I can tell you I don't know about other AD patients but for me I pick up on it & it turns me topsy turvey. Sorry for rattling on but while I have these thoughts running through my head thought I would share for these thoughts will be gone & lost to me forever tomorrow. Sandy