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What it feels like to have Dementia.
Anonymous
Posted: Tuesday, January 17, 2012 5:39 PM
Originally posted by: lurk

Hmmmm, so articulate inside, and yet his concern seems to be that he can't articulate his feelings. I'm trying to empathize as to what that would be like. Frustration and so much sadness.

Glad you found it; glad you posted. Will "ponder these things" in my heart.
Anonymous
Posted: Tuesday, January 17, 2012 5:39 PM
Originally posted by: JAB

For those of you who don't read the "I Have AD" forum, we have a new member, "a loving daddy" who has been writing about how it is affecting him. He is 52 years old, and has three young children. His posts are very poignant. They are interspersed on one thread, beginning here:
http://alzheimers.infopop.cc/e...644068777#8644068777
Internal Administrator
Posted: Tuesday, January 17, 2012 5:39 PM
Joined: 1/14/2015
Posts: 40463


Originally posted by: Roger G. care partner

Guess this really sums it up. We all have wanted to know what it is like. Norm Mac who has dementia early on pretty well says it all.


Hear
My
Cry’s
Voice`s fading, not through age,
Dementia building it`s sound proof cage,
Listening in but nothing out,
Unable to talk but able to shout,
Frustration runs through every bone,
Feeling so empty, always alone,
Hear me cry, silently so,
One day happy, then so low,
I`m still me, deep inside,
Nothing to fear, nothing to hide,
Unable to say what`s on my mind
To those I love, to one so kind,
Hear my cry`s, I’m still here
See my eyes fill with tears,
Until the day we meet again,
And walk among the sunny glen,
Know my heart is always yours,
Until the closing of life`s door`s
Anonymous
Posted: Tuesday, January 17, 2012 5:39 PM
Originally posted by: Roger G. care partner

JAB,
Have not read it yet......what are you trying to do.....make me cry all day........will go there and pass it on to the FB page that is going good to.

Phyllis and Roger
Anonymous
Posted: Tuesday, January 17, 2012 5:39 PM
Originally posted by: lurk

I loved A Loving Daddy's post on the other thread as I indicated when I first read it on November 10. I printed it out in its original form as well as Alana's edited copy, but I loved the original form. I could almost identify with his rambling thoughts, but maybe not necessarily the content.

Thank you, JAB, for bringing it to mind again as my copies are in my drawer along with all the other AD info. Thanks to you also, Roger. I am so glad that you have something new to think about and the realization that Phyllis is not really gone from you.

For the New Year, I wish all my friends on the board MOMENTS of joy, HOURS of deep slumber, DAYS of strength and energy, WEEKS filled with hope, and a FUTURE of peace and rest knowing that you performed a wonderful service of love.
Anonymous
Posted: Tuesday, January 17, 2012 5:39 PM
Originally posted by: Roger G. care partner

JAB,

I did cry after reading A Loving Daddy's posts. But it has also let me into my wifes minds. To know how and what she felt. To know now that even though she can not talk she is still there and that I need to love even more and to let her know that she is mine and that I do love her so so much.

I have been doing that but I think I probably need to do it even more.

Thanks JAB for posting that link.

Phyllis and Roger
Anonymous
Posted: Tuesday, January 17, 2012 5:39 PM
Originally posted by: JAB

I'm glad it helped, Roger. Love to you and Phyllis and a happy and peaceful, blessed Christmas.
Anonymous
Posted: Tuesday, January 17, 2012 5:39 PM
Originally posted by: Be Strong 2

quote:
Originally posted by lurk:

For the New Year, I wish all my friends on the board MOMENTS of joy, HOURS of deep slumber, DAYS of strength and energy, WEEKS filled with hope, and a FUTURE of peace and rest knowing that you performed a wonderful service of love.


Thank you for your kind wishes, Lurk. Same back at you.

Bob Cool
Anonymous
Posted: Tuesday, January 17, 2012 5:39 PM
Originally posted by: sveti

JAB
Loving Daddy's Post is heartbreaking. I cried
while reading and after. I hope and pray that a cure will be found soon.

Merry Christmas to all my friends, and may God grant us strenght for the new year.
 
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