Archived Message Board
Spouse/Partner Caregiver Forum
New to MB(2)
quote:Originally posted by So Sad:Jean,My husband is now 58 and I have been taking him to doctors since the beginning of last year. I knew something was wrong, he would ask me the same thing several times within a few minutes, started losing important things like his wedding ring and Rolex watch, but the worst thing was when he got out of a vehicle while it was in drive and it rolled into a pump jack. He was at a ranch so nobody was hurt, but it finally made him realize I was right and he needed to go to the doctor. We have had so many tests, CAT scan, MRI, EEG, EKG, Angiogram, MMSE several times, he scored 15 out of 32, bloodwork for B12, thyroid, lyme disease, DNA testing,urine testing for heavy metals, you name it. He has been taking Namenda for a year now and it has helped, but it makes me crazy that the doctors only say some form of severe dementia and for some reason they can't tell you what exactly it is. I realize it is not until death that they can tell you it is AD, but it is so hard to plan ahead not knowing how long this will last. I have to work, and I am at such a lose as to how to plan our future with no time line on this horrible disease. Jean, How have you managed for so many years? It is a terrible disease, and you must be young too, I can use advice on how to deal with this from someone in the same situation I have found myself in.
quote:Originally posted by JAB:Jean, I'd like to add my welcome to the others. We are just coming up on 6 years after the diagnosis, and while you and I might be about the same age, my husband is quite a bit older. And because he is older, we didn't fall through any cracks ... we had an excellent PCP who did his very best to find another reason for my husband's problems, but there wasn't much doubt about what was causing them. He is now stage 6e, but still a sweetheart and relatively easy to care for, and I still have him home with me. Your journey, wow, it's been awfully hard. I hope we can make you feel comfortable here, and help you, at least a little bit.
quote:Originally posted by R Copes:JeanI also knew something was wrong with my husband when he kept asking the same questions over and over again and kept losing all his possessions. This went on for several years and after 2 years of testing, including every test known to man he was finally diagnosed stage 4 8 months ago. He has been on Aricept and Namenda and I have not seen a change in him at all. He is still working but just for 2 more weeks. He will be 60 at that time. I am also at a loss because I really need to work, but how can you leave them alone for 8 hours a day. Hubby would wander off if I left him for that long. With no time line its difficult to get your life in order. I have been trying to sort all this out for the past 8 months and still am wondering. I was glad that he was diagnosed but then you don't have any idea about a future. They say it has its own time line and its hard to plan a future without some idea. I am lost in this world and trying to just muddle through. I hope you find some peace. Welcome to the message boards. Glad you found us. We have a great family here to support one another and I invite you to the chat room too. Almost every night there is someone there and we talk about everything. Maybe this will help. God Bless and hope for a safe journey
quote:Originally posted by So Sad:Jean, I am glad you answered me back, I am turning 50 this year so I guess one of my biggest concerns is for DH when he gets worse, cause I have a long time before I can quit working. I have checked into Alz groups and the closest is a 2 hour drive so that is mission impossible at this point, I don't even go grcery shopping without him. I have made an appointment with another Neurologist at a large Medical center in Dallas that specializes in Alzheimer's, but what worries me is it is an 8 hour drive or 2 hour drive and then fly. Living in a rurual area makes things more complicated.My husband is in fairly good physical condition according to his regular MD. all test were very good when I took him for his regular yearly physical this March.I never know what to say when he asks me whats wrong with him, do you have any suggestions? He asks me if he is dying and I tell he we all are, but not any time soon. I have explained that he is physically in good shape, but his memory is failing him and that is what I am for, to help him remember.There are a few others that I have seen post occassionally and have talked to on the chat room that have EOAD spouses, so I am hoping maybe we can get some good info from you since you are further down this road then me.I don't know exactly what stage DH is in, Neuro calls it moderate, on here they use numbered stages, I am guessing 5. I can still talk to him, but he doesn't alway's understand me, he is not able to dress without assistance, I have to cut his food, but he can feed himself, sleeps alot more then he used to, gets paranoid, sometimes angry, sometimes rude,I have to make him shave someday's and someday's he doesn't want to shower. He is afraid to be left alone so I take him to work with me and grocery shopping ect...I am sure there is more, but I wanted to catch you up on my story so any advice is welcomed.
quote:never know what to say when he asks me whats wrong with him, do you have any suggestions?