Loading discussion content. Please wait...
Spouse or Partner Caregiver Forum
Getting up and getting dressed several times a night.
I wish I had an answer for you because my DH is up, on a good nite about 5x’s, but more often 7 to 8x’s a nite. He’s able to go back to sleep but I’m not so I truly understand. It’s so frustrating and certainly not healthy for us caregivers. He suffers with an overactive bladder even though he’s doctoring with a urologist and on 2 different meds. This has been going on for almost a year and a half. Our PCP prescribed Lorazepam (Activan) as a sleep aid for him but after a month, with our doctor’s permission, I took him off it. He continued to get up but became aggressive and one nite thru a punch. Thankfully, I saw it coming and sidestepped. Plus, I read this med was a fall risk for some patients. My DH shuffles so this concerned me as well. Whatever the doctor prescribes for him as McCott mentioned just watch him.
Like you, I bought a monitor/sensor so as soon as his feet hit the floor it goes off. Lol I bought mine at Walmart for under $40. I also had to have a key lock installed on our apartment door because I didn’t hear him get up the one nite and found him in the lobby heading out the front door. I wear the key around my neck at nite.
Hope you get the help you need.
For the past week, my husband has been getting up at least twice and has been staying awake. First time he uses the bathroom if he finds it quickly or urinates in his shorts. I help him change into clean underwear and he goes back to bed for a couple of hours.
The second time he's up for the day waking up between 1:30 a.m. and 4:00 a.m. He punches the bed, swears, pulls the covers, tosses clothes around, then finally goes into the kitchen. He doesn't know how to use any appliances so he stands in the kitchen until I get up.
He takes 100 mg Seroquel and 5 mg melatonin before bedtime.
Sadly, you can add to me the list whose LOs get up multiple times in the night. I have a motion sensor light next to his side of the bed so I wake up and I can hear what he's doing (and I'm a very light sleeper). For the past year, it's been 'manageable'; he would get up about 3 times, watch a bit of TV, go to the bathroom, and then come back to bed. Occasionally, he'd fall asleep on the couch with the TV on so I would get up and walk him back to bed.
However, for the past week, he's been getting up at 3:30....and then about 20 (!) more times before morning! Right now, he's on 25 mg Seroquel in both the a.m. and p.m. I am calling the neurologist today to ask if I can eliminate the a.m. dosage and increase it in the p.m. I've got to do something--for the well-being of both of us. I wish us all a good night's sleep!
My husband is the 4th of 10 sibs to suffer from AD so I had the experience of my sisters in law to guide me. Not sleeping at night was the killer so I follow a very strict schedule and keep my husband up until 10 or 11 at night and allow no sleeping except an occasional afternoon nap in the afternoon. If left to his own devices, he would nod off frequently during the day and then do at night what you describe. Also we try to walk every day for some exercise.
All doors and windows are locked and I keep the key. I took the locks off the bathroom doors and use them elsewhere to prevent access to various areas of our house. I do not leave anything important around that he can pick up and move. I am moving more and more things to locked areas as time goes on. My goal is to create an environment in which he can wander without hurting himself. Daytime requires full time management now because he is on the verge of incontinence. He did recently pull the pad out of a disposable and flush resulting in a huge plumbing bill. I have now disconnected the toilet handles to prevent that happening again.
There is something new every day and like everyone else here I learn as we go.
We are well into stage 6 and full incontinence is on the way. That will upend all my current techniques I am sure.
The idea of creating a safe, contained environment for the PWD, with the rest of the house 'off limits' just seems so sensible and wise!
When my kids were little, I just naturally did the same thing. I never understood parents who said 'they have to learn not to touch things'. Two year olds can't really learn that, and it's not worth the risk hoping they have.
Thank you so much for this idea.