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Spouse or Partner Caregiver Forum
Hallucinations or nightmares?
I don’t know whether my husband is sleep walking, hallucinating or what this “new phase” is called. When he gets up at nite he heads to the bathroom, I’m right behind him, but instead of literally “going” he tells me all the reasons why he doesn’t have time to do “that”. One nite he was painting a forest another nite he was counting votes. Last week he couldn’t take the time to go to the restroom because he was building a castle for the Russian czar’s princess. Another night he insisted he needed to get gas for our car. I don’t argue, I try to divert to no avail. There’s been nites it’s taken me an hour to get him back in bed and sometimes with out him “going” or allowing me to check his pull-ups. I started buying Abena Flex premium...expensive but they are worth it!
DH takes Namenda XR 28mg in the AM. His Aricept 10mg before 6 and a melatonin an hour before bedtime. I’m praying this is a short lived phase neither of us are sleeping.
It sounds like REM Behavior Sleep Disorder, which is a feature of Lewy Body Dementia. Google this type of dementia and read about the other symptoms. It's the most misdiagnosed type of dementia. Also the 2nd most common type of dementia. Important to get a good diagnosis because LBD patients often have severe reactions to many medications.
I have used CDB oil at night with his medications including Depakote, sleepytime extra tea and another tea which includes valerian root. This was approved by his geriatric psychiatrist and seems to help him sleep without anxiety or hallucinations at night.