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Tell Us About Your TrialMatch Experience!
The Alzheimer's Association TrialMatch is looking for your feedback! To help us improve the tool and better support people living with dementia, caregivers, and healthy volunteers in finding clinical studies, we invite you to complete a brief survey. The survey takes less than five minutes to complete, and your input will…
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Moved: ALZConnected Q&A Thread
This discussion has been moved.
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Suggestions for Getting Mom to take her Meds
It's definitely not an issue of compliance—mom is very agreeable about most things, all things considered. It's much more her forgetting. Just appealing to the group to help brainstorm a solution.
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Hospice.
Hi: My DW has had VD for almost 3 years. She is 78. She has now been in Hospice for 4 months. I go to see her daily, she is bed bound. She can no longer walk, talk, feed herself or help herself daily bathroom care. The must put her in a wheelchair in the morning so she can be feed. She cannot move her hands or feet. If she…
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Looking for Work From Home Opportunities
Hello, I thought this would be a good place to ask since other people might have the same or a similar struggle. I stopped working in July after I abruptly decided to come care for my Grandmother who is level 5 LBD. I have since depleted my savings and I am not getting paid for her caregiving. Although I have applied for…
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NYT: Minimal Comfort Feeding for late-stage patients
A controversial issue: "Some consider the regular feeding of late-stage dementia patients to be nonnegotiable. Others see it as extending life unnecessarily." Shared gift link.
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Need guidance
My 83 year old mom has all the symptoms of Alzheimers and her general practioner agrees but she gets so upset about going to see a doctor that she hasn't had any formal testing. My 84 year old father just finished radiation treatments for early stage lung cancer and we will know those results at the end of this month. He…
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Dementia and Medications
My grandmother was diagnosed with moderate dementia not long ago.. I moved in with her a year ago. And my husband and I are really the only family members involved.. well, about a month ago she was complaining daily about how many medications she had to take and said she didn't need all of them. I explained well, most of…
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Needing Some Reassurance about Putting My Sister in AL
Hi and a big thank-you to all of you who have contributed your very helpful advice and experiences to this wonderful forum. I have learned so much from all of you. I appreciate each and every word you have contributed! My sister has stage 5 to 6 Alzheimer's (my estimate). My NP said she had advanced AZ. I am waiting on the…
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preparing for end of life
Just thinking ahead a bit—it's so hard to gauge. We have several excellent caregivers, and I kind of hate to think of telling them "Well, he's gone, bye." What do you think about telling them we'll give them 2 weeks pay afterwards so they're not left in the lurch?
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I am new to this community
Hello, I am new to this community and looking for support and help. I am 78, and my husband is 5.5 years younger. I have spoken at length with my doctor about what's going on in my life, and she has been very supportive and suggested I come here for guidance. I have seen my husband's decline over the past several years,…
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Anyone else taking care of otherwise healthy dementia patient?
Taking care of 85 year old with late stages but body is amazingly healthy, amazes the nurses and doctors each time,,,strong heart, good breathing, strong appetite, and can feed herself most of the time. One should be delighted right? But she is in late stages requires 24 care, is beyond any kind of converstation, but gets…
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Alzheimer’s and autonomy
Hello. I’m new here and I have a father diagnosed with late onset Alzheimer’s. I take him to all of his various appointments but I don’t quite understand why the providers rely on him for answers on his health. Sure I can provide some of the information but questions about his own depression levels or nausea only he can…
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Exercise Suggestions?
The local senior center just canceled my dad's favorite light exercise class and I am looking for something to replace it. Does anyone have any online/youtube classes that their PWD enjoys and can follow without assistance? My dad has a Lewy Body Dementia diagnosis and the class he enjoyed was a straightforward light…
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Kisunla for homozygous patients
First let me say how grateful I am for all the people here sharing there very personal journeys with this insidious disease. Having browsed the the discussions as a non-member, I can see the fear and confusion, along with the empathy and desire to help. I am having trouble finding any personal experiences with people using…
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Would you share your experiences…?
If your LO is in this stage or you’ve passed it, please share your experiences, struggles, how things have progressed and tips! I’m especially interested in hearing how long your LO has been in this phase and what happened next for you. MY DH is stage 6 ALZ. Totally dependent but feeds and toilets himself. No incontenence.…
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Hi! I'm new here... I'm a granddaughter taking care of a grandfather with LBD
Hi. I'm new here. I'm a granddaughter caring for a grandfather with lewy body dementia. I talked to a lady at AA WNY chapter and she suggested I try some support groups. A little back story about my journey so far... My grandfather is 94 and over the last 2 years has started having symptoms of LBD. He accuses almost…
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kikippa, a TV speaker for listening to gamma waves
I saw on TV a"kikippa", device that modulates gamma waves, through a box that resembles a sound bar, and was used for cognitive care for elderly in Japan. [1] Gamma wave modulation is said to help with some elderly cognitive therapy. [2]. It takes audio (like from a TV), and alters it to include the 40Hz sound that is…
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Gamma 40Hz light treatment
Has anyone tried this treatment? A friend of ours whose father is 92 and has dementia has seen a "dramatic" improvement in mood. So - we ordered a lamp for my father on Amazon (arrives tomorrow). I've read articles that state this 'light therapy' helps those with dementia (calms aggression, improves mood, etc). The reviews…
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Cataract surgery for someone between Stage 5 and Stage 6?
Hi all, My mom has advanced Alzheimers and Vascular Dementia. I guess it is between stage 5 and stage 6. She gets full time care in a skilled nursing home. She can´t do any daily tasks without assistance (though the nurse sets her up to wash her own face and brush her own teethI, can´t walk, needs a machine to take her to…
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New to Discussion Group
I am new to this discussion board; I really need to vent just a little. I have worked with many PWD in long term facilities but having a BIL staying with us at home is so much different. He was in a nursing home in Georgia, and his sister was the one who placed him and was responsible for him at that time. She passed and…
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Alzheimer's Quirk?
The person whom I assist who has Alzheimer's has a quirk that I am wondering whether is Alzheimer's-related. I go for walks with them, and when they spot something on the ground, they pick it up and take it home. Some things they have spotted are a hair tie, a nickel, a small velcro strap, etc. Recently, they spotted a…
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Memory
My DH has had major short term memory loss. I have realized that it has been about 20 years he has lost. Recently he asked how my Mom was doing. She has passed 25 years ago in a car crash. He then asked if I talked to my sister “Teri”. My sister is Carol. Teri is his ex- wife’s sister. He hasn’t talked to her in maybe 40…
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How to we get Mom to leave for a nursing home (against her will!)?
I do have dpoa, on healthcare directive- drs say tough luck if she wont go voluntarily or is not easily tricked then wait for a crisis. So many mentioned she could just be tricked- no it's just not possible and despite having a diagnosis of severe, she IS aware enough to know what is going on. drs have classified as severe…
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PWD easily startled
I find that a mid-stage PWD is easily startled recently. If I appear in their path if they are walking, a PWD is startled and surprised. A quick web search shows it's common as their vision and processing ability deteriorates. It's not clear what type of caregiver action can avoid this. One suggestion is to approach…
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Undiagnosed Gram - In need of 24hr care & I need to get back to my life
I love my gram more than anything!! However, I’m facing a difficult situation where she can no longer be left alone but I also need to get back to my life which is 1hr away. I have a business I run with my husband, two teens, and two huskies. I cannot be gone long. I live 1hr away as does my father. He will have POA once…
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93 yo Mom that has Late Stage Dementia ALZ I am at Caregiver Burnout Stage
I have a 93 year to be Mom that is in the middle late stages of ALZ Dementia I have two businesses that I cannot run and must fulfill my broadcast schedule on the road broadcasting high school games. I have no to little help and neighbors and friends ask but advise or critique me on how to care for my mom but not lending a…
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How or if to tell my parents they are moving to memory care
I am about to move my parents into memory care in a few weeks. They are both 95 with stage 4/5 dementia. They have been living in assisted living for the past 4 years so the move would just be across the courtyard to a more secure facility with more support. My question for this group is when, how, or if to tell them they…
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Husband hit 89 year old wife
My mother is caring for her husband (both 89) who has been diagnosed with Alzheimer's. Tonight he hit her twice in the face in their home when he become frustrated with something that she was doing (no excuse). To the best of my knowledge this has never happened before. I am interested in any advice or guidance on how we…
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Kisunla Infusions
Hi everyone. I’m new here. My wife and I are trying to get my mother in law moved from LA out to PHX but it seems impossible to re-establish care in a new state while trying to create as smooth of a transition as possible. Hoping to get her started on Kisunla asap but insurance just denied it and now it feels like we are…
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Suggestions for Sundowning and Agitation? Medications?
I am getting stressed out! DH has been Sun-downing for the past several months to the point where he gets into everything, gets agitated, will not sit down and when it comes to bed time he becomes angry. He had a brother, now passed away, who had this issue but his wife did not remember what medications the doctor put him…
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Making the move from AL to MC
My mom is currently in AL but we have found that she has been wandering outside on her own, so we need to increase her supervision, therefore putting her in MC is the only option. Just wondering from others experience, how long should the transition take? She is in amazing physical health but currently has mid-stage…