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Moved: ALZConnected Q&A Thread
This discussion has been moved.
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After hospice respite
My spouse returned home from a 5 day respite stay at a local hospice house severely deconditioned. Was using a walker with stand by assist and now he can barely stand. I left them a note with our daily schedule at home, but I wish I had made it clear how many feet he ambulated daily. I needed the break, but now I wonder if…
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Mom is in memory care, she “wants to buy a condo”
I just had to put my mom in memory care in March. Prior to that, she was in the assisted living side of the facility, and I hoped it would meet her needs. She first moved to the facility in November. It’s been a quick progression. Then, and especially now, she wants to buy a new condo. She knew that we had to sell the old…
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Kisunla Infusions
Hi everyone. I’m new here. My wife and I are trying to get my mother in law moved from LA out to PHX but it seems impossible to re-establish care in a new state while trying to create as smooth of a transition as possible. Hoping to get her started on Kisunla asap but insurance just denied it and now it feels like we are…
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My mom believes deceased spouse has returned to earth
Has anyone experienced this? My mom has dementia. My dad died a year ago today. For the past 8-9 months my mom has believed that he came back to earth and is now healed. However, she also thinks that he is cheating on her with a lady she can see out her memory home window (there are duplexes for senior living outside her…
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Semax
Hello. Has anyone used Semax for early stages of dementia? I heard good things about it for the brain, just wanted to know if anyone has any experience. TIA!
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Don't sweat the small stuff
I read the book several years ago and realize today that I need to apply it to the world I find myself and my LO in. As an example, this means not getting stressed, upset over a toilet not being flushed, or no help preparing meals. The bigger focus should be on keeping my LO safe, secure and also keep myself rested and…
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Mom (92) mod/sev dementia … suggestions PLEASE
hello … mom (92) has lived with us for 10years but there’s been a gradual decline up until maybe the last year or so … it has gotten worse. i work out of the home so i am pretty much available to her for whatever she needs & at this point i am providing (or assisting/reminding) everything. my husband /my self … our 3boys…
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Grandmother living with dementia REFUSES TO BATHE/SHOWER
I am a 33 yr old granddaughter, taking care of my 86 yr old grandmother living with dementia. I’ve been living with her for the past almost three years providing care to her and my uncle. Recently she has refused to shower. It's been getting harder and harder to convince her, and she instantly switches to anger and puts…
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Moving wife to memory care
I'll be moving my stage 4 or 5 dementia wife to memory care soon. Any advice on moving her would be appreciated. Should I try to explain to her that she is moving ahead of time? Should I take her there and wait until she is asleep before going home? Should I bring all of the stuffed animals she likes the most all at once…
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Formula1 and fighting dementia
Just an interesting article. https://www.latimes.com/sports/story/2026-05-18/how-formula-one-team-pit-stop-tactics-dementia-battle?utm_source=firefox-newtab-en-us
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New at this and scared
I’m 73 years old and my wife is 68. She was diagnosed with very early Alzheimer’s last November (“mild cognitive impairment”) and started on monoclonal antibody therapy in January. Most people wouldn’t notice anything different about her but I can see that she forgets events, loses her keys (or leaves them in the front…
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Hope I am doing the right thinng
I am taking my wife to a memory care center in a couple of days. I really don't want to but Cathy is not improving. She is very inconsistent. Some days I can change her clothes with little issues yet other days it's liking herding cats. The PACE (Program of All-Inclusive Care for the Elderly) facility she is a member of…
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Severe dementia- yet Mom refuses to move out
Edit- I do have dpoa, on healthcare directive- drs say tough luck if she wont go voluntarily or is not easily tricked then wait for a crisis. drs have classified as severe dementia and highly recd she not live alone. They state there is nothing we can do other than wait for a crisis here (Kaiser-California). Mom will not…
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Hi new here…
My name is Dana, and my husband is in the process of his diagnosis, although we are pretty sure it’s early onset Alzheimer’s as that is an issue on his father’s side of the family. He is upset with a family member right now, unfairly, but there is no way to reason with him. My question is, do any of you have suggestions…
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Bible Verse to Lift You Up 5/15/26
GOOD FRUIT Galatians 5:22-23 New Living Translation 22 But the Holy Spirit produces this kind of fruit in our lives: love, joy, peace, patience, kindness, goodness, faithfulness, 23 gentleness, and self-control. There is no law against these things! When I was a caregiver, I wasn’t perfect but the Holy Spirit’s fruit…
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Non-emergency "lift assist" rather than a 911 call is useful
This is not specific to dementia, but if your LO falls and you can't lift the patient, you can request "lift assist" in some towns, which will avoid dispatching a full set of vehicles with sirens (or even a police car) to provide medical assistance. It may take a bit longer since it a non-emergency. I have not requested…
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Potential PoA Challenge
I have PoA (financial and medical) for my LO with dementia. Other family members and I have a difference of opinion on where my LO should live. I’m just trying to honor my LO’s wishes as long as it’s feasible. I received communications from these family members that make me think they are gearing up to challenge my…
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Bank Doesn't Recognize POA
Hi, What to do when credit union won't allow me to use the POA? I haven't contacted the atty who drafted it yet, full, durable $$ and medical/general POAs. So far my PWD can still come with me or talk to reps on phone but that could change anytime. USA SSA won't accept either- wondering what other agencies don't and how…
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How to we get Mom to leave for a nursing home (against her will!)?
I do have dpoa, on healthcare directive- drs say tough luck if she wont go voluntarily or is not easily tricked then wait for a crisis. So many mentioned she could just be tricked- no it's just not possible and despite having a diagnosis of severe, she IS aware enough to know what is going on. drs have classified as severe…
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My DW said she loved me today
Today was a good day. When I was helping my DW get ready for bed she looked at me and said, "I love you". It came out of nowhere. She has rarely made comments about affection. I was taken aback but replied, "I love you too". I got her ready for bed while I was tearing up inside.😥 I so hate this disease!
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Feeling alone
Hello, I'm new here. Part time care giver for my mom, my best friend. I feel so alone in my grief. I know I'm not but this has been the hardest thing I've ever gone through and it almost feels like no one around me even notices. I feel like my family (dad & brother) and I are so isolated. No one ever really checks in on…
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Mom going to lunch
Mom is in a nursing home. Her former roommate called the facility and would like to take her out to lunch. The facility told her I need to approve this and they called me and gave me the woman’s phone number (they can’t legally give out mine). I haven’t called her yet. I met her, but have only talked with her briefly while…
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Need Advice About My Sister, Please!
After many years of caregiving for my very ill and late husband and my dear aunt with ALZ in a facility, at age 74 I remarried a wonderful man two years ago. We are very happy together and had an ideal life. Until I had to take in my 72-year-old sister with dementia. We had to move her from an RV in Alabama where she was…
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Scary and depressing delusions - how to respond?
My mother is in stage 4 of dementia. She's been anxious for over a year. Since she hates meds, I haven't felt it's severe enough to push for anxiety medication. I've been increasingly aware she is having delusions that cause more anxiety. I know the general advice is to accept their reality and not argue with how they are…
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Looking for advice -caregiver for father with Alzheimer's
Hi all! I've been struggling lately with taking care of my father who has stage 5 Alzheimer's and vascular dementia. I've been his primary caregiver for the past 3 years. It's taking a toll on me that he is not remembering me recently. We were very close prior to the Alzheimer's diagnosis. Looking for advice on how to…
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Good points about guilt and relief in caregiving.
I think it's hard for others to appreciate the guilt that accompanies caring for someone with dementia. I liked this brief video https://youtube.com/shorts/NXeU5SFW5lM?si=gQ-WLKsFEfOWWf6o
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What I did today...another form of venting
Here is what I did today at the multi-thousand dollar MC where my DH lives: Woke him from a nap at 11:15 AM Brushed his hair Cleaned his smudged glasses Shaved him Took a short walk with him Requested the aide change his soiled briefs (yes, I checked them first) Walked to lunch (he didn't eat the overcooked broccoli -I…
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Angels Of Mercy...
As a recent spouse of my DW diagnosed with Alzheimer's I struggle with depression, sadness and loneliness. Once joining this site and reading posts I see that I need to shed the "woe is me" thoughts. So very many folks have situations far worse than she and I at the moment. I sincerely applaud all of you for what you are…
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Dementia and gardening
My SO has severe dementia, communicating with them is extremely difficult as 5 minutes after you think he understands he does the complete opposite. Throughout winter he decided everything in the garden needed pruning as a consequence several plant collections have been destroyed. Now with spring he believes everything…
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Early Onset In Person Groups
My brother was diagnosed 6 months ago with Alzheimer’s after a very long 2 year period of many appointments and tests. He is 61. I’m trying to find him an in-person group in the Los Angeles area with others with early onset. He currently does a virtual program but I think in-person with others closer to his age would be…