Home Safety Checklist
RSS Feed Print
is this normal?
Willow
Posted: Monday, February 13, 2012 8:01 AM
Joined: 1/20/2012
Posts: 43


I was talking to my sister the other day and I told her that maybe nothing's wrong with me after all because I feel pretty normal right now and haven't forgotten anything for awhile (several weeks). She started laughing and saying how good we are at denying things.

It's kind of wierd because I'm documenting my little brain freezes and it seems to be every several months right now that it's something rather strange going on. Like several weeks ago when my sister was visiting and my son stopped by. I told him I'd go get him the Sunday flyers that were in the kitchen and he told me I already gave them to him yesterday. I didn't even know he had been there the day before and couldn't figure that out for anything. Very confusing.

But now I'm feeling all normal and not slipping words when I talk or forgetting things. I value your opinion on this...


Mimi S.
Posted: Monday, February 13, 2012 10:55 AM
Joined: 11/29/2011
Posts: 7027


Hi Willow,

There are at least three possibilities I can think of.

1. You are not noticing. Ex. flyers.

2. You are learning to cope.

3. meds have kicked in. Many people notice a slight improvement in their cognition.

Most importantly, how much of the Best Practices have you incorporated into your life?


Iris L.
Posted: Monday, February 13, 2012 1:03 PM
Joined: 12/15/2011
Posts: 18509


Willow wrote:

maybe nothing's wrong with me after all because I feel pretty normal right now and haven't forgotten anything for awhile (several weeks).  

  

 

 

 
Willow, I thought the same thing after I first reached a stable level of Exelon patch and Namenda.  I thought, "I'm not forgetting anymore.  I remember my words.  This is a miracle!  I'm cured!"  I couldn't understand why people said there is no cure for Alzheimer's.   
 
Well, actually, my diagnosis is not Alzheimer's, as far as I know.  And I still have lapses.  But they are not at all like when I was in an unmedicated state. 
 
I think the important thing is to appreciate the usefulness of the medications and continue consistently, knowing that they are a help, not a cure.   
 
And also not spend a lot of time obsessing over every cognitive lapse.  Anxiety and feeling stressed will cause you to have lapses that have nothing to do with the medications. 
 
It's important to get going on Best Practices:  eat the Mediterranean diet, exercise vigorously, stimulate your brain, and keep up with your socialization, hopefully some of which will be on these message boards. 
 
Iris L. 

Lisa428
Posted: Monday, February 13, 2012 1:35 PM
Joined: 12/5/2011
Posts: 795


Dear Willow,

 

It is normal.  I say the same things sometimes and my daughter reminds me that I have asked the same question three times and have been given three answers. lol.

 

We forget that we forget.

 

It's OK.  Happens to all of us.

 

Take care and do try to follow best practices and take your meds.

 

Peace and Hope,

Lisa


nurse19465
Posted: Wednesday, July 25, 2012 3:12 PM
Joined: 7/25/2012
Posts: 5


Hi, I'm new to the board.  I'm a retired RN with a strong history of Alzhimer's.  I'm 65 now and getting forgetful.  You said something that rang a bell with me, It seems as though my forgetfulness comes and goes.  I would have thought it would come and just steadly get worse but I notice last week I couldn't spell some of the medical terms I've used for years and I was more forgetful.  Now this week I've been good, memory not real bad and I can spell most word I want to spell without any problems.  I've been looking for a research study because I do believe there will be a cure very soon.
Myriam
Posted: Wednesday, July 25, 2012 10:56 PM
Joined: 12/6/2011
Posts: 3326


Hi, Nurse19565.


Have you gotten a diagnosis from a neurologist who specializes in Alzheimer's/dementia? If you have not yet received a diagnosis, please find a good neurologist with experience working with Alzheimer's/dementia patients


Here is a website with the names and addresses of neurologist where you live, but when you begin to choose one, please make sure you ask if the doctor specializes in Alzheimer's or dementia.


http://www.healthgrades.com/neurology-directory/ok-oklahoma/midwest-city


Geegee
Posted: Thursday, July 26, 2012 12:17 PM
Joined: 11/29/2011
Posts: 514


Hello Nurse19565, Welcome to our Boards.  I'm sorry you have to join us, but it's important to know that we care and are here for support.  We look forward to learning more about you and your situation.

At the top of this page is a tab for "local resources".  You can select that and find guidance, regarding living with dementia, in your area.  Also, please call your local Alzheimer's Association chapter in your service area.  They can also help you.

If you have a University or Hospital related Memory Disorder Clinic, that is an excellent place to investigate your symptoms.  As I'm sure you know, it's always best to see a specialist. 

 In our case, we need someone who specializes in Alzheimer's and other related dementias.  That comes under the category of Neurology, Geriatrics, and Psychiatry fields.  Mainly...any doctor that specializes in dementias.

Mimi, will advise you of Best Practices to include strenuous physical activity, a Mediterranean Diet, taking meds, and other things I can't think of at this moment.    I also have AD.

Anyway, Welcome !

  


sharleen
Posted: Saturday, August 11, 2012 10:34 PM
Joined: 8/9/2012
Posts: 6


It seems like you are coping with it .

You can consult doctor if you are regularly feeling like this ,

 

 

Sharleen

" http://www.stlucia.cc"



Johanna C.
Posted: Thursday, August 23, 2012 11:31 AM
Joined: 12/9/2011
Posts: 13593


Hello there Nurse - Welcome to the Message Board and this Forum.  I am so glad you have found this wonderful place.  I too am an RN.

 

I don't know much about your background, so please excuse me if I mention things you have already addressed.

 

While our primary MDs are wonderful on many levels, they are not dementia experts.

 

The single most important thing you can do, is to have a Neurologist that sees dementia patients as a routine part of his/her practice.  This is the gold standard for getting an accurate diagnosis for type of dementia as there are multiple types and medication for one may be contraindicated in another.

 

Neuro is also best at prescribing and managing dementia.  Some of the meds can actually assist in increasing memory capability and ability to function and will slow down the rate of the disease, so a dementia expert can be key to living a high quality of life.

 

I am so sorry for what is happening and can only imagine the frustration and worry.  Do you have family and a good support system?  That can be so helpful.

 

The Alzheimer's Association has a 24 Hour Helpline at (800) 272-3900.  If you need information or referrals, you can call.  Specially trained volunteers answer the phone to offer assistance, and if you have a specially complex issue, you can ask to speak to a Care Consultant.  The Consultants are highly educated Social Workers that specialize in dementia and they can be wonderful help and there is absolutely no fee for this.

 

You are doing a good job with the challenges you have and by coming here, you will become part of this supportive family.  We are truly here for one another.

 

Do let us know more about yourself and we are looking forward to getting to know you a bit better.

 

With best wishes,

 

Johanna C.


Zen
Posted: Monday, August 27, 2012 4:35 PM
Joined: 7/14/2012
Posts: 55


It's normal with dementia to have days when things seem better.  I experience this myself.  I may go for a week or two when I'm functioning particularly poorly, then I'll have a few days when I feel almost normal.  Well, not so bad, anyway.

 

Particularly if I have a cold or something I'll get much worse.  Fatigue is worse.  Ability to process is worse.  Etc.  It's amazing how little it takes to knock me down to a lower level of functioning.

 

I don't know if you have a diagnosis?  But if you do, and if you're on meds, stay on them.  It looks like they may be helping.


nurse19465
Posted: Thursday, August 30, 2012 8:53 PM
Joined: 7/25/2012
Posts: 5


Hi  there.  I know exactly what you are talking about because I had a bad insident happen to me about 3 weeks ago where I couldn't remember something I had done.  I was really worried and that the first time I found this site and wrote my first post now it's been about 3 weeks or so and I haven't had any insident of forgettfulness or anything, I mean I have been really sharp.  I don't know how long it will last.  I had called my Drs. office and got a referral trying to get into see a neurologist I was so concerned back then but I had forgotten about it.  I'm a retired RN and thought I knew about Alzheimers disease, I have worked with a lot of patients in the nursing hoimes etc. but I thought once you notice the disease it just gets worse but thats evidently not the progression because noticing myself it seem I'm having peroids of confision and then out of the blue you're back to your old self for awhile
nurse19465
Posted: Thursday, August 30, 2012 8:54 PM
Joined: 7/25/2012
Posts: 5


Same here Iris, I just don't know how long it will last.
nurse19465
Posted: Thursday, August 30, 2012 9:14 PM
Joined: 7/25/2012
Posts: 5


Hi there, and thank you guys soo much.  Well I'm still doing really good but I never got the appointment to see the specialist although I called my Dr. and they said I had called and asked for a referral which they called the neurologist and referred me but they never called so I completely forgot about it until today.  What happen is I was referring a facebook friend to your site and started reading and it all came back to me.  Also another thing is I was taking xanax for anxiety but after the incident I told you guys about I stopped taking it, haven't taken it in over 3 weeks and also I've been going to the gym and exercising 1 hr and about 45mins. everyday except sunday.  I do 30mins. treadmill. then 45mins weight trainning and then 30mins. stationary bike.  I feel some of the people there think I'm over doing it because I am 65yrs. old now.  It's great though because theres a lot of older people at the YMCA in the mornings, it's a new trend older people in the mornings and young people in the evenings.  I am really grateful for this site.
Myriam
Posted: Friday, August 31, 2012 6:45 PM
Joined: 12/6/2011
Posts: 3326


Hi, nurse19465. I'm 65, too. You seem to be doing all you should be! Good for you.
Mimi S.
Posted: Friday, August 31, 2012 7:24 PM
Joined: 11/29/2011
Posts: 7027


And that exercise is perhaps the most important one of the Best Practices. 

Do try to follow up with as neurologist who specializes in dementia. if you have it, the earlier you get started on meds, the slower will be the progress.


 
× Close Menu