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TV shows by members
Iris L.
Posted: Thursday, September 20, 2012 5:59 PM
Joined: 12/15/2011
Posts: 18221


Several of our members have done television shows to promote Alzheimer's and dementia awareness.  Here are links to these shows: 

  

Mimi S:  One Step Ahead of Alzheimer's
 
 

http://www.youtube.com/watch?v=Q2w9LG3hMlU 

younghope (Tracy)  Living with Early Onset Alzheimer's

 
http://www.youtube.com/watch?NR=1&v=alFphwiTn44&feature=endscreen 



I'll post more when I get permission to post them.

Iris L.


Johanna C.
Posted: Thursday, September 20, 2012 6:53 PM
Joined: 12/9/2011
Posts: 13319


Dear Iris:    My heart thanks you.  Beautiful.

 

If I followed correctly, Tracy's film was about six years ago, which means Austin is six years taller by now! 

 

Tracy's husband has since separated from her and she lives with Austin who is a senior in high school in another small nearby town, having moved from her original home to an apartment.  And if I am not mistaken, Tracy's diagnosis was adjusted to FrontoTemporal Dementia by her specialist.

 

Tracy has in the past, been very much an active participant on these Forums and had brought much to us in the way of knowledge and support and we followed her through the last few years as many changes came her way.  Tracy has always tried her best and always kept putting one foot in front of the other no matter the challenges which have been many.

 

Austin recently had foot surgery and sustained a post-op infection and we are all wishing him a great big get well.

 

Johanna C.


Iris L.
Posted: Thursday, September 20, 2012 7:02 PM
Joined: 12/15/2011
Posts: 18221


Thanks, Johanna, I've been following Tracy's updates on the message boards.  It would also be nice if we had updated videos. 

Tracy and Mimi are still independent and participating years after these original videos.

If you know of any other members with tv shows or videos, please add them

Iris L.

Myriam
Posted: Thursday, September 20, 2012 8:51 PM
Joined: 12/6/2011
Posts: 3326


Here's a piece I did yesterday.


http://www.king5.com/new-day-northwest/Alzheimers-Action-Day-170385516.html


Mimi S.
Posted: Thursday, September 20, 2012 10:27 PM
Joined: 11/29/2011
Posts: 7027


Great program, Myriam.

 

Tell us more about the setting.

And have you read: I'm Still Alice, by Lisa Genova. It's fiction, but she had much contact with people in Early Stage before she wrote. Getting lost was her first symptom!

 

And an update on me, I'm still pretty much what you see in the film. Can't do quite so much on the treadmill and stamina is not as good. Still speak to any group that wants me. And the book I was working on in that library scene was published last November!


Getting worse at recalling nouns, but it doesn't bother me. I know what I have and that's it. I still work very hard on Best Practices. 


There has been some questioning if the meds I take for various heart problems and MG may be having a slowing down effect on my AD. I'd love to know why. My neurologist is just pleased. "We aren't changing anything."

But then I also know that bam, I could ,one day, just start a deep descent. Plans are in place.   So  ....one day at a time!


Mimi S.
Posted: Thursday, September 20, 2012 10:36 PM
Joined: 11/29/2011
Posts: 7027


Iris, Thank you so much for posting the video about Tracy. And Johanna, thank you for bringing the group up to date with her recent status.
Iris L.
Posted: Friday, September 21, 2012 12:02 AM
Joined: 12/15/2011
Posts: 18221


Thanks for posting your tv show, Myriam.

Mimi, tell us more about your book that was published in November.

Iris L.

Myriam
Posted: Friday, September 21, 2012 1:11 AM
Joined: 12/6/2011
Posts: 3326


I'm scheduled to do a short TV spot tomorrow morning. Will post it if it's available for posting.
Mimi S.
Posted: Friday, September 21, 2012 8:45 AM
Joined: 11/29/2011
Posts: 7027


IRIS, 
THE BOOK HAS NOTHIG TO DO WITH ALZHEIMER'S.

 RURAL SCHOOLS HAVE INTERESTED ME SINCE RETURNIG TO THE PLACE WHERE MY MOTHER AND SEVERAL RELATIVES TAUGHT IN THE ONE-ROOM SCHOOLS OF THIS COUNTY.

 I BEGAN TO COLLECTING A DATA BASE OF TEACHERS. THEN I HEARD OF OLD-TIME TEACHERS AND INTERVIEWED THEM.

ONE THING LED TO ANOTHER AND I BEGAN A COLUMN IN THE LOCAL HISTORICAL SOCIETY'S NEWSLETTER.

BUT I STILL HAD TOO MUCH INFORMATION FOR THAT.

SO ... I WROTE ONE BOOK ON RURAL EDUCATION IN THIS COUNTY. IT'S EASY TO EXTRAPOLATE THAT TO THE STATE, AND WITH TWEAKING OF DATES, TO THE COUNTRY.

THAT WAS WHAT I WAS WORKING ON IN THE FILM AND IT FINALLY CAME OUT LAST NOVEMBER.

NOW I'M WORKING ON THE INDIVIDUAL TOWNSHIPS AND THE INDIVIDUAL SCHOOLS WITHIN THE TOWNSHIP. TWO OF THOSE ARE IN THE HANDS OF GRAPHIC ARTISTS AND THE THIRD SHOULD BE WRAPPED UP THIS WEEK AND FIND A DIFFERENT GRAPHICS PERSON.
ALL TAKES TIME SINCE ALL IS DONE ON A VOLUNTEER BASIS FOR THE BENEFIT OF THE LOCAL HISTORICAL SOCIETIES. 

Myriam
Posted: Friday, September 21, 2012 3:04 PM
Joined: 12/6/2011
Posts: 3326


Mimi S. wrote:

And have you read: I'm Still Alice, by Lisa Genova. It's fiction, but she had much contact with people in Early Stage before she wrote. Getting lost was her first symptom!

 

 

Yes, I read it right after I was diagnosed and gave it to my family and close friends to read. 


 

The TV spot I was scheduled to do today was preempted by a report on a shooting, but I did a spot on am and fm radio. 


Iris L.
Posted: Friday, September 21, 2012 3:05 PM
Joined: 12/15/2011
Posts: 18221


Congratulations, Mimi, on focusing on a significant area of our nation's history for your educational book.  I'm sure it will be of interest to future generations. 

Who would have thought that such an important work could be written by a person with  Alzheimer's Disease?  You rock, Mimi! 


Iris L.


younghope1
Posted: Tuesday, September 25, 2012 6:30 AM
Joined: 12/5/2011
Posts: 127


Johanna, thank you for updating everyone on me. I think you know my story better than I do sometimes, lol! But yes, it is all true.

 

We had our Memory Walk this pas saturday and it was awesome as always. Of course we didn't walk as far because of Austin's foot, but we did walk a little.

 

I still try to educate those on the outside of this forum. I will try to get back here a little more often.

 

Tracy


 
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