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LGBT Community and Allies
looking to connect with lesbian couples coping with Alz.
Hello tcc and a very warm welcome to you. I'm so glad you found this wonderfully supportive place.
We have had multiple lesbian and gay caregivers who are Members on this Message Board and I can tell you that they were warmly welcomed and were considered part of this terrific extended family. At this point in time, I do not specifically know if we currently have a lesbian caregiver who is active - we may indeed have and just don't know or I may have missed it.
I would like to extend the invitation to your family members to join us if they would wish to do so, there is a lot of support to be found here. Our Forums include Caregivers; Spouse and Partners; I Have Alzheimers and Young Onset Alzheimers. One can communicate on any Forum they wish and many of us participate on multiple Forums.
While I do not know specific support groups in your area, I would like to suggest several things. First, give a call to the Alzheimer's Association at (800) 272-3900. They may be able to assist. Also, use the following to insert your zip code to find the local Alzheimers Assn. office nearest your sister and sister-in-law who may have a listing of just such support groups. Go to, www.alz.org/apps/findus/.asp
Also, there is social work support and perhaps assistance to be had from two groups; one is, Lambda Legal at www.lambdalegal.org they can be helpful in any legal paperwork, etc. Then there is SAGE:, at www.sageusa.org/index.cfm They are for assistance to older GLBT folks.
You are a compassionate advocate on behalf of your Loved Ones and I do hope you are able to locate a terrific support group. In any case, we do invite any and all of you to join us here, we'd be delighted to get to know you better.
Oops - forgot to include the fact that at the Alzheimer Association there are Care Consultants. They are highly educated Social Workers that specialize in dementia and family dynamics. One has to request to be put in touch with the Consultant and one can bring up any situation that needs addressing or just to receive support for difficult emotional issues. There is no fee for this service.
I just joined ALZ Connected yesterday, and your message is very welcome. My partner, who is 61, was diagnosed with Alzheimer's in January. We do not know any other lesbian couples who are dealing with this disease. I would be delighted to connect with your sister and sister-in-law.
On November 11, my partner & I will celebrate 19 years together....but now it doesn't really matter. Alzheimer's has stolen the joy of ANY celebration from our lives, in June, 2009! Jo was only 57.
We live in Yukon, OK . Like your sisters, we've yet to find any others in the LGBT community who are also going through this horrible disease. Although, here in OKC, there is a Younger-Onset support group, that has welcomed us with open arms.
This is probably a redundent statement however, tell your sisters to get all their legal affairs in order NOW!
Hello Reiki. I am so sorry that your partner left you because she was scared. My partner is 59 and I am 44 and she is about to be diagnosed with dementia. We know the diagnosis is coming and to be honest I will be glad to actually have a diagnosis. She is a breast cancer survivor and has had at least 1 stroke and possibly other small ones that we don't know for sure about. Her memory and communication skills/thought processes have declined over the last year and she was never ready to go to the dr. I have finally convince her to go...had MRIs of the brain, lots of blood work...go for results next week. I would NEVER leave her because of her illness. YES! We are both scared! She verbalizes her fear but I do not. She brought up today that she has thought about leaving us (we also have a son that is almost 10) because she doesn't want to be a burden to me and doesn't want my son to have to see her go through all of that. I am scared of her leaving us...but at the same time scared about how I can successfully work full time, be a full time mommy to my 10 year old and a full time caregiver to my wonderful partner. Since there is no legality to our relationship, I don't know that there are any benefits available to me to help with all of this...
Best of luck to you! Stay in touch