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I Have Alzheimer’s or Another Dementia
I am 61 years old. My mother has Alzheimer's and I have had memory, cognitive problems for quite some time. About 15 years ago I was diagnosed with Organic Brain Syndrome. That was in conjunction with other health problems - Chronic Fatigue Syndrome and Lyme's Disease.
I recently had a cognitive functioning test which gave me the diagnosis of Presenile dementia with depressive features. I'm trying to figure out what that means.
I also had a test for depression which was normal. I think there were questions regarding activities and enjoyment of life that my health necessitated answers that might otherwise be depressive related.
Does this diagnosis foreshadow an early Alzheimer's diagnosis?
Hi, Jshu43! Here are definitions of presenile dementia from an online medical dictionary:
Wow! Thanks Iris for all the great info. I have thyroid problems and sleep apnea as well.
I have an appt in September with my mother's Alzheimer's dr who is a top expert in Houston. I should get more info then.
I really want to jump on this and do what I can. Seeing my mother go through this and the toll it's taken on the family is not something I want to
Put my son and DIL through.
My financial state is not so hot. I haven't been able to work for 20 years. My mother had helped me until the last year when she basically because of the Alzheimer's stopped helping me. My stepfather took over the finances and he just had a hard time understanding that I'm not able to work. So I'm living on $200 a month food stamps in the single wide mobile home that my mother had fortunately bought me before she was too ill. I never was approved for Disibility so it's been pretty hard. But, I have great friends and church so that's the essentials in life.
I won't mention this to anyone until I go and get diagnosis in September. No use scaring people. I will be very concerned for my son if I do get diagnosis for early Alzheimer's. it appears it can be hereditary.
Well, I can get a new sleep study and get on CPap. I never actually used the one I got 5 years ago. I can take antibiotics for Lyme. (I read a high percentage of Alzheimer's patients had Lyme in their brain on autopsy.). I can take some vitamins. And in the meantime I've got this board which seems to have great info!
Are you both still here? You are such good support. After years of caregiving for my mom, I also developed cognitive problems. Mom had LBD with aspects of AD and PD. We were told that her father had AZ, but I have his hospital admission card and it says Chronic Brain Syndrome. In the past two years, I have consulted two different clinics, just for verification, and received diagnoses of Syndrome: Organic Brain NOS and Syndrome: Cognitive Impairment NOS. I also have Hereditary Peripheral Neuropathy combined with Tremors, confirmed with a DNA test.
I was still caregiving for Mom in her worst stage when my issues became noticeable. I didn't feel I could take time to pay attention to my problems then. I was also working more than full-time at my job as a Project Manager at a major university. I thought there could be some very good and temporary reasons why my memory, thinking ability, ability to follow through, remember names and even remember projects were so impacting my life.
Mom passed two years ago. I got plenty of sleep. The problems didn't go away. So started the rounds of doctors' appointments. I've seen mental health counselors, psychiatrists, neurologists, neuropsychs and more.
I lost my job in a major lay off. I had been talking with my boss all along about how caregiving and my later concerns bothered me and asking for her to work with me and let me know about anything she observed. She was one of those people who could never say anything bad about someone and performance reviews were always glowing (which would not help should I need to apply for disability). Then the whole department was laid off. Looking for a job was beyond me. I didn't have the ability to actually work through the steps of applying and interviewing. My tremors would have me shaking like a leaf, which was not a good impression. However, I applied for and got approved for Social Security Disability without even needing to appeal.
With SSD and a small pension, I will be able to survive. But no luxuries and with deductibles and copays what they are, for both doctors' appointments and medications, I am going to have to cut back on medical care.
I'm only 61. What's so wonderful about living to be 100?
Organic Brain NOS and Syndrome: Cognitive Impairment NOS.
Welcome, katelu. I couldn't quite figure out what your diagnosis is. Did you have a thorough evaluation by a neurologist to rule out mimics of dementia?You must live your life day to day. That's all any of us has.I'm glad you mentioned organic brain syndrome. That was one of my diagnoses for years, but I had forgotten about it.