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What advice can you give to someone with EOAD/FTD/MCI/CI?
Iris L.
Posted: Monday, October 7, 2013 12:30 PM
Joined: 12/15/2011
Posts: 18723

Many of us may have received a diagnosis but no advice.  What advice do you wish you had been given?  What advice can you give to someone diagnosed with EOAD or FTD or MCI/CI?

I would advise several things:

1.  Try the medications available for your dx to see if they can work for you.  Not everyone receives benefit from the medications, but many do.

2.  Follow Best Practices.  I have found them to be helpful and to place some structure on this illness.

3.  Follow a brain stimulation/rehabilitation program.  This has helped me a great deal.

4.  Read the message boards.  Learn as much as you can.  Keep in contact with other people with your diagnosis.  It's vital to understand that there are people like you who are dealing with daily life.

5.  Keep a positive attitude.  Learn to live for today. 

What advice can you pass on to others?

Iris L.

Mimi S.
Posted: Monday, October 7, 2013 6:59 PM
Joined: 11/29/2011
Posts: 7027

You covered everything I was thinking of.
I would like to add something additional. Many people think that a leisurely walk to the corner and back covers the need for physical activity. 
Every study I have read and my own experience says that the exercise must be so strenuous that your heart is pumping blood at a fast rate. You need to sustain this level for a bit. However, if you've been a couch potato, check with our doctor. Go slowly. 
I have found that my performance on the tread mill is the very best indicator of my physical health. And there is a positive link between physical exercise and my over all well being.

Iris L.
Posted: Tuesday, October 8, 2013 12:59 AM
Joined: 12/15/2011
Posts: 18723

You're right, Mimi.  The heart rate must be elevated.  I have a watch that measures my heart rate while I am walking.  I know the vigorous walking has made a difference.

Iris L.

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