Loading discussion content. Please wait...
I Have Alzheimer’s or Another Dementia
No Youth Camp This Year
I regret to inform any families here that were planning on sending their teens to Austin's Camp Building Bridges this summer that it is not taking place this year. I was saddened by the news yesterday by the Oklahoma Chapter they were informed by National that July was going to be National Alzheimer's Month this year. I don't understand, because they still could have held it in June. It makes me sad for the families that have used it in the past to give their teen a respite from the disease as well as an opportunity of education about the disease. I feel this is actually probably the Alzheimer's Association's way of ending the camp. Very sad in deed when a program as this has given so much to families in need.
After a bunch of calls I talked to Mark Freid CEO, OK. He said that funding was one problem but that getting enough kids was another. Just not cost effective. He was straight forward and very nice.
I think you are right...it may not ever happen again.
Yes, but how many of them live close enough to the camp to go? Even if there was a scholarship, many parents would not be comfortable sending a young child too far.
I do hope there are opportunities for day camps with scholarships provided as needed.
Speaking of fame, that's what the Youth Camp needs. A prominent celebrity or child of celebrity to outreach to the community. I used to work with the lupus support groups and their approach was to partner with a celebrity or two.
BTW, there should be youth camps in all chapter locations. Respite is promoted for the adult caregivers. Why not respite for the teen caregivers?Iris L.
Camp update: I finally spoke to Mark Fried the CEO of the Oklahoma Chapters in Tulsa & OKC and was basically told 2 things:
1. Due to lack of youth attending the program, the sponsors that had been awarding grants over the last several years, had lost interest due to the camp program not growing.
2. Because of lack of interest the grants had bascially stopped and the costs were shouldered by the Oklahoma Chapters.
I tried to discuss with him about using celebrities to advertise the program to give it an outreach as so many people are not even connected with their local chapters, that this might give the program the increase and awareness it is needing. To no avail, he kept going back to money, like he could not hear a single word that I was saying. I also got the feeling that he had no interest in the program. I ended our conversation by saying that it was sad that they were willing to let what could be an amazing program for youth in education for alzheimer's disease go because they didn't have the time to try and figure out what works.