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I Have Alzheimer’s or Another Dementia
alternative medicine, supplements, what works for you
Thought we might get a single area for things that help.
Lemon Balm - anxiety
Hops - anxiety
the TREE EFFECT
have to get going today but if you have used non allopathic or pill based therapies that helped your cognition or life quality please add them here.
This is just a starter post, will add links later
add your knowledge here!
love and courage
Orange Sweet Organic
Glucosamine, Chondroitin & MSM
Ginko Biloba Extract
C w/Rose Hips
Full Spectrum Wild Berry Complex
Seniors Multi Vitamin
Spending time with friends
Advocating for a cure
Peting my dog Joe Cocker
Reading the boards to learn what to do.Receiving support from fellow members.
Avoiding stress.Iris L.
Someone recently told me about coconut (not exactly sure what form it's in).
Plenty of water
Choose friends wisely
Breaking down tasks or problems
Exercise - perhaps if we include MOVEMENT on any level. When I first thought of "exercise" I thought the health club down the street, but because of my spine I can not do weights.
So exercise as in:
laundry - folding
play with dog
walking in store
movement with PLEASURE has a better effect.
I got o SILVER SNEAKERS twice a week, an exercise class for those over 50 which is set to music and some of it I treat as dance.
After my diagnosis in 2006, I started researching on how I could help myself. I found lots of information on vitamins that were said to help with brain health. (post was edited by the ALZconnected Moderator).
I think the best supplement is Cerefolin NAC. It is a brain food supplement. I find it helps me a great deal along with vitamins, alz meds, good nutrition and exercise both mental and physical.
Being social helps too. This is a little harder for me but I continue to try.
Went to a Beatles Tribute Concert here in New Orleans and had a ball. Great vibes! Lots of Love!
Peace and Hope,
What fun, Lisa! Did they sound like the real Beatles?
On the Clinical Trial Board, I posted an article by researchers whom found taking Vitamin B had no effect on preventing, slowing down or stopping dementia:
"Taking B vitamins doesn't slow mental decline as we age, nor is it likely to prevent Alzheimer's disease, conclude researchers who have assembled all the best clinical trial data involving 22,000 people to offer a final answer on this debate. When looking at measures of global cognitive function -- or scores for specific mental processes such as memory, speed or executive function -- there was no difference between those on B vitamins and those receiving placebo to a high degree of accuracy."
I wonder how they factored out the effects of beri-beri, due to deficiency of thiamine, and the effects of pernicious anemia, due to deficiency of vitamin B12, in causing dementia and cognitive changes. When I was a medical student, I personally observed an elderly woman with severe dementia improve remarkably overnight when given intramuscular vitamin B12.
I take a Stress B-Complex every day which includes:
vit C 500mg
vit E 30 iu
vitamin B6 5mg
folic acid 400mcg
vitamin B12 12mcg
pantothenic acid 20mg
The Beatles Tribute concert was at the House of Blues in New Orleans. It was great!
Several local bands and musicians played Beatles' music and they sounded fantastic.
There are several large TV screens showing Beatles' footage throughout the years. We all sang out loud and had a ball!!
Exercise, exercise, exercise.
Medical marijuana for agitation (as needed)
Does anyone use OTC human growth hormone (HGH)????
Note date if august 10 2014. I don't remember starting this topic!
Interesting supplements, the brain food and some others. I do take sublingual B12 complex once a week, it may be placebo but if it causes the effect of some type of energy balance which it does for me then no harm done?
JOE COCKER the dog! Brilliant. Wish I could see everyone's pets!
Massage helps me remember I am still in here.
How am I posting here now? I mean t to reply to another topic. At the same time I feel incredibly clear, as if I am really on top of things. Hmnnn. OH! The topic was from iris - being corrected about appearance or other...
love and courage!
Id really like to learn more about the vitamin research you have compiled posted on your website; unfortunately, the address of your web page takes me to a page that says "you have tried to view a page that doesn't exist" I'm just checking to see if I'm doing something wrong? I copied and paste the address into my web browser, no luck; then, I highlighted address, and right clicked on "go to http://.jim-mary.com/4636223 still get the page saying it doesn't exist. Thank you in advance for any insight you can share...
This scammer post was not seen by admin; so when this happens and you have a suspicion, please report it.
I will call it in this morning.
Thanks for keeping our boards safe and scam free. I know I'm pretty vulnerable to things so it is good to know folks are watching our boards to keep us safe.
You all are our hero's!
God bless, Paul
Macy Rose on the Caregiver board posted about her dad's response to pomegranate juice after post anesthesia delirium. Pomegranate juice is a strong anti-oxidant, and we need anti-oxidants.
If you drink this juice, make sure you get 100% pure pomegranate juice and not a blend. I used to drink pomegranate juice daily until I became a diabetic. The endocrinologist told me to limit juices, along with desserts and sodas.
from MacyRose' post (http://www.alzconnected.org/discussion.aspx?tid=2147507611&g=posts&page=-1&t=2147511164#ekbottomfooter):
My father had post anesthesia delirium following colon cancer surgery. He rebounded but is not mentally where he was prior to the surgery.
We did find that having dad drink pomegranate juice helped with the delirium - 3 times a day we had him drink this along with extra water. You can find this in most grocery stores under the name "Pom" Also, we had him drink a lot more water than normal to try to wash the drugs out of his system.
So, we saw improvement and not a downward spiral. Then he stabilized to his new normal and has remained at that baseline ever since - it's been a year.
Memory dysfunction is a common complaint following heart surgery and may be related to a diffuse ischemic state induced by microemboli dislodged during the procedure. Ischemia can induce damage by a number of mechanisms, including oxidative stress.
Because pomegranates contain a variety of polyphenols with antioxidant and other potentially beneficial effects, we tested whether supplementation with a pomegranate extract before and after heart surgery could protect against postoperative cognitive dysfunction.
Patients undergoing elective coronary artery bypass graft and/or valve surgery were given either 2 g of pomegranate extract (in 2 POMx pills) or placebo (pills containing no pomegranate ingredients) per day from one week before surgery to 6 weeks after surgery.
The patients were also administered a battery of neuropsychological tests to assess memory function at 1 week before surgery (baseline), 2 weeks after surgery, and 6 weeks after surgery. The placebo group had significant deficits in postsurgery memory retention, and the pomegranate treatment not only protected against this effect, but also actually improved memory retention performance for up to 6 weeks after surgery as compared to presurgery baseline performance.
(I broke the Abstract into paragraphs to make it easier to read.)
Hey from Georgia
I have started using DAILY BIO BASICS from Life Plus. I can not tell if they are helping memory but they sure are attacking arthritis pain which does allow me to focus more.
None of the 4 Dementia drugs were for me either due to price or side effects.
I did try and held out hope for each drug.
I even tried HUP A and my goodness I was awake 24 hours that is not good for a full time caregiver to a son with severe disabilities.
what is HUP A ?
I looked up Cerefolin NAC - a prescription food supplement.
HMN. I like lemon balm more and more. would like to be off the Ativan but still use it as a stabilizing agent.
Can't recall - oh yes! PROBIOTICS. I reordered and they do help me a lot.
Also remember nurse telling me if you take Aricept you need to really increase water intake to prevent some side effects! That info was over a year ago and it just came back.
Why aren't we given oxytocin? Isn't that our bodies own love drug?
Stimulate our own body's arsenal of perfect compounds to calm and heal by lots of affection. Exercise does help normalize moods and can stop crying.
HUP A is Huperzine A. It is an alkaloid extract from Chinese club moss called Huperzia serrata. It is known to be a memory enhancer.
Here's a research paper on it - Not posting it as it is too long.
At some stage we thought of using it on my mom, but decided not to. Most side effects seen are nausea and vomiting.
My first time on these boards. Very glad to see there is a board for alternative medicine and supplements.
The best hope I've seen is a UCLA study, Reversal of cognitive decline - A novel therapeutic program (100690). It's all about nutrition and metabolism.
Welcome to the Alz Message Board!
THANK YOU for sharing the link. We all need all the help we can get.
The Therapeutic System 1.0 (table) in the study is superb.
It shows exactly what supplements/therapies have been used for targetted goals/conditions.
Great for further research if anyone is interested before trying.
We have often wondered if we could use Bacopa Monnieri (BM) and Magnesium Threonate for cognitive enhancement. Eventually, we decided to add BM as it seems to have minimal side effects. The table showed the use of both which is interesting.
Welcome to our online support group, Christy. I haven't read the UCLA Reversal of Cognitive Decline paper. Does it follow our Best Practices?
Music is a valuable part of our therapy. How have you found playing music to benefit you? Can you share some tips for us?
I never learned to play the piano. Should I try to learn on an 88 key piano or on a smaller keyboard? Actually, I would like to learn to play the electric organ.
If you go with electronic use an 88 key with balanced/pressure sensitive keys. However, a good-sized acoustic piano in decent condition is best (for aesthetic and sensory/kinesthetic reasons).
(But I'm very biased cuz I teach piano and receive great pleasure playing my acoustic grand; nothing like feeling and being surrounded by the genuine vibes.
When I have to down-size, I plan to go with a good quality electronic balanced-key instrument. You can also put headphones on and not disturb any neighbors.
Christy, please let us know how you do with the riding! Riding has been therapeutic for people with other illnesses, why not dementia? I used to ride, about 30 years ago. I wish I could ride again.
Storycrafter, I like the idea of using headphones. I'll look into the good quality electronic balanced-key instrument. My 88 yo cousin moved her grand piano from her home to her retirement community, but that won't be me. My question is, are the smaller keyboards okay? I don't think I can manage 88 keys.Iris L.