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I Have Alzheimer’s or Another Dementia
Conversation between Maria Shriver and Lisa Genova, author of Still Alice
I happened upon this thread after logging out and a few things caught my attention,.... the chance of getting breast cancer and AD after age 60.
I have not seen the movie, read the book or viewed the interview so probably am not qualified to speak on such. I did read an interview with the author on another website that impressed me, which fails me now.
However, having been diagnosed with breast cancer at the age of 37 and now going through this complicated series of events involving my neurological functioning at the age of 48, I am very well aware of any type of early onset disease. "Elderly" Diseases happen to young people and it infuriates me for doctors to not recognize that fact and act upon it. Just because tests and blood work do not correspond to a disease, age should not be the deciding factor that deters further investigation. I battled cancer twice and never once showed any correlation with tumor markers and had a 5 cm tumor and never had any increased liver enzymes or tumor markers with liver metastasis but had a positive liver biopsy of a 2 cm tumor.
I know I'm ranting, hyped up on Ritalin and need to go to bed,
Sorry for the hijack, but your right Iris, AD does not get the recognition it deserves in younger adults. Perhaps Alice will bring this to light.
I probably don't need to bold this rant.
God I love rants. I do! Such a relief!
I am invited to speak on a panel about this movie in May.
This pissed me off - the financial wherewithal to live any way they wanted! Why is every freaking movie or novel about someone from big cities and loaded with money.
My own answer is that as a nation ignoring ALZ is because of the disparity in options and the use of family members as sole care giving sources. People bankrupted by our medical system, insurance itself is too costly and complicated.
To discuss ALZ is to uncover poverty, the lack of quality care for the less financially sound and homelessness in America among other things.
I found the Harvard Harvard Harvard and beach houses and brilliant healthy obnoxious children and husband lessened my concern for the main character. As Iris pointed out she considers suicide (because of her belief this is a tragic horror show that will leave her a burden and empty vessel?).
Glad it got out there, glad it makes people talk, it was a movie (you know I think I did see it!?) with good actors. Valuable in that.
I want to see the other movie mentioned about the smaller house - reminds me of LoneStray and his fabulous book. I learned so much from his book I dream of it!
This is great for me - giving me ideas for the panel discussion set for May. Beware of my own rants but hey, somebody has to do that part, might as well be me.
thanks for links, posts!
How wonderful for you to be picked for this topic, Alz+ I know you will make a great presentation!
You probably did not get a chance to view the interview between Maria Shriver and Lisa Genova that Mimi posted. It is about 30 minutes long. Here is the interview:
I wonder actually how many patients diagnosed with YOAD actually make a suicide project like Alice did. She not only had a plan (suicidal ideation), but actually got the pills together, hid them and made out instructions for herself. The only thing that stopped her plan was that she was distracted and dropped the pills on the floor.
A large number of patients with suicidal projects would be a very important public health project.
The dvd about the man buiding a house is called "Still Mine." It is about a woman who develops late onset AD.
Iris - the movie Still Mine! I want to see it!
http://www.rogerebert.com/reviews/still-mine-2013 how did I ever miss it?
The panel discussion will be in Ashland WI or Washburn at a movie theater.
There are 2 showings with the panel discussion on stage between showings.
Sometimes when winging it I forget what I'm talking about, although that does not make me stop. I am in learning mode again so want to hear other's opinions and offer hope. Wish the dang book was done so I could plug it.
Love you all, the boards really were a huge blessing when I was first diagnosed and ever since. Just now waking up to get more involved in person. I have been hiding for some time, in seclusion.
While in desert this spring I had several one on one conversations in the hot mineral swimming pool with women that went on for hours. While ALZ was mentioned it was accepted and not primary part of talks. It feels good to be around people who are not afraid or turned off by lost thoughts, slow speech, and so on. I think when I used the calculator to figure out how much time I have left ( ) and came up with 5 years, so 2 years of still able to type, read and speak - got me energized.
The calculator link I posted on EOAD board. Seems to me that I have had this illness for a really long time and should not be thinking it will be over any time soon. So, onward!