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I Have Alzheimer’s or Another Dementia
Book The Myth of Alazheimer's
read this book in 5 hours, could not put it down.
The Myth Of Alzheimer's - what you are not being told about today's most dreaded diagnosis
by Peter J Whitehouse MD
author Dr Whitehouse has treated dementia patients for many years. He describes the stuff I thought was original with my views in medical and human terms.
In regards to early onset, he only mentioned a gene, the rest of the book is about how money has corrupted the medical and research world from the very beginning of the plaques and tangles theory and the idea there is a cure waiting.
His sense was that there is no cure to be found because this is an aging brain, normal, and that the treatment for the condition is loving care in a safe and active setting - where he feels money should be spent.
I remember a famous man talking about his dementia and his doctor saying "It's not the end of the world" or something close to that and how the man then brought his mri stacks of his shrinking brain to the doctor.
I am still bit slow thinking but I was cheering out loud as I read this book.
comments on amazon were pro and con, some people thought he was saying nothing is happening to a person with dementia. He is putting dementia into a historical and worldwide perspective, and asking for people to realize no one knows what causes this, it has been with humanity for recorded time, is as natural as any other disease process, that the person does NOT disappear or become vacant and to keep shoveling money and hysteria to drug companies and research would be better spent helping people handle the work of caring for someone with cognitive loss in a friendlier gentler way.
I loved the book. His take on Best Practices seemed more to prevent or delay dementia. He felt it helpful to not to use "Alzheimer's" as a diagnosis, to keep living your own best life, esp finding ways to give back to others in need by volunteering or participating in life even if one's thinking is slow or memory challenging. He encourages his patients to enjoy living.
The end of life for all of us can by tough, but living with dementia does not have to mean the anxiety, depression and anger that so many people experience. While no drugs cure the condition, the way we are treated makes or breaks us - as in most illnesses.
Really interesting. I ordered a variety of books to make available locally through the library a section on dementia.
title is The Myth of Alzheimer's
available on amazon and any online book seller.
He describes how dementia has been around for 100,000 years and how it became "Alzheimer's Disease" and how that has become focused on finding a CURE through drugs so all money goes to "research" and testing, medicalized, and how that is fueled by making it out to be an ugly tragedy that destroys lives, which is a self fulfilling prophecy.
Except for the person living with dementia who suffers. Recommends money spent on community programs to help share burden of day to day life when you can no longer drive or handle finances etc.
Again, the treatment for dementia is a kind acceptance and support that helps the person living with dementia not be in fear but live their best life.
how cool you know so many people I wish I could meet!
One thing I have come to know over past 45 years of having health problems and plenty of misdiagnosis from medical world and paying in more ways than dollars for wrong treatments - I am better off finding what works for me.
Since there is no science to say exactly what dementia is and since science keeps looking at plaques and tangles because that was what was found in one person's autopsy 100 years ago, and since Dr Whitehouse treated many people and saw what made them suffer and what made them do better - I'll take his views over what has created a nursing home penal colony.
I would not bet the rent I understood and remember all that was in his book, maybe I misinterpreted some things.
It is fine to disagree that way we cover all the bases!
Did I misunderstand his "solution" is acceptance and a loving appropriate to the individuals environment?
as we all follow what feels right to us, and share our experiences and the changes me make to live better longer, or just better perhaps, it adds up to a grand amount of information for others sharing our condition.
I am not asking people to dissect the book for me, I just always wonder if I totally missed something when other people have very different views.
I have been wrong about so many things. Hope you post more often!