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I Have Alzheimer’s or Another Dementia
New Members, please join us on the Younger Onset board
We have two boards for patients. Most of us post on the Younger Onset board, regardless of our ages. It is unfortunate that many members are Younger Onset.
Well, as many of you know, I'm well past the Early Onset age. Those diagnosed at a younger than normal age make up on a small proportion of those living with the disease. And those folks have usually had a harder than normal in getting diagnosed. Doctors are too much in denial that such a thing is possible and so time is lost.
And currently this board is not used much but it is still checked. So, post wherever you wish.
MY doctors are thinking early onsite dementia. I'm only 57. Really scared. Had the MRI now ready for test
Wecome to our world.
We're so glad you found us.
From your library, do ask for a copy of Doraiswamy and Gwyther of Duke University: The Alzheimer's Action Plan. You will learn about all the facets of a good diagnosis. All are important.
EJ. Do get in touch with your local Alz. office. Most have a peer to peer program where you a paired with a person with dementia. Having someone you can talk with any time can be so helpful.
We are here for new members and lurkers. Please join us on the Younger Onset board. Many YOAD members are waiting to meet you!
There are many members on the YOAD board waiting for the new members! Come join us!
Welcome. Im in the same boat as many others, and I have MCI. I do believe my last Neurologist felt I had EOAD, as he wanted me to start aricept, which he only prescribed after seeing my neuro cognitive test results. Sometime next month I will see a new neuro and see what he/she has to say.
Sorry you have to be here EJ, but I cant think of a better place to be to seek out others, and learn from their vast experiences. I know when I first found this site, I spent the entire day using the search feature and typed in question after question, and various topics, and found excellent answers.
I can't seem to find an EOAD support group in my area. Is it because so many of us don't let the world know because of the stigma? When I went to a meeting they thought I was a caregiver... or a volunteer. And I particpatd in the brain games and then left, and didn't tell them any different. Didn't want to embarass the dedicated volunteers there. Also, in my state, our Virginia General Assembly just passed a bill to allow doctors to prescribe Cannibis Essential Oils. Since I see no difference with the Aricept and quit taking the Namenda because it was $500 out of pocket monthly and I didn't see any differences and due to my Obamacare individual insurance I am going to have to switch neurology providers again. How can I find one in Richmond, VA that would be receptive to trying to prescribe it to me once the regulations with the Board of Pharmacy and Board of Medicine are finalized.
I feel hopeless right now except for the fact my legislators at least listened when I told them to bring this bill up! And she did!
Welcome to our world, Determined.
Hi, Tammy. I attended a Family Caregiver Support Group for over one year as the only member who was a patient. They were kind enough to allow me to participate. In fact, a speaker from the Alzheimer's Association was the person who encouraged me to push my neurologist to take me seriously and to proceed with my evaluation. That support group held monthly educational seminars and I learned a lot. After a long while, I am now attending a support group for caregivers and PWDs. Two of us patients attend without a caregiver. It is hard to find a dedicated support group for PWDs. Many use this group as an online support group.
Please come over to the Younger Onset Message Board. It is more active.
Surfergirl, yes, the term is anosognosia. Your husband was unaware of having dementia. He might have known that something was different, but as you say, he was not aware of the full extent of the meaning of having dementia. I am sorry for your loss.