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I Have Alzheimer’s or Another Dementia
Lack of Motivation with Dementia?
Does anyone else hav problems with apathy? I cant get motivated at all to "do" anything, even activities i use to luv to do. I know depression causes apathy but if dememtia does too, im in trouble.
Ive thought about drinking coffee first thimg in the a.m. sinc i don't drink coffee or other caffeinated drimks at all. What do u guys think r do to fight against apathy?
I don't like the term apathy because it has a negative connotation. But I can't come up with a suitable substitute. Anyway, apathy is common.
IMHO, part of apathy is fatigue. So getting enough rest is important. Also important is not tasking our brains too much by executive tasks, such as multitasking. Meaning, I am less apathetic when I don't have body fatigue or brain fatigue.
We have to simplify and make our lives easier. I have apathy about performing hard tasks, but I don't have apathy for tasks I am comfortable with.
Apathy is distinct from depression. Many professionals are not aware of this and may attempt to treat apathy with anti-depressants, with no results.
THANKS for your info on apathy. Very informative! My counselor had told me not to wear out my brain, but i didnt know what he meant, but now i do bcuz of ur insight!
The past few days i hav been readi g everything i could get my hands on about dementias, and i hav been TOTALLY exhausted! One day i slept 10 hrs. and the other days i slept 9 hrs. apiece, so now i know why! Again, THANK YOU for ur input!
Mayo Clinic website and N.I.H. website hav ALOT of info on benefits of good sleep witb people with dementia, but ive learned alot from ur posts on ALZconnect.
Vik, our brains remove waste products while we sleep. This is why getting restful sleep is so important. There are different stages of sleep and not all stages are restful. You can read more about that.
Great posts above. Iris is right on with rest and good sleep. I'm not sure its apathy for me, or more the disease itself. Its proven that dementia can create trouble with organizing, decision making etc. I often have such great thoughts of accomplishing things, but at the end of the day I often don't even know what I did or got done. So yes sometimes I feel that I'm uninterested or unenthusiastic.
I read somewhere on this site or Mayo Clinic site that the vitamin/ supplememt MELATONIN taken at nite promotes better sleep. Im going to.try it as i hav problems either getting to sleep or stayin g asleep. I NEED 9 hrs. of sleep to function as well as i can. If i get 8 hrs., i hav some cognitive and walking/falling problems. If i get less than 8 hrs.of sleep, i REALLY hav cognitive, memory, and walkimg issues! If i get 7 hrs.or less of sleep, i try to take a nap so i dont get frustrated by my increased cognitive and falling issues. Does anyone else hav walking/balance issues with their dementia ?
I use to get SO FRUSTRATED by the INCREASED cognitive and memory problems as i thougjt that my dementia was increasimg. Once i.figured out it was due to lack of enuff sleep, i didnt get as frustrated and knew it was a time to take a nap or at least rest my brain!
Oh my gosh Vik I know exactly what you mean. The times that you thought your disease was getting worse. Only to get good sleep and be back to where we were. One thing I need to start doing is going to bed a little earlier and at the same time. Soooooo VERY important.
I no longer work. I tried for about a year after my diagnosis but was unable to work in a stressful environment and was having trouble getting BP under control. With all my cognitive problems it became unbearable. I hope you find DAI helpful, especially since you are right there.
Smiles, i had to giv up workimg 3 yrs.ago.bcuz of some other health issues. It was hard emotionally to stop workimg as i luvved what i did but could no longer work with all the pain and weakness in my arms and legs.
Little did i know that two years later i would get a dementia diagnosis! Probably one of my biggest fears with it is that i wont b able to communicate when im havimg pain. Just one more thing to b anxious about---huh???
I sure enjoy readimg ur posts! I feel so alone bcuz no one i know has dementia. I also live by myself so it is rather lonely. Thats why i connect so much with all the postings bcuz it helps me feel less alone, especially knowimg that people here hav experienced or are experiencing most of the things i am.
Vik were you assigned to a support group by DAI yet? That has been a life saver for me. Really helped me chatting once a week live with folks that are like kind.
This topic came up a few years ago when someone mentioned abulia which I didn’t know what that was. Here’s one of my responses including what I thought was a very thorough article about the course of lack of motivation in dementia.
Thank you for sharing that article, Agent 99. I was prescribed Exelon patch and Namenda and have had good improvement in my speech and memory compared to 2009.
Yet, I did not notice any significant change in motivation. I am doing better motivation-wise now, in 2019, but I credit that due to changes in sleep apnea treatment and improvement in other areas.
It is very unfortunate that most professionals are unable to distinguish low motivation and apathy from depression, since they call for different approaches.
The "search" webpage you linked did not bring up search results; we will have to perform our own search for motivation pages.
Welcome, Still Plenty to See. I don't know your process of diagnosis, but wanted to be sure that you are aware of chemo-brain after chemotherapy and of CTE, discovered by Dr. Bennet Omalu. These conditions can be dementia mimics.
I am 58 and was early onset Alzheimer's in December 2018. I struggle with energy and desire all the time. I take an anti-depressant (Venlafxine) 75mg in the morning I feel it is energetic. I still own a business that I am working on turning over to my wife however I still need to function daily during the week. My doctor also has me on 200mg Provigal along with coffee and tea throughout the day to keep me as functional as possible. I then take a night time anti-depressant (Mirtazapine) 15mg at 8PM with the goal to be asleep by 9PM. With all of this it still takes me 3 hours to be alert enough to start the day.
My whole family recently went away for the 4th of July holiday. I stayed home and went to bed early and didn't set my alarm to wake up in the morning. I slept 12 to 13 hours a night and and felt my cognitive functioning was much better. Everybody is different but when I can take a nap or get to bed earlier along with the medication, I find myself doing better.
Just to note that I discussed this with my caregiver and she disagrees that my cognitive functioning is any better. She should know because she is dealing with me everyday!
NevadaBrad, were you evaluated for sleep apnea? It causes daytime sleepiness and fatigue. Do you fall asleep spontaneously during the day?